Post by corinne1276 on Jun 19, 2020 15:20:52 GMT -8
Hi everyone. I'm a C5/C6 complete quadriplegic with no function below my shoulders. I was injured in a car accident 28 years ago. Thought this would get easier over the years, but, turns out it doesn't necessarily work that way. I'm an attorney, but I was laid off last July and, as I'm sure you all can understand, finding new employment is very difficult. Things were just looking hopeful when coronavirus hit. In late 2018 I developed a pressure sore which restricted me to bed for about 8 months. I feel like I have been doing the boredom, isolation, and social distancing thing for about a year and 1/2 now. I live with my 78-year-old mom and have 2 caregivers coming in overnight and for a couple of hours in the morning. Otherwise, not really going anywhere or seeing anybody right now. Wondering what others are doing to combat the boredom and loneliness.
Post by smartinez02 on Jun 19, 2020 20:13:20 GMT -8
Hi there, it's nice to meet you. I have an emotional support cat that I hang out with all day every day. She is the most amazing creature ever! I got her last November and she is turning a year old in 2 weeks and 2 days.
corinne1276, hi. Funny you should mention that. I have one parcel delivery man who is always particularly helpful. He knocks and waits for me to roll to the door. Then hands me my parcel. I told him that Covid hasn't changed my life at all,... that people have socially distanced from me for years.
Good for you for becoming a lawyer. Did you get your degree while in your paralyzed state? I'm a paralegal. I got it 5 years before my accident. I have the degree, but only did reception work with it at a lawfirm. I think my area was glutted with paralegals,... from the local community colleges. And unless your looked like Farrah Fawcett of Charlie's angels, the interviews were over very quickly,... embarrassingly quickly. Okay. The lawyer walked out of his office from the door one one side of reception, around reception and me, and then back into the office area through the door on the other side of reception. A minute later, the temp receptionist answered her phone, and told me "thank you" for applying and they would keep my resume on file. Then she flashed me a smile and bounced her Farrah Fawcett curls of hair. I don't think she was going to be a "temp" very much longer.
I can use my upper body. I cook. It takes a long time to do it, but I cook. I pay a neighbor to bring my groceries. And she takes out my trash on our trash days. I sure hope she and her family never move away.
Hi everyone. I'm a C5/C6 complete quadriplegic with no function below my shoulders. I was injured in a car accident 28 years ago. Thought this would get easier over the years, but, turns out it doesn't necessarily work that way. I'm an attorney, but I was laid off last July and, as I'm sure you all can understand, finding new employment is very difficult. Things were just looking hopeful when coronavirus hit. In late 2018 I developed a pressure sore which restricted me to bed for about 8 months. I feel like I have been doing the boredom, isolation, and social distancing thing for about a year and 1/2 now. I live with my 78-year-old mom and have 2 caregivers coming in overnight and for a couple of hours in the morning. Otherwise, not really going anywhere or seeing anybody right now. Wondering what others are doing to combat the boredom and loneliness.
Hi corinne1276, and welcome - are you US based? Thought at first you were a fellow Brit then discounted it as attorney sounds more US than UK. Lockdown has been really tough for many. It is hard to find ways to occupy the brain and the body. We are shielding as my husband, Peter is high risk for a few reasons and as I do a lot to support him I am trying very hard to keep outside contact to a minimum so I don't share any virus with him. Wasn't too bad at first but getting tedious now - as you say, seems to have gone on forever . Though things are starting to open up again here in the UK it is is still risky for shielded people to venture out much. We are relying on garden meetings which are fine in the sunshine but not much fun in the usual British rain and also not possible to have people to stay overnight yet so can't see children and grandchildren who live a long distance away! Shops have just re opened but even if you are brave enough to venture into virus hot spots they aren't much fun due to the distancing rules and long queues.
I have so much sympathy for your situation and I really hope they come up with a vaccine soon as I don't think the virus is going anywhere. I just read the the R rate in Germany has gone right up again and there could be a second wave there - so we are not in the clear yet here in Europe. Wasn't meaning to put a depressing post up - plenty of doom and gloom everywhere already without me adding. I have been doing online classes - learning some new stuff. Lots of the distance learning companies here in the UK are offering either reduced rates or in the case of one company a few free classes. I also sign up for online workshops ( I am into alternative/holistic therapies and lots of people are offering online workshops) so getting some people contact that way via Zoom. I am also lucky enough to have a big family and we have been more communicative online than usual during lock down and this helps - we have all learnt new online skills . I know a few voluntary groups here in the UK are offering distance companionship during this time - maybe there are some in the US? Luckily we live next door to a large National Trust property, Lyme Park which has just opened its parklands to the public again and hoping for some sun this week so Peter and I can take his new electric chair for a spin I hope you get some people time back and manage to get outside soon - I feel your pain
Hi corinne1276 , aLuckily we live next door to a large National Trust property, Lyme Park which has just opened its parklands to the public again and hoping for some sun this week so Peter and I can take his new electric chair for a spin
Mo- I'm happy to hear Peter got his new chair. This should be much more fun for him outdoors, as I know how awkward it is to go out with someone pushing me. Have fun!
