My name is Beau and I'm new to the site. I'm a C6. My injury happened 6/29/13. I started out as an A complete and when I left rehab roughly 3 months after my accident I was a B incomplete. All I kept hearing from the beginning was how odd everything was going for me. I started out with no hand movement or tricep on the left and good tricep on the right with minimal hand movement. It was about 2 months before I had any movement in the left while my right continued getting better. As of now right is completely returned and left hand I would about 50% return but continue to make gains. I continue gaining feeling below my injury level and have started having movement in right leg. The initial thought on my injury was the spinal cord was severed and fluid would be leaking because of how bad it was crushed. All these things were being told to my wife while i was sedated. Everyone I have met with my injury level has little to no hand movement but some can stand and even walk. Is there anyone else out there like me? I'm still new to this whole injury and it actually at times feels like a bad dream that I am going to just wake up from. I have no doubt I will walk again and I continue to improve but it's very slow. I definitely have learned a lot of patience from this.
Looks like you're now a C6 ASIA C, that's good! My injury happened 06/28/11 and I was initially diagnosed C6 ASIA A which became ASIA B a few months later. I have no hand function at all, I rely on my tenodesis to use my hands effectively. I have no movement at all below my injury level either. Recovery is indeed a very slow process but never give up with your therapy because you'll always be getting better if you push yourself to get better!
One thing i can say with confidence is that no two injuries are the same, no two levels are identical so there will always be differences. You are making improvements which is reassuring.
There is every possibility that you will continue and as DJ mentioned, it all comes down to hard work, keep stretching and keep exercising and stay positive.
Its a good idea to journal daily because you will actually be amazed at what progress you will make without even realising until you look back
DJ....my accident was on the 28th and surgery was the 29th. I keep saying the 29th for some reason. My therapist was telling me the same thing about no 2 injuries are the same. This is the first time i have gone on a forum for SCI. Before the accident I exercised and weight trained 4-6 days a week. I was going to start running with my wife before the accident and actually bought a new pair of running shoes the weekend before. I still have them waiting to be used. My surgeon had told me that the weight training I did would help in the recovery. The hardest thing has been the mental part of all this. So i figured I would get on the forum to vent and talk with more people that are going or been through the same things
DJ....my accident was on the 28th and surgery was the 29th. I keep saying the 29th for some reason. My therapist was telling me the same thing about no 2 injuries are the same. This is the first time i have gone on a forum for SCI. Before the accident I exercised and weight trained 4-6 days a week. I was going to start running with my wife before the accident and actually bought a new pair of running shoes the weekend before. I still have them waiting to be used. My surgeon had told me that the weight training I did would help in the recovery. The hardest thing has been the mental part of all this. So i figured I would get on the forum to vent and talk with more people that are going or been through the same things
Wow it looks like June 28 is not a good day for us haha! I'm glad you found us though, there's lots of great info here and getting advice from others in similar situations is much better than doctor advice in my opinion. The mental part of this is definately tough and like you said coming on here and talking to people that have gone through the same things is the best thing to do. I finished my last exam for school only a day or two before my accident and I was really looking forward to the Summer break and was thinking about how great it will be. Unfortunately, all the excitement got me into trouble. Keep up the weight training and you'll be wearing those running shoes again in no time!
Hey Beau, I've heard of central cord syndrome, where your lower body is more preserved and your arms and hands are more paralysed (I have that a little). I wonder if there's a counterpart, outer cord syndrome maybe, that could explain what you present. You know how tracts for different functions and body areas run up different parts of the spinal cord? So if one person's injury affected the outside of the cord more, maybe they'd have more upper body function, vs someone who had the center of the cord damaged more and had more lower body function preserved. Just my amateur speculation.
That could explain it could it capybara, injuries levels and function are so individual, nothing surprises me anymore but its great that your friend has more function than expected ernbird,
Sorry for not responding to anyone for so long. I have had so much going on lately that really have touched the internet...emails or much with my phone other than some texts and phone calls. Been concentrating on therapy so much. We do so much with our phones that you get withdrawals and feel like something is missing when you don't use it. But to give an update I've had significant feeling return down the back of my right leg and some down the left. My core is really starting to respond. Mostly on the right which kind of makes me lean to the left while I'm in my chair so I need to make sure I sit straight. I don't need to cause anymore issues. We all know that its hard enough and don't need anymore put on us. I forgot when I originally posted on here that a friend of mine mother had a spinal cord injury. I ran into him a couple weeks ago and he said I was looking like myself again and started talking about his mom. She spent 6 months in the hospital and rehab before coming home. She was a C5 and it was right around 5 years but she recovered almost 100%. I think she just walks with a slight limp. That's rare to see as well. No 2 injuries are alike is what I've always been told. How bad are spasms for everyone? I didn't get spasms until about 8 months after the accident.
Hi bbarbeau , I'm a C7 incomplete and although I'm one level lower than C6, I didn't have any right hand function until almost two years post injury. Recently, I've started to have some flexion and tiny bits of finger extension. I now have relatively strong pronation (took 2 years for it to return). My left hand has been more or less functional since a month after I broke my neck, aside from dexterity issues. I use a TENS unit on my wrist fairly often. Keep working - you never know what your body is capable of!
Good to see you back bbarbeau. I have now realised and learnt that my spasms worsen on activity i partake in. If i practice more upright mobility then I certainly suffer more spasms and they are mostly in my ankles although in my thigh sometimes.
My spasms have certainly become more obviously worse over time.
Its so true what you say chris,it is amazing what we can actually recover when we put our mind and energy into it. The only cut off point for recovery will be when someone gives up believing so.
bbarbeau, I'm a C6 ASIA B and have noticed that my spasms have increased over the years. It's still not at the point where I need to take preventative medication for it and I hope I'll never have to but I actually liking having some of the spasms to help preserve muscle tone in my lower extremities.
Post by risingtide on Apr 18, 2015 14:27:01 GMT -8
I'm the same as you bro, except for my left side is my strong side and my right side was left with paralysis after my c5/c6 fusion 16 years ago. My right side just started working two years ago. Just keep working at it and you'll continiue to see results. If you're like me you will get injuries with your muscles being strained after all of the off-time they've had. Do a lot of stretching daily, especially when waking up and before any exercise. Try to use your weak hand to do more things than your strong one. You'll feel like a dips*** but over time your dexterity will improve, then, before you know it, you'll find yourself using that hand normally. If you're a runner, like me, then try switching to a mid-foot strike, minimalist style of running that will actively work all of your leg muscles and hip-flexor without putting stress on your joints such as your knees and ankles. If you don't run, then start:) Here's your soundtrack player... https%3A//soundcloud.com/jayrockskee/a-little-further