My lower legs (knees & below) are always ice cold, unless I am in bed or have them up on the couch covered in blankets. I always dress according to the weather, and bring extra clothes with me if I leave town.
They get leggings or thick tights, legwarmers, pants, and sometimes another pair of legwarmers! They are always ice cold, no matter how much I move them around or even if I'm standing or walking! I try rubbing them to get them warmer, but nothing helps until my legs are horizontal. Could my legs being this cold cause problems? They are always protected from the cold outside and my feet are usually a bit warmer than the legs, so I know frostbite isn't an issue.
My sister said that they are probably cold because my damaged nerves can't tell the rest of my body to warm them up. I'm figuring she's right, since she has done her own research to better understand spinal cord injuries and nerve damage, and that it makes sense.
I know others have this problem, and I'm wondering if you've found anything to work? I massage my legs a little bit every night, make sure all of my skin below my injury level is intact and healthy-looking, put Calmo where it needs to be (bruises, pink spots, etc), and rub them too. My legs are only warm once I am in bed for a while. I always awake with toasty toes. Is there any way to keep my legs from getting I've cold while I'm up?
(P.S. DJ, I wasn't sure where to put this thread, so if it fits somewhere else, feel free to move it.)
I have an issue with cold legs too in the winter time. We are really cold in Northeast Pennsyvania right now with low single digits and below zero at night. I stay in, drink hot coffee and stay warm that way. I must say when I am in my standing frame glider they stay warm from the back and forth movement. I wish you well and hope you warm up. At night I have an electric blanket but sometimes start to sweat. Its hard to find the happy medium. Take care. Best Regards, Joe
I've put this in the general area since it's not limited to just paraplegia. I have the same thing usually on my knees and on the side of my hips. I have no idea why it's only at those areas but some days they are literally ice cold!
The problem for me is that if i attempt to warm my skin on my legs, i will end up with them burning instead! I guess the advantage may be that they never feel cold, only to touch
Knight,this is common for CES. If circulation is good, and that is easily checked, then there is not a lot that can be done for sensory dysfunction from nerve damage.
The problem for me is that if i attempt to warm my skin on my legs, i will end up with them burning instead! I guess the advantage may be that they never feel cold, only to touch
I get that too. If I warm up my legs, the nerve pain gets 10x worse & it starts to feel like someone is crushing my toes. My nerve pain is horrible, and I'm on amitriptyline right now because I have some depression and its off-label use is for nerve pain. So far, it's only working for the depression.
Knight,this is common for CES. If circulation is good, and that is easily checked, then there is not a lot that can be done for sensory dysfunction from nerve damage.
I wish there was a way to stop the burning and crushing feelings permanently. I am in tears almost 24/7. Some days, like today, I would trade my function for no nerve pain.
The problem for me is that if i attempt to warm my skin on my legs, i will end up with them burning instead! I guess the advantage may be that they never feel cold, only to touch
I get that too. If I warm up my legs, the nerve pain gets 10x worse & it starts to feel like someone is crushing my toes. My nerve pain is horrible, and I'm on amitriptyline right now because I have some depression and its off-label use is for nerve pain. So far, it's only working for the depression.
Knight,this is common for CES. If circulation is good, and that is easily checked, then there is not a lot that can be done for sensory dysfunction from nerve damage.
I wish there was a way to stop the burning and crushing feelings permanently. I am in tears almost 24/7. Some days, like today, I would trade my function for no nerve pain.
I've put this in the general area since it's not limited to just paraplegia. I have the same thing usually on my knees and on the side of my hips. I have no idea why it's only at those areas but some days they are literally ice cold!
DJ - My hips get ice cold too! Everything else is just cold, the rest I can't feel, so, whatever...
Lately I've been having ice cold feet also, something not previously an issue. But my house is pretty cold, 52F/11C, so maybe it's just that. Color in legs is not the greatest either. Need to get checked on circulation...