Corrine- Welcome to you. You have had some rough setbacks. I have lots more movement than you so do not pretend to understand beyond the dread that any human feels at the thought of impairment. While my life has not changed much with lock-down I do get out one or 2 times per week for groceries or doctor appointments. Taking on consumption of medical care as a sort of occupation horrifies me, but here I stay. Just getting to drive around is very uplifting. Do you have a chair you can get out in?
I recall a funny memory- In the mid 1970s I was carer for awhile to 2 young ladies who were complete quads. They were going to university. We lived in an apartment building and one night Vivian had had a bit too much to drink and decided to go out on a roll around the complex. When she did not return after a certain time I went out searching. On the backside of the building I heard her plaintive cry, "Pat, Pat.." Her front wheel had gone off the sidewalk and she was stuck. Being well lubricated, we all thought it hilarious and returned to playing "one-card stud". This is a game the girls invented where you draw a card from the deck with your one working hand, if you have one, without looking at the face. If your hand function was inadequate someone else did it for you. That card then gets held to your forehead face out so the others can see it. It is a card counting game we played very badly. Then you have to guess the identity of the card on your forehead. While I realize this game might sound stupid or even offensive to some, drinking games are frequently stupid and quasi-offensive. Who cares?
That is my meander down memory lane for today. I spend a lot of time on-line reading about my key interests. Do you have a voice activated computer? That means everything!
Yes tetra, so far only used around the garden and he is loving it - comfy and quite speedy too. We got a Jazzy passport in the end - too heavy for me to lift into the car till I get a hoist fitted but does fold up neatly
corinne1276, I have an idea for you. People with YouTube channels need moderators. Some of the channel owners pay for this service. I found a channel I like and volunteered to do the job for free. Actually, I sometimes have so much pain that I can't work at all. So, being a non-paid volunteer, where I'm only providing a "support" service is the right job for me. What happens is that you come to "know" some of the subscribers who post frequently. It gives me always something useful to do. If I have time, and know the answers, I answer some of the questions that people ask about the videos.
Of course, for this to be a pleasant passtime, you would need to find a YouTube channel that you "believe in". You don't want to be stuck reading posts that don't interest you at all. If you post a comment under a YouTube that you like, offering your help as a moderator, you'll probably get a grateful reply.
Post by corinne1276 on Jun 29, 2020 15:33:58 GMT -8
Thanks for all the responses. Yes, I am US-based. Currently doing some online free classes to keep my mind occupied. In the meantime, I will just keep looking for jobs.
Post by t5completeliz on Jul 3, 2020 2:58:44 GMT -8
T5 complete newly injured. No feeling or movement from below my breast down. I also am dealing with some depression. Hoping to meet others and maybe get through this with some help. It’s nice to meet you. I’m Elizabeth.
This week, I invested $30 in a chromatic harmonica. Hands work - check! Lungs work -check! Eyes work (for reading musical score) -check! This is something I can still learn to do!
This week, I invested $30 in a chromatic harmonica. Hands work - check! Lungs work -check! Eyes work (for reading musical score) -check! This is something I can still learn to do!
omg i love the harmonica, i should try too! beautiful song
I'm glad I could give you a moment of pleasure, Sam. I bought a Swan 10 hole chromactic harmonic. It sounds good, despite being the cheapest chromatic 10 hole on Amazon. However, last night, I realized that I should have gone ahead and bought a longer harmonica with more holes in order to be able to play the song Monica J is playing, the way she plays it. I'm going to order a 16 hole chromatic. I'll retire the ten hole to my standby "go to the hospital" bag. So, when you buy a harmonica, I suggest you go ahead and invest in a 16 hole chromatic from the start,... or at least a 12 or 14 hole, not a 10 hole. The reviews on the Swan for 16 hole aren't good regarding the higher notes, and other brands cost a lot more. If I were rich, I'd get a Hohner brand. Not going to happen.