Confused Nerves

I get those annoying symptoms of nerve pain, too, Knight! Plus killer muscle spasms on top of that. I usually have to totally change my position, & location, no matter if it's day or night. My poor husband is used to it & comes as soon as he hears me moaning in pain. I also get the weird sensation that a rat is gnawing on my right foot/toes. I have to look & check....really strange! My newest horror is pain in both hands & arms, but especially the hands. It seems to have started after my latest hospitalization, where I was stuck a lot, mostly when I was unconscious. My pain specialist wants to increase my internal pump (fentanyl & baclofen) up another 15%. He just turned it down dramatically because I was too sedated....maybe it's too low? I guess it's time to experiment. I just know I'm miserable...

DJ....the fentanyl in my pump is for pain, the baclofen in the pump is for spasms. I've had the pump in for 3 years. It's supposed to eliminate the need for oral meds, but i was on a lot of oral meds too, until my recent health scare. My husband says I took "a trip to the dark side of the moon" (!) for 4 days. All I know is I remember being at the mall on Friday night....then I woke up very early Thursday morning tied to a hospital bed in the ICU. So I'd say it was longer than 4 days. So now my pump is about 1/5th of the dose I was getting before. I now take an occasional pain pill, before it was every 3 hours! But now my spasms are terrible, especially in my thoracic area, & my neck. All my muscles just ache constantly. I'm thinking more baclofen, not more fentanyl. I have tried Lyrica in the past, it did not help.

I am trying Lyrica now, and I have to say, I have some sensations in my leg I've never felt before. I can touch my leg without cringing in pain. This is odd.