Wow its interesting to see the common theme throughout this post of the treatment of newly Spinal Cord Injured patients....in reference to information that is given to family/individuals and basic care needs.
I think DJ that it would be useful to do a poll on this at some point?
I would love to see a poll and (with everyone's permission, of course) . . . I would like to print these responses out for use in my quest. It is definitely a common theme and has been since my coming onto the SCI scene in 2008.
No, I don't mind. One thing that has always been at the back of my mind - if I'd woken up as a quad, and been told from the start that I'd never get better, just how likely would I have been to ask one of my brothers to smuggle a Glock into the ward . . .
I'm really happy to see everyone sharing their stories but at the same time disgusted to see how poorly you were all treated! donl1150 & hobbit, you guys are doing great so keep up the good work and show these doctors who's boss
Lαrα & d2mfoundation, great idea with the poll, what would you all like me to add as options for the poll?
Ok ive put together a Poll...im just waiting for DJ to look over it and if all looks good with it, it will be posted on the forum. It should be useful in highlighting problem areas...il will add a link once the poll is activated
One thing that has always been at the back of my mind - if I'd woken up as a quad, and been told from the start that I'd never get better, just how likely would I have been to ask one of my brothers to smuggle a Glock into the ward . . .
I hope not likely at all but the way the hospitals describe your condition to you, I wouldn't be surprised if people had that thought!
I wanted to revive this post after watching a programme about a young man who was certified brain dead but recovered (and also a recent discussion with another member on this point). His parents were asked if they would donate his organs.
They actually agreed to donate his organs and their son (certified brain dead?? ) could hear the whole discussion. He heard his family saying goodbye to him in preparation for the life support being turned off. His friend who was also in the room wouldn't accept that his friend was not 'there' so he quickly took a blunt instrument and rubbed it upwards against the sole of his friend's foot as he lay in the bed. His 'brain dead' friend responded by pulling his foot back and it was this neurological response that saved him.
His life support was kept on and cver the next few days he opened his eyes and recovered. I really do think that the medical profession needs to address and re think their policies on turning life support off and the criteria.
The parents of this young man had even been shown CT Scans of their son's 'inactive' brain and it is this 'inactivity' that leads to being pronounced 'brain dead'. This is evidence enough to prove they are getting this badly wrong!
I find it extremely aggravating, that doctors, who are supposed to be the at the forefront of medical care, still tell people such things as "you will never walk", "you'll always need a vent", "you'll never recover" and so on and on and on. These are supposedly the great scientists of our times, the most educated, taking an oath "to never cause harm" yet time and again they say these things under the guise of not giving "false" hope. What the F#@% is false hope, can anyone tell me?!!! Would the crew of Apollo 13 have returned to earth safely, defying all odds (I watched this happen on TV, god Im getting old), would the SEAL teams and special forces around the world undertake the missions that they do, without hope, even though the odds are stacked against them. Yet, some doctors insist on deflating a patients spirit at the most critical time. How can any professional be so obtuse in realizing the resilience and strength of the human spirit. I honestly think that some doctors don't realize what power the spoken word has and should be extremely careful in picking what to say and when to say it. Doctors should stick to the facts, explaining whats going on in the present to the best of their knowledge and training and thats it. I was very fortunate to have a Neurologist tell me when I woke up from a 6 week coma on life support "don't let anyone tell you you can't recover from this", I have kept those words with me, and they have sustained my drive through some very, very dark times. He didn't give me false hope, he empowered me to call the shots for myself. Nuff said.
Wow tbone57...inspiring..! i absolutely, 100% agree with you... The human spirit mixed with determination..should never be underestimated...never say never!