Question

Are you open to investigating alternative therapy, roofer? I love the remedies that I learned from Hulda Clark. For non-Hodgkin’s, she recommended using a SyncroZap (electronic device) and killing ones parasites with herbs.
www.drclark.net/en-us/infective-agents-and-pollutants/parasites/we-all-have-parasites
“...If any of these short pieces of Dirofilaria manage to escape both the immune system and your digestive enzymes so that it can grow long, it produces a snarl. Such a snarl is the starting point for Hodgkin's Lymphoma, but non-Hodgkin's abdominal tumor masses, grow with Onchocerca, another filaria. Heartworms have gained ground in us by growing longer, even inside the bowel, so their clear glass-like threads make loops in the bowel contents, easy to recognize.
Onchocerca has gained ground too. Its stages hide in our vein valves, giving us blue varicose veins. It gives us small hard nodules under the skin.”

Thank you for your reply, does it get any easier or is it something I might have to live with and do you know of any exercises that might help me. Thanks again I really appreciated it

For me, its something I have had to learn to live with, doing exercise always helps and as Tetra said, everyone is different. If you like the gym, going there is a good idea, for me, I do sit to stands, I do push offs against the wall where I stand a distance away from the wall which stretches my ham strings and do push offs which is hard for me because I am a C5/6 quad and my arms are weak. Because walking is difficult, that is always a work out for me.
There are many youtube exercise videos for para's and quads, I'm sure some of them can give you some ideas of what would suit you.

tetra, tarabev,
We are going to see a Somatic Movement therapist later today. This is about relaxing the muscles rather than strengthening. I heard her talk recently at a wellbeing event and what she was saying about carrying around bad postural habits etc made much sense " the body starts to hold itself in a way to save it from further injury, which in turn causes other muscles to become tight and tense. Therefore, to tackle this, we work with movement patterns; relaxing more muscles and encouraging the body to let go in general".
I went along to a workshop to learn a bit more (for me initially). We did some really simple exercises (they were on the floor so wouldn't be suitable for Peter). 2 hours later I felt much more relaxed, looser and much lighter. I didn't realise how many bad posture habits I had! So, following a chat about Peter and his tight spastic muscles we have booked to see what she can do for Peter. She works with several people who have similar issues and has helped them find techniques for relaxing their muscles that take into account their movement limitations. She also does hands off massage and gets some good results with that. We aren't expecting anything dramatic, but it would be wonderful if she could help Peter to find some relief. Her initial consultation is only £30 (just under $40) for 90 mins so we aren't risking too much money if it doesn't help.
Peter does stretching exercises daily which help - but this is about getting muscles to neutral rather than stretching.
I'll let you know how it goes.
Here's a bit more info if you are interested. Susan explains it much better than I do!
www.susanrobertsbodytherapy.co.uk/somatic-movement

moco, Thankyou for that, it was very interesting and confirms many things for me. Not so easy to find a somatic movement therapist where I am though! I will google somatic movements and try them out

Does Peter have issues sleeping because of his muscles? About 7 years ago I had increase of tone in my legs when I was trying to go to sleep which stopped me from falling asleep.... after seeing a specialist who didn't help at all, I bought myself an acupressure mat. I found that I could trick my brain into forgetting about my legs because when I laid down on the mat with my bare back, the sharp points of the mat caused pain and consequently made my brain forget about my legs which then stopped the increase of tone.

It's probably a very long shot that the mat may help Peters muscles because he is a lot worse than me but a mat costs about $20 from Ebay and for myself, I thought, well if it doesnt work, then no harm done.

moco, I wouldn't be concerned about Peter not moving when he's asleep. You may not see him moving from his back to his side but he would be moving a bit removing pressure from areas. And its great that he's a good sleeper!

I have similar posture to Peter when I walk in that I lean forward, I know I shouldnt because it affects my gait but I do it because I tend to look at the ground in front of me looking for anything which may trip me up. When I am on completely even ground like a shopping centre I can still tend to lean forward but most of the time I try to remember to correct my posture.
I think thats one of the hardest things about being an SCI walker is the constantly always having to remember how to walk, its never easy and having to concentrate is tiring in itself.

I'll look for those books thanks Moco