Inspired Spinal Cord Injury Support Forum

ladylimpsalot
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Cauda Equina Syndrome Classification: Complete or Incomplete Sept 15, 2013 7:28:38 GMT -8

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Post by ladylimpsalot on Sept 15, 2013 7:28:38 GMT -8

Sept 14, 2013 14:02:17 GMT -8 benson said:

Lara I was thinking of when I get old will I end up in a wheel chair ....as I will no longer be able to continue with this type of exercise.....

Benson, just keep moving. You won't be able to do what you do now when you are 80, but just walk and do other simple stuff. I don't think that the CES will get worse, or that we will lose the nerve function and abilities that we have now.

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Cauda Equina Syndrome Classification: Complete or Incomplete Sept 15, 2013 8:03:32 GMT -8

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Post by Lαrα on Sept 15, 2013 8:03:32 GMT -8

benson..as ladylimpsalot..said CES will not worsen...the nerves that have regenerated will not return back in the state they were at the onset of CES...so in regards to CES the lack of exercise will not affect the nerves.

If you stop the exercise...then the muscles will weaken as a matter of course and your mobility will slow down but this may be inevitable with old age and everyone experiences this.

If you have limited power to certain muscles in your lower extremities then you will fatigue quicker if you do not keep the ones with reasonable power to them built up and strong.

I wouldn't worry to much about this..just keep doing what you do now and keep it up as long as possible..when you get older adapt your exercise so you can keep up doing as much as you can.

ladylimpsalot
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Cauda Equina Syndrome Classification: Complete or Incomplete Sept 15, 2013 9:22:25 GMT -8

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Post by ladylimpsalot on Sept 15, 2013 9:22:25 GMT -8

I think that in some regards we will do better when we are older than the average senior citizen. We know how fragile we are and we know that we need to work at keeping ourselves active and together. We know the value of our health. I am not going out of my way to become a body builder. I don't think that I will ever lift anything more than 10 lbs but I will walk and I will eat healthfully and hopefully will keep the abilities that I have. I will be able to take care of myself, more or less.

kilg0retr0ut Advanced Member Posts: 2,507 Post Likes Received: 1,862 Date Joined: July 2013 Injury: L4/5 Cauda Equina Date Injured: 7-15-10 Member is: Offline Send PM	Cauda Equina Syndrome Classification: Complete or Incomplete Sept 15, 2013 14:28:07 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by kilg0retr0ut on Sept 15, 2013 14:28:07 GMT -8 I not sure thats accurate ladies, but I'm not sure exactly what your trying to convey. So your saying CES isn't a downhill situation?
	L4/5 CES

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Cauda Equina Syndrome Classification: Complete or Incomplete Sept 15, 2013 15:51:31 GMT -8

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Post by Lαrα on Sept 15, 2013 15:51:31 GMT -8

To be honest i dont agree totally with you ladylimpsalot...i do not think that we will be better than most other people because we actually have more to deal with.

We have to take care of ourselves, of course we do but age will affect us just as anyone else. We shouldn't have additional health problems....but self catheterising may not be as easy to carry out.

If we talk about what CES actually is and its effects on ageing then we need to look at the nerves to the lower extremities and bladder/bowel function.

If we developed arthritis in our hands for example then our self catheterising will be affected...also our bowel programme..we will require more assistance.

Nerves to the legs etc will not be affected due to old age so mobility should not be affected by CES but our mobility could be affected by factors due to old age.

Self wheeling may become difficult....we do have to be realistic and prepare by taking good care of ourselves and staying fit,

kilg0retr0ut
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Cauda Equina Syndrome Classification: Complete or Incomplete Sept 15, 2013 16:33:21 GMT -8

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Post by kilg0retr0ut on Sept 15, 2013 16:33:21 GMT -8

I hate to be a downer here, but I think it important to stay real. Although the nerves that are damaged won't get worse, the toll on the body will.
The atrophy continues, and the wear and tear on the joints, bladder problems, etc. will become an issue in the future. I don't know how many times my doctor has looked me in the face a said " you know your not going to be able to walk one day, you do realise eventually you will be in a chair" of course she thinks I'm in denile about my injury, but it's a hard thing to swallow. I've watched my left leg (from the knee down) turn into a stick, I'd make a great pirate . This doesn't keep me from working as hard as I can to stay healthy and upright. This isn't self pity, just fact. I still believe life is good and should be lived to the fullest, just think its healthier to live in the reality of my situation. And like I've heard so many times.......It could be worse.

L4/5 CES

staceym New Member Posts: 19 Post Likes Received: 12 Date Joined: September 2013 Injury: CES L4-5 Date Injured: May 21 2004 Member is: Offline Send PM	Cauda Equina Syndrome Classification: Complete or Incomplete Sept 15, 2013 18:50:44 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by staceym on Sept 15, 2013 18:50:44 GMT -8 Lara, I only feel I have to go when I get really full. I never totally empty my bladder, so I have to self cath everyday.

