Post by garciia20 on Jun 16, 2018 17:41:12 GMT -8
Hey guys/gals it’s been a little while I’ve posted ( not sure if any one notices). Here’s a little update and vent.
I had a baclofen pump implanted about 8 months ago and it was perfect for me. Totally made the difference of dependent and independent for me. Well about 3 months ago I get a return of spasticity ( I could still transfer and drive)
Spasticity slowly got worse until I couldn’t really do anything independently apart from the pain I was in from it. Took about a month of x rays, labs and confusion to learn that the catheter was kinked (the withdrawal side effects where horrible). Upon opening me up for surgery, they find that of the 4 sewturs holding it in place 2 had broken loose causing the pump to flip over multiple times causing the catheter to kink. Life was perfect for a week and a half then here I am again battling spasticity, possible UTI, dysreflexia and surgery precautions. On a side note I baught a 17 Pacifica with a new Braun conversion and I’m already having issues with it. After putting the bolt on the bottom of my power chair to lock the chair in, I now get stuck on any little threshold (I’ve gotten stuck in several vehicles). It’s ironic how the bolt was gonna make me more independent alternatively made it worse lol. The last thing I can think of right now is my manual chair. I ordered a new set of push rims and somewhere between taking apart tire and rim the technician punctured both inner tubes ( he’s going to fix it). There’s a few other things that I’m forgetting and a few that are inappropriate but I’ll leave those out. I know it could be worse. I just feel like these past few months have been hell.
Wow I don’t think I have written this much since I was in high school. There’s my update and thanks for letting me get all of this off my chest
