I'm only 2 years in so I still have a lot of anger and frustration. I feel like frustration is a constant state now. The power of my anger surprised me. I'm generally an easy going person but when you have a number of issues hit you all at once the anger hits. I have PTSD from childhood trauma so this injury on top has increased my anxiety order to extreme. I see a psychologist weekly but the progress is so slow. Sometimes I wish I could fast forward to a point where I am more used to everything. I shared a room with a girl who was very vocal with her anger. It took me two weeks to get the courage to talk to her. Her visitors would ask her how she was doing, as you do, and they would get a tirade of 'how do you think I'm doing. I'm in a chair. I can't move my legs.' It would go on for 5 mins and her visitor would often go quiet, too scared to ask another question. She's a lot more calm these days.
Boards like this are not the place to proselytize. Let me just say that within a period of 6 weeks I lost bowel, bladder, some sexual function, and a fiancee' who had been with me since the end of grammar school. I'm just relating my story. There is no way I could have survived this without believing in a God who cared for me and would honor His character and promises.
SCI treatment was so different in the "old days". I never got out of bed for 3 1/2 months and was in hospital and rehab for a year. That is way too much time to think. The SCI stuff improved dramatically. The ability to trust, smile, and enjoy life did not improve as quickly. There are no self-help books, counselors, drugs, lovers, or successes that can heal the hole in the center of your being. The only one that could help me was He who had created me and knows me better than I know myself. If you're struggling the way I did, isn't it at least worth a try? Everyone is entitled to their own opinion and strategy for dealing with SCI. I'm just sharing a tiny bit of my experience, in hopes that it will help one other person.
If some one said to me that they never had feelings that got them down in regards to SCI I doubt i would believe them. hobo,its absolutely right what you say, sharing your experiences is valuable and appreciated. If someone chooses to not take on board wisdom that you share because of your belief system then I would say that such a person is pretty foolish.
I applaud anyone who celebrates any faith that they have and if it has helped them then thats wonderful....no help is ever refused!
kjp77,im pleased you are getting the opportunity to talk through your feelings...its not an easy road but you need to keep finding ways of having a good time and have some fun! Its still possible...
Post by kilg0retr0ut on May 9, 2015 7:52:42 GMT -8
I'm only slightly "Foolish". Hey, I can see using almost anything to deal with pain. You can learn much from someone without agreeing with their belief system. I enjoy your posts Hobo, I'm not attacking you or the majority here who have faith. I think most of you don't take enough credit for you own inner strength. Just my opinion, everyone has one.
I see an Exercise Physiologist three times a week and do hydro once, but that is all I do outside the house. The lengths we have to go to to make sure somewhere is accessible just angers me. No friends have houses I can get in to. I also feel like I don't have anything in common with my friends anymore. In the end I end up going no where. And my anxiety fights me from leaving the house. I know this is not good. I'm trying to work past it. I've recently made friends with a girl of a similar injury level. It's good to have someone to talk to who has similar issues. She is very outgoing and I am hoping it rubs off on me.
Post by kilg0retr0ut on May 9, 2015 17:42:29 GMT -8
kjp77, Most of us have been where you are now. I'm glad you found a new friend who understands. It's really hard for me to try to explain my injury, and that's the first thing people want to know. It gets awkward for me, if you don't have an injury like this, it's hard to understand. You seem outgoing and my guess is you'll make new friends. I still deal with anger and frustration, more frustration than anything. I look at my new life with SCI as a challenge. If your doing the best you can then that's all you can ask of yourself. Things will fall into place.
I see an Exercise Physiologist three times a week and do hydro once, but that is all I do outside the house. The lengths we have to go to to make sure somewhere is accessible just angers me. No friends have houses I can get in to. I also feel like I don't have anything in common with my friends anymore. In the end I end up going no where. And my anxiety fights me from leaving the house. I know this is not good. I'm trying to work past it. I've recently made friends with a girl of a similar injury level. It's good to have someone to talk to who has similar issues. She is very outgoing and I am hoping it rubs off on me.
kjp77, my best friends right now are two guys I met at rehab - deanertheweiner & jesse. Most of my friends from before the accident have changed because they think that I have changed but I'm still the same person, just in a wheelchair. I have many new AB friends which I hang out with who are friends with me regardless of my situation but having friends in the similar situation is always great because like you said, there's so much more we can relate to.
You and this new friend should go out to the mall, movies, restaurants & other fun places and be out and about!
Most of the friends I had before injury faded into the sunset... I was in the hospital a total of 6 months and 2 weeks latter went to a new city to train for a new job. After leaving rehab I had virtually no contact with anyone with a disability. I made new friends who did the things I liked to do or worked in the same building. I didn't think I was angry then but looking back I'm sure I was. I worked and went to school at night so I had managed to stuff my feelings for a while. I went to a funeral of a fellow I wasn't especially close to and when taps were played my tears started. Getting in touch with my feelings was something I needed to do. This led me into a new career and back in touch with folks in the disabled community...and new friends. Life has a way of working out if you keep an open mind.
kjp77,it isnt easy and when you get in that place mentally and emotionally especially if you find it difficult to go out and socialize.
I spent a period post SCI where I lost any interest to go out, in fact I had no interest to talk to anyone, even family and this went on for several months.
I specifically told my friends and family to leave me be and not visit because I needed to be alone and pick myself up.
Then when the time came where I knew I had to get back into living life and enjoying it, I literally had to 'force' myself to go out, meet up with friends and to mix.
I got through this period but it took some time, you just have to want to make things different for yourself though.
People come and go in life, I've become cynical perhaps but I'm happy, I do have a small group of friends but I am independent and rely purely on myself and my humor of course!
You don't need a whole bunch of friends, you just need good ones who are genuine!
That was one of the things about my bike club - they wouldn't let me retreat into my shell, whether I wanted to or not, I was dragged kicking & screaming out to face the world . . . and drink beer of course . . lol