To be honest i think too much emphasis is put on upright mobility....I believe that we have to maintain a balance with everything..if too much walking is painful then do less. Keep it simple..
There is no doubt that we are fortunate to have upright mobility but nothing is proved by causing yourself more problems or pain by over doing it. Mobility will be preserved for longer if managed wisely.
I can frequently be found buzzing around in my wheelchair, either electric or manual. I usually use the manual chair for shopping and going out to a restaurant or similar. If I am at home it is either the electric or crutches and AFOs. Sometimes I feel a little guilty to be using the electric wheelchair but it does allow me to have enough energy to last through my entire day, and with much less pain.
I originally got the electric wheelchair when I severed my lower bicep tendon. Surgery and a long recovery left me with only one fully functional limb. Crutches and a manual wheelchair where not an option to remain independent. If not for the electric wheelchair I would have had to spend 3 months in a nursing facility. Having it allowed me to be in my own home and enjoying the company of my dog. Both are serious stress reducers and that means less pain.
I had a recent appointment with my consultant at my unit as my feet have been causing me one or two problems. I have an appointment there in january to go to one of the departments and see about getting support in my shoes.
He thinks that the support will help with spasms..so at least its better than going on baclofen
Hi Lara, just re-reading this post and am a bit alarmed since the doc I saw last week as part of my physiatrist appt took me off Celebrex and started me on Baclofen, I haven't got the script filled yet though. She also wants me to give Cymbalta another try but use a higher dose than the last time. I'm doing blood work first though and will then talk to my family doc re weaning off Lyrica and starting Cymbalta again.
Did you have a bad experience with Baclofen and should I be worried? Tks.
Dont worry katydid...no...the reason i didnt want to go on Baclofen was because i didnt want my muscles relaxing to the point of my walking being affected. Baclofen relaxes the muscles and i want to avoid this...i believe it also makes you feel tired and i need to stay active so im avoiding it for these reasons.
If these are issues for you too then i would advise that you discuss them with your doctor.
Just updating this thread to mention that im at my spinal unit tomorrow to get this insoles fitted in my shoes...I hope i see a difference because my left foot is behaving pretty badly doing its own thing
Somehow my consultant feels they will reduce the spasms....it will be interesting to see
Just updating this thread with regards to my insoles. Well they didnt really make any difference so i had another appointment with a specialist in this area at my spinal unit.
So after watching me walk with my physio and having a chat they have decided on some different specially made insoles that will have something built in that will help with my 'feel' too. He thinks that i will feel a better contact with the floor/ground than i do now. Also this should help balancing my feet especially as they have significantly reduced sensation
It makes it much harder work to keep my gait correct with these issues so they are hoping that these will help with my upright mobility.
My physio has gone through some strengthening exercises with me for feet plus range of motion exercises and provided me with an exercise band to use... (il post these up and share them)
So il update when these are made...and ive had a few tries with them