Hey, I was reading an article about anger issues after Spinal Cord Injury and looked back to the early days of my injury to remember the emotions I felt.
The first was the initial feeling that the physical issues were permanent and how would my life be affected...I can remember going to bed and dreaming every night of myself running home to tell my mom and family that im ok now. Then I would wake and look at the chair by the bed and think, oh damn and next I would check to see if any sensation had returned.
It was a crazy and strange time when i first left hospital, i felt so different but to be honest, I held on to the hope that I would make a recovery. I am sure I have never been angry as such and i can remember that the times I have cried has been due to frustrations with catheterizing and spasms...cleaning up after myself when ive made a mess.
Too many times ive needed a shower off my mom for messing up when ive coughed, leaked or otherwise. I guess feeling sorry for myself a little.
Its no wonder that many suffer from PTSD after injury.
If the actual injury isnt enough, lets feck up their bowels, bladder , autonomic system, sex life and throw in some serious nerve pain...and the rest!
Oh the joys!
Whenever i was down, i remembered my friends in the Spinal unit who were much higher injuries and then it goes into perspective that actually im pretty lucky!
Can you remember how you felt early on and do you still or ever get down or angry still?
I can remember going to bed and dreaming every night of myself running home to tell my mom and family that im ok now. Then I would wake and look at the chair by the bed and think, oh damn and next I would check to see if any sensation had returned.
I can definitely relate to that. Even when I was at rehab I had a closet in my room that I always imagined hiding in and walking out and surprising my family when they came to visit me but that obviously never happened lol.
I have my down days once in a while but it usually lasts a couple hours max and then the feeling passes. I've accepted what happened and have pretty much moved on.
I did not go through anger at all, but plenty of frustration once I got back to my own home and realized just how limited I was. At first, my doctors did not think I would survive the night. So I decided that first night that I would not allow negative thoughts to prevail, but rather put all of my strength and will into surviving, adapting, being grateful for what I could do, and living a meaningful life if more time was given me.
It's interesting to see that frustration is more issue than anger for most of us but it makes sense really. Loss of independence and ability to carry out tasks would create significant frustration.
I cant remember ever being angry in my life, i tend to get upset and frustrated mainly.
I've been frustrated by the inconvenience of SCI over the years. "Do I really have to adapt to this?" Yep, I sure do have to...to darn stubborn not to!
What is really frustrating, among many other things, is having 2 flat wheelchair tires on the same day!
I've been frustrated by the inconvenience of SCI over the years. "Do I really have to adapt to this?" Yep, I sure do have to...to darn stubborn not to!
You are on your first trip to Europe and just landed in Paris, checked into your room AND your front caster bearing comes apart and dribbles dirty, black, greasy ball bearings all over the beautiful white carpet! You don't speak French and you try to explain to the really nice hotel maintenance man what you need to fix your bearing... Now THAT is frustrating!
You are on your first trip to Europe and just landed in Paris, checked into your room AND your front caster bearing comes apart and dribbles dirty, black, greasy ball bearings all over the beautiful white carpet! You don't speak French and you try to explain to the really nice hotel maintenance man what you need to fix your bearing... Now THAT is frustrating!
Damn, thats just too much frustration, I think we need a handbook with wheelchair and medical terms in of the language of the country! lol White carpet is a no no
I've been frustrated by the inconvenience of SCI over the years. "Do I really have to adapt to this?" Yep, I sure do have to...to darn stubborn not to!
What is really frustrating, among many other things, is having 2 flat wheelchair tires on the same day!
SCI is definitely a big inconvenience but what can we do eh?
As one of the oldster's in the group, the frustration never ends. If anything, it gets worse because the stuff that works has been overworked, and it doesn't want to work any more. Anger is too strong a word for what I feel now. To carry that much anger this long would have been self-destructive. Like many of us, I would turn the anger inward, and it would develop into depression.
For me the solution is to stay busy. Keep your mind and the working parts of your body as active as possible. If it can move, move it. The endorphins from exercise are better than synthetic drugs. The "there is always someone worse than you" rationalization only goes so far. However, if you can find a way to be helpful or useful to others, like participating in an SCI forum, you can re-direct your frustration. Also, writing things help you articulate and explain them to yourself.
As a Christian, I find great comfort in my faith. Without a God who understands the things I don't even know how to say, there would be no one to listen to the things that matter most. There would be nothing or no one that is bigger than SCI. True belief in an eternity that will overcome SCI is a victory waiting to happen. Many, perhaps most, will disagree with me. That's your prerogative. I'm just sharing what works for me. This isn't about miracles, although I believe in them, but about taking what is left and making some sense of life. Scientific and medical studies actually show that people who believe in prayer do better than people who don't. I'll do a search later and try to post the study.
We do suffer from PTSD. If you don't believe it, how does your body react to a sudden, unexpected loud noise? When that startle reflex goes through your whole being, out of proportion to the noise, that's PTSD. When you unexpectedly hear that someone has been paralyzed and you fall in to a depressed state, that's PTSD. Just like we have to have a plan for dealing with bowel and bladder issues, we need a plan for dealing with PTSD. Depression is it's big brother, and we don't need to go there again. The SCI life can be incredibly difficult, but it's the only one we have. Use it or lose it. I prefer attempting to find some reason to wake up every day. It also helps to have good people in your life. They are invaluable.
Post by kilg0retr0ut on May 8, 2015 4:44:20 GMT -8
Good post Hobo. You had me till the "as a christian". I'm thinking there must be varying levels of PTSD. I have the startle reflex as you mention, but if I have PTSD it must be very mild. I think there must be a difference between the PTSD we face and those of the soldiers coming home with vivid memories of the fallen. I know depression can be rough, but better to pry yourself off the deck than to let it consume you.
Excellent post hobo! I think what you're doing is great and there'll always be some tough times but as long as you work to overcome those times, things aren't as bad.
hobo, I'm glad to find someone with an injury older than mine!
PTSD is an interesting mental health issue. I haven't worked professionally with vets and their PTSD issues but before my injury (and my mental health training/education) I was a deputy sheriff. I saw things that have stuck with me vividly since the early 70's, traumatic things normal people don't have to deal with. That is PTSD though different than battlefield trauma... I also remember vividly the day of my injury and that is PTSD. Traumatic experiences outside the norm of human experience. According to the DSM IV (diagnostic criteria for mental disorders) "When an individual who has been exposed to a traumatic event develops anxiety symptoms, reexperiencing of the event, and avoidance of stimuli related to the event lasting more than four weeks, they may be suffering from this Anxiety Disorder."
AND we all cope with trauma differently...
Our experiences impact our emotions tremendously. Something as "simple" as cutting the end off your right index finger while making sweet potato chips with a mandolin can lead to emotional responses far beyond what you might expect (you don't have to ask how I know this...).
Our state of health impacts our emotions. A "simple" UTI can cause an otherwise well adjusted person to get down in the dumps and temporarily loose decision making ability. Again, don't ask...
So, did I confuse you enough in my ramblings about PTSD and the close relationship of emotional response to trauma?
Lαrα, on that same trip to Europe we boarded the bullet train in Paris and headed to Switzerland where we changed trains. There was no ramp at the station and 4 well meaning husky guys picked me up in my chair (with a stack of washers in place of a caster bearing) and started carrying me down the steps. They got a couple steps and dropped me! Fortunately I wasn't severely hurt, just bruised and really sore... Frustrations with well meaning people!
I was almost tipped out of my chair once, which lost my trust in ever being 'pushed' and another time i was a little 'intoxicated' and came off my crutches, went to sit in my chair and missed it, hitting the floor! lol