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DJ
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Feet Problems with Cauda Equina Syndrome Feb 2, 2014 13:54:35 GMT -8

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Post by DJ on Feb 2, 2014 13:54:35 GMT -8

Feb 2, 2014 13:49:48 GMT -8 kilg0retr0ut said:

Not much, I wonder if it might be all the time in the braces. The braces were always super tight on that foot.
I have new AFO's being made now so we'll see how it goes. Just one more thing to work out, no biggy.

Ah I see, well I hope the new braces work out better than your current ones!

kilg0retr0ut Advanced Member Posts: 2,507 Post Likes Received: 1,862 Date Joined: July 2013 Injury: L4/5 Cauda Equina Date Injured: 7-15-10 Member is: Offline Send PM	Feet Problems with Cauda Equina Syndrome Feb 2, 2014 13:59:00 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by kilg0retr0ut on Feb 2, 2014 13:59:00 GMT -8 Thanks DJ, off topic but hows school going?
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sherry
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Feet Problems with Cauda Equina Syndrome Feb 2, 2014 16:05:05 GMT -8

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Post by sherry on Feb 2, 2014 16:05:05 GMT -8

Dec 9, 2013 1:57:39 GMT -8 wavewolf said:

Sept 8, 2013 9:30:03 GMT -8 kilg0retr0ut said:

My toe's have curled under on my good foot. They say I can get the tendons cut, but since they help me balance it might not be a option.

kilg0retr0ut Before you consider this surgery, try a simple exercise and see if it might preserve the use of your toes for balance. My podiatrist taught me this one... hold the end of toe and pull it straight, while pressing down on the middle knuckle with a finger. Hold until you feel a release where the toe tendon attaches, which is on the outside of the calf a few inches below the knee. Even if you have very limited sensation, there is a sense of release. Do this with each toe twice a day, on arising, and before bed.

When I became paralyzed, my toes started to curl and lock up. Rheumatoid arthritis added to my joint dysfunction and pain. This simple exercise has maintained flexibility of my toes, relieved the pain of continuous contraction, and avoided surgery!

Lαrα Very good info, Lara!

I had poor circulation in my feet before my fall, I even had heated ski boots and they would still turn white! I have Reynauds Syndrome or Disease. They would get numb so I knew it was time to head inside. Since my fall I also now have it in my fingers. Very bothersome. I get it now more in my fingers than my toes. For example if I am cutting up cold meat into cubes, removing the fat ... Now the wheel rims are cold when I head inside so have to keep on wearing gloves or mits.

What is new since my accident is I have gotten athletes foot a few times, an ingrown toe nail (I believe I have two more), swollen legs so I have to wear support stockings. I have bought all new shoes and boots because of the swelling. My toes also want to curl under, especially the second toe on the left foot. My left foot also wants to curve inwards which is a real nuisance. I continually check to make sure my foot is placed correctly on the footrest.

I am lucky in that I don't have nerve pain in my feet, they don't have spasms either.
So in the name of prevention my goal is to wash and dry my feet every night. Bend my toes backwards while pulling the outer side of my foot back to stretch the muscles and tendons. I hold on tightly to that toe so it doesn't bend. I don't have the impression that it is improving but it is not getting worse.

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sherry
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Feet Problems with Cauda Equina Syndrome Feb 2, 2014 16:13:36 GMT -8

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Post by sherry on Feb 2, 2014 16:13:36 GMT -8

Sept 9, 2013 14:39:54 GMT -8 Knight said:

I feel ya. I go without shoes a lot, even out of the house sometimes. My feet don't swell too much, thankfully. I can't wear my AFOs because they're too tight, and out of the 5 pairs of shoes I own, only 2 are wide enough for my feet. I get ingrown toenails within hours of wearing shoes that are the wrong size.

Excuse my ignorance Knight but what are AFO's?

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kisch5
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Feet Problems with Cauda Equina Syndrome Feb 2, 2014 19:23:56 GMT -8

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Post by kisch5 on Feb 2, 2014 19:23:56 GMT -8

kilg0retr0ut I tried wearing a pair of heavy work boots to work on (steel toed), but I found that they were really heavy which made it more difficult on my hips. I went back to my old pair of shoes and added an ankle brace that I can wrap around my ankle which helped. I'm still trying to find a pair of shoes that work well for me while I work since I spend a lot of hours on my feet at work. I have another set of shoes coming and hopefully they fix some of my heel pain.

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Feet Problems with Cauda Equina Syndrome Feb 3, 2014 9:25:06 GMT -8

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Post by ladylimpsalot on Feb 3, 2014 9:25:06 GMT -8

Jan 31, 2014 13:37:16 GMT -8 cesdavid said:

I recently began getting some feeling in my right ankle and I noticed a pain that was not like anywhere else in my CES affected areas. I went to an orthopedic podiatrist. He found that I have a torn tendon in that ankle. Fix is surgery... I talked him into a brace. I'm doing pretty good with the brace and he said when I have more bad days than good, or too much pain, then it will be time for the surgery. Bottom line is that my lack of feeling in my ankles (and rest of the foot area) contributed to rolling and instability in my walking gait which caused this. Left ankle is fine.