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Cauda Equina Syndrome Classification: Complete or Incomplete Sept 17, 2013 15:05:09 GMT -8

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Post by Lαrα on Sept 17, 2013 15:05:09 GMT -8

staceym...do you feel uncomfortable at all when your bladder is full and have urgency ? How often do you cath?

When my bladder is full it still feels comfortable and i have no urgency...and i retain so i am therefor complete...it sounds like you may possibly be incomplete but could borderline be complete...

Here is a link kilg0retr0ut and benson to a post that we have on aging with SCI...

inspiredsciforum.com/thread/335?page=1&scrollTo=2751

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kilg0retr0ut Advanced Member Posts: 2,507 Post Likes Received: 1,862 Date Joined: July 2013 Injury: L4/5 Cauda Equina Date Injured: 7-15-10 Member is: Offline Send PM	Cauda Equina Syndrome Classification: Complete or Incomplete Sept 17, 2013 16:18:12 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by kilg0retr0ut on Sept 17, 2013 16:18:12 GMT -8 Holy cow Lara that was a boatload of info. Going back to read it. Sorry if I derailed the thread.
	L4/5 CES

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Cauda Equina Syndrome Classification: Complete or Incomplete Sept 17, 2013 16:36:42 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Sept 17, 2013 16:36:42 GMT -8 Sept 17, 2013 16:18:12 GMT -8 kilg0retr0ut said: Sorry if I derailed the thread. It's against the rules kilg0retr0ut. What do you think Lαrα? :ban: Just kidding

kisch5
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Cauda Equina Syndrome Classification: Complete or Incomplete Sept 17, 2013 16:53:17 GMT -8

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Post by kisch5 on Sept 17, 2013 16:53:17 GMT -8

Thank you this info everyone. This will be one of the first questions I ask when I see my doctor next week. I have a feeling I am complete but I could be borderline, I'm not really sure, hoping for incomplete...

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Cauda Equina Syndrome Classification: Complete or Incomplete Sept 17, 2013 17:24:43 GMT -8

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Post by Lαrα on Sept 17, 2013 17:24:43 GMT -8

Sept 17, 2013 16:36:42 GMT -8 DJ said:

Sept 17, 2013 16:18:12 GMT -8 kilg0retr0ut said:

Sorry if I derailed the thread.

It's against the rules kilg0retr0ut. What do you think Lαrα? :ban:

Just kidding

Absolutely....no room for naughty boys! :lol:

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Cauda Equina Syndrome Classification: Complete or Incomplete Sept 17, 2013 17:26:00 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Sept 17, 2013 17:26:00 GMT -8 Good luck kisch5! Hope your meet with the doctor goes well

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	Cauda Equina Syndrome Classification: Complete or Incomplete Sept 17, 2013 17:28:47 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Sept 17, 2013 17:28:47 GMT -8 Yes..i agree..kisch5.....all the best with the appointment

kisch5 Member Posts: 190 Post Likes Received: 119 Date Joined: September 2013 Injury: L5/S1 CES incomplete Date Injured: July 2013 Member is: Offline Send PM	Cauda Equina Syndrome Classification: Complete or Incomplete Sept 17, 2013 17:42:47 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by kisch5 on Sept 17, 2013 17:42:47 GMT -8 It's not until the 30th, but I like the thought of having specific questions. Thanks again!
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Cauda Equina Syndrome Classification: Complete or Incomplete

Post by ladylimpsalot on Sept 15, 2013 7:28:38 GMT -8

Post by Lαrα on Sept 15, 2013 8:03:32 GMT -8

Post by ladylimpsalot on Sept 15, 2013 9:22:25 GMT -8

Post by kilg0retr0ut on Sept 15, 2013 14:28:07 GMT -8

Post by Lαrα on Sept 15, 2013 15:51:31 GMT -8

Post by kilg0retr0ut on Sept 15, 2013 16:33:21 GMT -8

Post by staceym on Sept 15, 2013 18:50:44 GMT -8

Post by Lαrα on Sept 17, 2013 15:05:09 GMT -8

Post by kilg0retr0ut on Sept 17, 2013 16:18:12 GMT -8

Post by DJ on Sept 17, 2013 16:36:42 GMT -8

Post by kisch5 on Sept 17, 2013 16:53:17 GMT -8

Post by Lαrα on Sept 17, 2013 17:24:43 GMT -8

Post by DJ on Sept 17, 2013 17:26:00 GMT -8

Post by Lαrα on Sept 17, 2013 17:28:47 GMT -8

Post by kisch5 on Sept 17, 2013 17:42:47 GMT -8

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