Hi, I had surgery back in January to have L2-L3 fused. I woke up with zero feeling or movement in my legs. After another surgery to clear out a possible hematoma, it’s was slightly better. I went through a lot of physical therapy, and still continue to do so. I understand that spinal cord injuries and CES. I am making a lot of improvements but still feel the same when it comes to areas listed as CES problems. I am up and walking now with just a cane. I still have no feeing in my butt or thighs nor can I use those muscles. I still have poor feeling in my feet, and I have no control over bowel and bladder. Any insight to when I can start to expect any of these areas to start returning? I get the bad lightening all over below my waist. Thank you
I am not sure what you mean by "bad lightening." In general there is not answer to your question but the one I am sure your doctors have offered: "wait and see". I'm very happy for you that you have regained the abilities you have. Most of us continue to see improvement for years. Some for many years, some not so much. Each injury is different. Your sensation may improve somewhat, but it will always feel "weird". Never like before. The good news is that after a few years it feels "normal" to us. For me the gluteals were about the last muscles that showed improvement. It was also slow finding exercises that developed whatever function was possible. I suspect if you are walking with one cane there must be "some" function in your gluteals. hey are key to balance.
I'm sorry I cannot be more reassuring but this is just the way it is. Still, your rehabilitation period is quite young yet. I'm sure you will improve a lot. Focus on the small things that need correction. Watch yourself on video or in a mirror so you can develop a well-balanced, safe walk. I suspect you will do great.
Thanks Tetra, I appreciate your feedback. Yes, it is still early in my recovery I just get into my own head and think the worst. I do watch myself and see how I’ve improved so far, it helps me to think that there is a light at the end of the tunnel.
I worry because if I hold my gluts, hamstrings, or calves, I don’t feel anything at all. No matter how hard I try to make them to something. My hamstrings are very strong so they help a lot with my balance.
I worry about the bladder and bowel since they are not getting better. Again, I know there is still plenty of time in my recovery but I can’t stop thinking bad things.
Thanks Tetra, I appreciate your feedback. Yes, it is still early in my recovery I just get into my own head and think the worst. I do watch myself and see how I’ve improved so far, it helps me to think that there is a light at the end of the tunnel.
I worry because if I hold my gluts, hamstrings, or calves, I don’t feel anything at all. No matter how hard I try to make them to something. My hamstrings are very strong so they help a lot with my balance.
I worry about the bladder and bowel since they are not getting better. Again, I know there is still plenty of time in my recovery but I can’t stop thinking bad things.
Your concerns and fears are an inevitable part of the process of adjusting to your injury and new physical status. may I ask, before your injury did you have a tendency to worry about certain things? I am a worrier and have found that to be it's own problem.
For me, coming to accept my current physical status has been a long journey. It is fair to use the word "denial". I hoped so fervently to return to "normal" that I was quite slow to recognize which things would not heal or get better. The good part of that is it offered strong motivation for many years to work hard at rehabilitating myself.
Bowel and bladder did not worry me so much once I learned to manage them. After 7 months of trying to empty my bowels using only digital stimulation or stool softeners, i was thrilled to discover bisacodyl (magic Bullet or other) suppositories. It worked, I moved on. Once I learned intermittent catheterization, working round the limitations of quad fingers, I moved on. I wish there were a fix for bladder function because it so dominates my life and daily choices. But there isn't, so I deal with it.
My inability to walk well enough to use it for transportation was much more difficult to accept. Eventually even stubborn me had to admit, after about 5 years, that it was unlikely to get better. I have been able to improve my coordination so my daily activities cost less energy. Each of those small gains make a big difference.
What you mention with your legs will keep changing over the next few years especially, though for many the period of change lasts many years. Do your best, but there is little to gain from being attached to any particular result. No one here can tell you what to expect. Each of us is different. The emotions of hoping and fearing can bleed off a lot of energy.
Hope? YES! Feel it and use it and live it but let it be hope that things get better, not a hope of particular out comes, of HOW things get better. Life will surprise you but you will certainly be able to cope with all of it.