As if we with CES need something else to keep us down! I hope that the brace is doing the trick David! Let us know what progress you make with this ankle!

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Feet Problems with Cauda Equina Syndrome Feb 3, 2014 10:21:11 GMT -8

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Post by kilg0retr0ut on Feb 3, 2014 10:21:11 GMT -8

Feb 2, 2014 16:13:36 GMT -8 sherry said:

Sept 9, 2013 14:39:54 GMT -8 Knight said:

I feel ya. I go without shoes a lot, even out of the house sometimes. My feet don't swell too much, thankfully. I can't wear my AFOs because they're too tight, and out of the 5 pairs of shoes I own, only 2 are wide enough for my feet. I get ingrown toenails within hours of wearing shoes that are the wrong size.

Excuse my ignorance Knight but what are AFO's?

Assistive Foot Orthosis

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kilg0retr0ut
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Feet Problems with Cauda Equina Syndrome Feb 3, 2014 10:41:58 GMT -8

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Post by kilg0retr0ut on Feb 3, 2014 10:41:58 GMT -8

Feb 2, 2014 19:23:56 GMT -8 kisch5 said:

kilg0retr0ut I tried wearing a pair of heavy work boots to work on (steel toed), but I found that they were really heavy which made it more difficult on my hips. I went back to my old pair of shoes and added an ankle brace that I can wrap around my ankle which helped. I'm still trying to find a pair of shoes that work well for me while I work since I spend a lot of hours on my feet at work. I have another set of shoes coming and hopefully they fix some of my heel pain.

Thta's how I started out myself. Your from Wisconson so you might recognize
the name Baffin. I wore the commerial grade steel toe, about 20# a piece.lol My right hip can feel it.
Did the same thing with the ankle brace for awhile, but the fatique was slowing me down, plus I was still turning over my weak ankle.
I tried ice fishing the year I was in injured, I found it interesting that no matter how hard I tried two dig into the snow my toes pointed skyward.
My first AFO's were white plastic and had straps on the back to stop my ankles from going to far. They came at the right time because the normal aches and pain from walking inproperly were getting pretty uncomfortable. Those braces helped alot, my gait beacame semi-normal
I wore those out and they made me some out of carbon fiber, took along time for my body to adjust, but when it did I could almost run.
I wore those out too. Broke it at the ankle once, and wore a hole through the heel.

So now I'm back in a pair of Baffins, waiting to see if the new braces can get me back up to speed. There are pics of my AFO's somewhere here, I'll see if I can find them.

L4/5 CES

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Feet Problems with Cauda Equina Syndrome Feb 3, 2014 18:30:54 GMT -8

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Post by DJ on Feb 3, 2014 18:30:54 GMT -8

Feb 2, 2014 13:59:00 GMT -8 kilg0retr0ut said:

Thanks DJ, off topic but hows school going?

Thanks for asking mate! Tomorrow is my first day of school so I'm kinda nervous but excited!

Feb 2, 2014 16:05:05 GMT -8 sherry said:

I had poor circulation in my feet before my fall, I even had heated ski boots and they would still turn white! I have Reynauds Syndrome or Disease. They would get numb so I knew it was time to head inside. Since my fall I also now have it in my fingers. Very bothersome. I get it now more in my fingers than my toes. For example if I am cutting up cold meat into cubes, removing the fat ... Now the wheel rims are cold when I head inside so have to keep on wearing gloves or mits.

What is new since my accident is I have gotten athletes foot a few times, an ingrown toe nail (I believe I have two more), swollen legs so I have to wear support stockings. I have bought all new shoes and boots because of the swelling. My toes also want to curl under, especially the second toe on the left foot. My left foot also wants to curve inwards which is a real nuisance. I continually check to make sure my foot is placed correctly on the footrest.

I am lucky in that I don't have nerve pain in my feet, they don't have spasms either.
So in the name of prevention my goal is to wash and dry my feet every night. Bend my toes backwards while pulling the outer side of my foot back to stretch the muscles and tendons. I hold on tightly to that toe so it doesn't bend. I don't have the impression that it is improving but it is not getting worse.

sherry, I also have to wear compression stockings or else my legs will swell up. I haven't had an ingrown toenail yet and I hope I don't ever have one! The nerve pain in my feet/toes is only getting worse so I'd hate it if I had the ingrown toenails bothering me more. My left foot also like to curve inwards on top of my right foot and it gets pretty annoying having to readjust it every time my legs spasm.

