Baclofen pump/ constant spasms

I don’t have experience with the baclofen pump, sarahm, but the doctors gave me baclofen (as a pill) in the hospital and for (time runs together) maybe a year after my accident. I got off of it when I researched and saw how harmful it is for us. But I also read that one must slowly quit taking it, as going off of it ‘cold turkey’ is dangerous. When they replaced the baclofen pump of the man you mention, did they, for a short time, abruptly stop his dosage of baclofen? Maybe an abrupt cessation of the drug, when they changed his pump, put him in the ICU.

Spasms are indeed annoying. I have clonus,...that is to say, the stump of my amputated leg kicks up and down without my consent. A gentle, legal herb called Kratom gives me a lot of relief. However, a doctor can’t prescribe Kratom. My guess is that some (medically approved) marijuana would be the right thing for the patient’s spasm,...and much less harmful than the baclofen. But, alas, suggesting this to your patient’s doctor would probably put you in the proverbial “doghouse”.

the one thing I dread is a failed baclofen pump. I'm on my fourth pump now with no problems — no failures. If a baclofen pump suddenly fails it can put you in a life-threatening situation. The spasms come back with a vengeance. You're likely to get autonomic dysreflexia, too. If you can avoid having a baclofen pump then do so. I wished I had never had one fitted.

I know there are a ton of potential risks that go with having a backofen pump, however my guy had had one for like twenty years and never had any issues with the pump. He's always been fairly spastic even with it though, so I couldn't imagine how he'd be without it. He says before he got it, he'd almost spasm himself off of his bed 😲b I'm glad to hear you've never had any issues with yours mikeq, and hope that continues!

Thank you for the link, vintage! What interesting info. He's still sedated in hospital with no word, hopefully they will find the cause asap so he can be released and I can tell him about it!