Post by tamathaclay6 on Aug 8, 2019 19:54:18 GMT -8
I am a grandmother now raising my 7 year old grandson injury L4 and damage nerves at base has hips up and neurogenic bladder and bowel and paralysis to both legs has use of hops up Is not on any medications only what is needed with cath to fully empty bladder and saline fleet enema for bowel hoping to learn ways I came help him potentially revive stem cell therapy to continue what was done at the time of his spinal surgery when they were used in hopes of repairing connection path ways
Hi Tamathaclay6, Welcome to our humble little forum.
Personally I don't have an SCI, it's my son. He was not quite 6 when injured in a car accident.
I keep up as best I can with new developments, be it stem cells or assertive technologies, right now there is a lot going on in the world of stem-cell development, but none of it has brought us any solid results available for consumption at this point.
My son is injured at his T-11, and incomplete, while it's been a very difficult path it very much is worth it, his life is different now to how it would have been before, he has lost some friends but gained others, all in all he is a super happy kid most of the time, with the occasional bit of grief for what he has lost. I've done what I can to make his recovery easier, but never have I tried to hide reality from him our house has become a hang out spot on weekends and school breaks, I have made our garage and back yard into his play space and somewhere he can entertain his friends, not to mention making all parts of our house including the pool accessible for him.
He used to use intermittent catheters all of the time to empty his bladder, but slowly he has regained some control of his bladder and bowel, to the point from the time he gets the urge to the time he HAS to let his bladder go is about ~5 minutes, I keep him on a really great diet and find now his bowel is fairly easily regulated, he can also feel when he needs to go, and can take himself any time he chooses. He can shower himself but asks either his brother or I be present as a point of security and someone to chat to! He has had other 'boy problems' that seem to have been brought on by his injury, but are all well under control.