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Feet Problems with Cauda Equina Syndrome Feb 3, 2014 19:17:06 GMT -8

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Post by sherry on Feb 3, 2014 19:17:06 GMT -8

Feb 3, 2014 18:30:54 GMT -8 DJ said:

It is impressive how there is not one identical case the same. I have no spasms, yet the nerve pain I have is around my waist. I will never have an ingrown toenail around my belly button but there are times I can't even tolerate my pants being buttoned up.

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Feet Problems with Cauda Equina Syndrome Feb 3, 2014 22:54:17 GMT -8

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Post by wavewolf on Feb 3, 2014 22:54:17 GMT -8

Jan 31, 2014 13:37:16 GMT -8 cesdavid said:

Bottom line is that my lack of feeling in my ankles (and rest of the foot area) contributed to rolling and instability in my walking gait which caused this. Left ankle is fine.

Thanks for sharing this. I think I may have a similar problem, but without sensation I cannot tell and need to get it checked. I am already braced, so hope I have an option other than surgery.

Hoea ra!

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Feet Problems with Cauda Equina Syndrome Feb 3, 2014 22:57:08 GMT -8

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Post by wavewolf on Feb 3, 2014 22:57:08 GMT -8

Jan 31, 2014 21:21:16 GMT -8 kisch5 said:

wavewolf thanks for the straightening the toe tip. My big toe on my right foot has started curling under a lot. It hurts like hell when I straighten it out though. Do you have the same issue?

Yes. Be careful and stretch it gradually more straight as the tendon may have shrunk. As the tendon relaxes, there is less pain and finally no pain in my experience. Consistency is important, as with any exercise!

Hoea ra!

wavewolf Advanced Member Posts: 1,407 Post Likes Received: 1,159 Date Joined: July 2013 Injury: T9 incomplete + other neurological Date Injured: 10 February 2009 Member is: Offline Send PM	Feet Problems with Cauda Equina Syndrome Feb 3, 2014 23:02:11 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by wavewolf on Feb 3, 2014 23:02:11 GMT -8 Feb 3, 2014 10:21:11 GMT -8 kilg0retr0ut said: Feb 2, 2014 16:13:36 GMT -8 sherry said: Excuse my ignorance Knight but what are AFO's? Assistive Foot Orthosis I thought it was Ankle-Foot Orthosis?
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Feet Problems with Cauda Equina Syndrome Feb 4, 2014 4:54:43 GMT -8

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Post by DJ on Feb 4, 2014 4:54:43 GMT -8

Feb 3, 2014 19:17:06 GMT -8 sherry said:

It is impressive how there is not one identical case the same. I have no spasms, yet the nerve pain I have is around my waist. I will never have an ingrown toenail around my belly button but there are times I can't even tolerate my pants being buttoned up.

Interesting eh sherry? There are people that can have the exact same diagnosis but their condition will always differ in some way!

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Feet Problems with Cauda Equina Syndrome Feb 4, 2014 6:06:36 GMT -8

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Post by kilg0retr0ut on Feb 4, 2014 6:06:36 GMT -8

Feb 3, 2014 23:02:11 GMT -8 wavewolf said:

Feb 3, 2014 10:21:11 GMT -8 kilg0retr0ut said:

Assistive Foot Orthosis

I thought it was Ankle-Foot Orthosis?

I wasn't sure, I thought it was Assistive,my wife wasn't sure and I didn't want to post wrong info. so I googled it. (depends on how you google it

My guess is either will work. Braces seems to be what most people seems to understand best.

L4/5 CES

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Feet Problems with Cauda Equina Syndrome

Post by DJ on Feb 2, 2014 13:54:35 GMT -8

Post by kilg0retr0ut on Feb 2, 2014 13:59:00 GMT -8

Post by sherry on Feb 2, 2014 16:05:05 GMT -8

Post by sherry on Feb 2, 2014 16:13:36 GMT -8

Post by kisch5 on Feb 2, 2014 19:23:56 GMT -8

Post by ladylimpsalot on Feb 3, 2014 9:25:06 GMT -8

Post by kilg0retr0ut on Feb 3, 2014 10:21:11 GMT -8

Post by kilg0retr0ut on Feb 3, 2014 10:41:58 GMT -8

Post by DJ on Feb 3, 2014 18:30:54 GMT -8

Post by sherry on Feb 3, 2014 19:17:06 GMT -8

Post by wavewolf on Feb 3, 2014 22:54:17 GMT -8

Post by wavewolf on Feb 3, 2014 22:57:08 GMT -8

Post by wavewolf on Feb 3, 2014 23:02:11 GMT -8

Post by DJ on Feb 4, 2014 4:54:43 GMT -8

Post by kilg0retr0ut on Feb 4, 2014 6:06:36 GMT -8

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