I have "radiation myelopathy" which was caused by radiation treatment five years ago for throat cancer. The treatment damaged my spine and eventually left me with severe spasticity in one leg and also balance issues. After falling twice in a week, an occupational therapist told me it wasn't worth the risk and I needed to be in a wheelchair. And just like that here I am learning to use a wheelchair. I never ever imagined I would be in this place, but no one does I expect. She also told me that I needed to continue exercising my leg because there was a possibility that my nerves could heal - or not. My condition could improve or get worse. I don't have anyone to ask, so I'm hopeful someone here can give me some guidance. Has anyone in this forum experienced improvement in their condition or is this just wishful thinking? Thank you.
camellia, if I had the money for it, I’d buy Neurotrophin by Standard Process. So expensive. I can’t afford it. But also, my condition is less likely to have a solution than yours. This is “alternative therapy, not something a doctor would be allowed to recommend. www.standardprocess.com/Products/Standard-Process/Neuroplex#.XODhZYpOmf0
I have "radiation myelopathy" which was caused by radiation treatment five years ago for throat cancer. The treatment damaged my spine and eventually left me with severe spasticity in one leg and also balance issues. After falling twice in a week, an occupational therapist told me it wasn't worth the risk and I needed to be in a wheelchair. And just like that here I am learning to use a wheelchair. I never ever imagined I would be in this place, but no one does I expect. She also told me that I needed to continue exercising my leg because there was a possibility that my nerves could heal - or not. My condition could improve or get worse. I don't have anyone to ask, so I'm hopeful someone here can give me some guidance. Has anyone in this forum experienced improvement in their condition or is this just wishful thinking? Thank you.
Hi camellia, welcome and I'm sorry that you've had to seek us out. I know little about the type of damage which has happened to your spinal cord but I do know that once damage is done to the cord, it cannot heal..... the reason many of us have improvement during the time after injury occurs is mostly due to inflammation and swelling going down.... but with that being said... there are many people who keep getting improvement years down the track.
As for your occupational therapist saying that you should be in a wheelchair.....my advice (without fully knowing how bad you are) is to walk as much as you can, once you stop walking, you will lose the strength to walk....many SCI people have balance issues and use aides to help them, be it either canes, arm crutches or rollators...myself, I have been walking for 20 years and have only just recently bought myself a rollator because my balance has deteriorated....I was a bit stubborn in that I didnt want to buy one but because i left it for a while, my balance got even worse because I wasnt walking enough....in just the few weeks that I have started walking more, my balance has improved just a little.
Have you seen a spinal cord specialist or has it just been your occupational therapist who has been advising you? If not, then its vitally important that you see someone who is a specialist with spinal cord damage, there are things that you can do and take for your spasticity but you need a specialist to advise you.
hello Camellia. I can only echo what was said above. If the nerve damage is peripheral then you do stand a chance of recovery but if it is your spinal cord that's been damaged, I'm afraid it's likely to be permanent. Brain cells and spinal cord cells do not regenerate, which is rather unfortunate for people who have damaged these areas of their bodies. If you can move your limbs a little, it's a good idea to exercise them as much as you can (again, all echoed very nicely in the above post by Tarabev).