Inspired Spinal Cord Injury Support Forum

shyfx New Member Posts: 2 Post Likes Received: 3 Date Joined: October 2013 Member is: Offline Send PM	Tone and Spasm Nov 14, 2013 5:41:39 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by shyfx on Nov 14, 2013 5:41:39 GMT -8 How do you manage tone and/ or spasm?
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kilg0retr0ut Advanced Member Posts: 2,507 Post Likes Received: 1,862 Date Joined: July 2013 Injury: L4/5 Cauda Equina Date Injured: 7-15-10 Member is: Offline Send PM	Tone and Spasm Nov 14, 2013 5:58:59 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by kilg0retr0ut on Nov 14, 2013 5:58:59 GMT -8 Welcome shyfx
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Tone and Spasm Nov 14, 2013 6:05:36 GMT -8

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Post by Lαrα on Nov 14, 2013 6:05:36 GMT -8

Firstly, welcome to the forum shyfx . The spasms i have are mainly in my ankles so i doubt they have any effect on tone at all but as im a walker my tone is fine, fortunately.

The spasms i experience are generally manageable as i can manipulate my ankle back into position. I was offered baclofen by my consultant but the advice was too avoid it as it could relax my muscles too much which would then affect my upright ability.

I appreciate that spasms can improve tone so they cam be useful and for some people they prefer to tolerate the spasms. I guess it depends on what one can tolerate as to wether medication becomes an option.

I do find that stretches help and exercise although too much exercise sometimes increases the spasms

what are your thoughts?

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Tone and Spasm Nov 14, 2013 6:33:38 GMT -8

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Post by DJ on Nov 14, 2013 6:33:38 GMT -8

Welcome shyfx I don't have much tone other than in my legs but it's nothing a quick stretch can't fix Spasms on the other hand are just something I put up with. They're worst at night and other than having to straightening out my legs a few times during the night because of the spasms, they don't really bother me.

I know deanertheweiner has a lot of tone in his arms so maybe he has some suggestions

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Tone and Spasm Nov 14, 2013 8:24:16 GMT -8

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Post by deanertheweiner on Nov 14, 2013 8:24:16 GMT -8

Nov 14, 2013 5:41:39 GMT -8 shyfx said:

How do you manage tone and/ or spasm?

I have high tone. A simple irritation like an itchy nose will cause my muscles to contract like crazy and it's unvoluntary which is a pain in the butt. Any effort like standing or walking makes my tone go crazy too.

I take baklofen (muscle relaxant) and do Botox injections to manage it. Tone goes away after hard work, you just equal out the muscle imbalance by strengthening opposing muscle groups to the muscles with tone. For me my biceps are too strong so I have to strengthen my triceps to over power them. As the muscle balance evens out, the tone starts settling down. Weight bearing like standing or putting weight through your arms like using a walker to support your bodyweight settles it down too.

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Do something today that your future self will thank you for.

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Tone and Spasm Nov 14, 2013 9:05:53 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Nov 14, 2013 9:05:53 GMT -8 How much has the Botox helped with lessening the tone deanertheweiner?

deanertheweiner Advanced Member Posts: 539 Post Likes Received: 272 Date Joined: July 2013 Injury: C7/T10 nerve root evulsion and ABI Date Injured: April 16th 2011 Member is: Offline Send PM	Tone and Spasm Nov 14, 2013 9:11:03 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by deanertheweiner on Nov 14, 2013 9:11:03 GMT -8 Nov 14, 2013 9:05:53 GMT -8 DJ said: How much has the Botox helped with lessening the tone deanertheweiner? Helped a lot, but takes time and persistence
	Do something today that your future self will thank you for.

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Tone and Spasm Nov 14, 2013 9:17:07 GMT -8

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Post by DJ on Nov 14, 2013 9:17:07 GMT -8

Nov 14, 2013 9:11:03 GMT -8 deanertheweiner said:

Nov 14, 2013 9:05:53 GMT -8 DJ said:

How much has the Botox helped with lessening the tone deanertheweiner?

Helped a lot, but takes time and persistence

Definitely! Good to hear it has helped you as well, thanks man

andrew Member Posts: 123 Post Likes Received: 126 Date Joined: September 2013 Injury: C7 Quad Date Injured: 10/15/2000 Member is: Offline Send PM	Tone and Spasm Nov 15, 2013 10:20:25 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by andrew on Nov 15, 2013 10:20:25 GMT -8 Stretching works well for me and being active.
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Tone and Spasm Nov 17, 2013 8:08:34 GMT -8

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Post by Lαrα on Nov 17, 2013 8:08:34 GMT -8

The paralysis resource centre provide this excellent downloadable information.It goes into a little more detail about spasticity and treatment that is available. Its very helpful and easy to read.

Please click on the link below

Spinal Cord Injury - Managing Tone & Spacticity

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Tone and Spasm Nov 18, 2013 2:45:02 GMT -8

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Post by wavewolf on Nov 18, 2013 2:45:02 GMT -8

My large spasms are painful, so I took low dose of Baclofen--10mg/twice daily. Enough to manage, but not relax muscles so much that it limits functional mobility. Baclofen eliminated the tremoring kind of spasms, which were socially unacceptable. Exercise which pushes me to my limit and balances the muscle groups eases pain best and keeps some kind of tone.

Hoea ra!

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	Tone and Spasm Nov 20, 2013 1:25:02 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Nov 20, 2013 1:25:02 GMT -8 shyfx...i hope you have found the replies of some help...? If you have any more questions please dont hesitate to present them and im sure members will add more comments. Please add anything you would like to also

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Tone and Spasm Nov 20, 2013 6:21:46 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Nov 20, 2013 6:21:46 GMT -8 Don't be shy, shyfx

KarenH Closed Account Posts: 51 Post Likes Received: 22 Date Joined: February 2016 Injury: T4 shattered Date Injured: 07/02/2015 Member is: Offline Send PM	Tone and Spasm Feb 22, 2016 6:51:26 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by KarenH on Feb 22, 2016 6:51:26 GMT -8 What is tone? First I have heard of it since my accident last summer?
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DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Tone and Spasm Feb 23, 2016 14:02:47 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Feb 23, 2016 14:02:47 GMT -8 Feb 22, 2016 6:51:26 GMT -8 KarenH said: What is tone? First I have heard of it since my accident last summer? Tone is tightness in the muscles. If your legs or arms are hard to stretch, you'd say that they have a lot of tone.

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Tone and Spasm

Post by shyfx on Nov 14, 2013 5:41:39 GMT -8

Post by kilg0retr0ut on Nov 14, 2013 5:58:59 GMT -8

Post by Lαrα on Nov 14, 2013 6:05:36 GMT -8

Post by DJ on Nov 14, 2013 6:33:38 GMT -8

Post by deanertheweiner on Nov 14, 2013 8:24:16 GMT -8

Post by DJ on Nov 14, 2013 9:05:53 GMT -8

Post by deanertheweiner on Nov 14, 2013 9:11:03 GMT -8

Post by DJ on Nov 14, 2013 9:17:07 GMT -8

Post by andrew on Nov 15, 2013 10:20:25 GMT -8

Post by Lαrα on Nov 17, 2013 8:08:34 GMT -8

Post by wavewolf on Nov 18, 2013 2:45:02 GMT -8

Post by Lαrα on Nov 20, 2013 1:25:02 GMT -8

Post by DJ on Nov 20, 2013 6:21:46 GMT -8

Post by KarenH on Feb 22, 2016 6:51:26 GMT -8

Post by DJ on Feb 23, 2016 14:02:47 GMT -8

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