New member here. I had a staph infection abscess in my T7-T9 region almost 3 years ago. As hard as the paralysis, numbness, lack of movement and pain has been, the mental and emotional toll has been far worse. I am a married father of 4 kids. I went from the man who took care of everything to the guy who needs everyone’s help. My wife doesn’t even look at me the same. She sees me as a burden. A chore to be handled, not a loving partner in life. We aren’t intimate on any level anymore and she complains about how stressed she is dealing with my appointments and such. I completely understand her side and feel absolutely horrible about the slack she has had to cover. I did win a big lawsuit and have been able to provide all the income we need so she doesn’t work. Honestly I’ve contemplated suicide almost daily for 2.5 years or so. I only haven’t don’t it because of my kids. I love them so much and wouldn’t want them to deal with that. As the two oldest have moved out and the other two are in high school now and heading that direction I find myself planning for a future exit strategy. How will I ever feel like a whole, complete man again!?
Thanks for letting me rant, I have absolutely NOBODY to talk to about this stuff.
Hi Bigi. I went through a divorce that I didn’t want. It was before my SCI. It was devastating. I wondered how other people could go through that and seem to just “shurg it off” within months, or even within weeks. As I said, SCI wasn’t involved in my divorce,...and there were no children,...so I don’t pretend to be privy to your emotions around all of those elements,...but, yes, it is surreal. How could I have invested my heart and efforts into something that just evaporated? Please don’t “exit”. We are here for you. I am here for you. We’ll just talk. Something good will eventually come out of it.
I am in sympathy for your predicament but urge you to find some support. Your wife is mistreating you, creating a situation in which you are suffering emotional abuse. Yes- that term applies. You might read Christopher Reeve's story to appreciate the contrast of how his wife treated him. Some situations bring out the worst in people, and this has happened to your wife. In a way it has happened to you. If your marriage was previously a quite good one your wife's complaining may be an expression of her own grief for your situation and how it has changed her life and her image of her marriage. Counseling with someone experienced with disability problems can help a lot.
Are you suffering medical complications? If not you have plenty of capability to be independent and drive yourself wherever you need to go. A healthy T-7 has the ability to do housework and fix anything he can reach from a chair. Your depression may be preventing you from grasping your own power to be an equal partner in a marriage. I know haw hard it can be to imagine anything positive when one is stuck in depression. Most of us have been there.
It might help to spend some time on youtube watching how other chair-users manage their lives. Start with "the Angry Quad" He is a LOT more limited in ability than you are yet he wins at life. He must have been a sargeant in the Army. Each of us has to figure his or her own way of developing whatever function we retain. Even a compete T-7 can do all sorts of things. Start with one thing. Work at it every day until you can do it, then try something harder. Honestly, BigJ, none of us are worthless and almost any para can be independent and handle many responsibilities. At the moment you are limited by depression, NOT by the paralysis.
Also 'search' youtube for 'wheelchair transfers' , stuff like that, and you will stumble across many many videos of people like you handling life successfully and feeling happy about it. Keep us informed. I care.
I am in sympathy for your predicament but urge you to find some support. Your wife is mistreating you, creating a situation in which you are suffering emotional abuse. Yes- that term applies. You might read Christopher Reeve's story to appreciate the contrast of how his wife treated him. Some situations bring out the worst in people, and this has happened to your wife. In a way it has happened to you. If your marriage was previously a quite good one your wife's complaining may be an expression of her own grief for your situation and how it has changed her life and her image of her marriage. Counseling with someone experienced with disability problems can help a lot.
Are you suffering medical complications? If not you have plenty of capability to be independent and drive yourself wherever you need to go. A healthy T-7 has the ability to do housework and fix anything he can reach from a chair. Your depression may be preventing you from grasping your own power to be an equal partner in a marriage. I know haw hard it can be to imagine anything positive when one is stuck in depression. Most of us have been there.
It might help to spend some time on youtube watching how other chair-users manage their lives. Start with "the Angry Quad" He is a LOT more limited in ability than you are yet he wins at life. He must have been a sargeant in the Army. Each of us has to figure his or her own way of developing whatever function we retain. Even a compete T-7 can do all sorts of things. Start with one thing. Work at it every day until you can do it, then try something harder. Honestly, BigJ, none of us are worthless and almost any para can be independent and handle many responsibilities. At the moment you are limited by depression, NOT by the paralysis.
Jesus! That was really well said. Great words of advice.
Don’t give up, there is so much to live for. You have four children and and a future ahead of you that can be great. There is always something to live for. I hope you can work it out with your wife, but if she makes you feel like a burden, that’s wrong. No one should ever make you feel that way.
Hi Bigi. I went through a divorce that I didn’t want. It was before my SCI. It was devastating. I wondered how other people could go through that and seem to just “shurg it off” within months, or even within weeks. As I said, SCI wasn’t involved in my divorce,...and there were no children,...so I don’t pretend to be privy to your emotions around all of those elements,...but, yes, it is surreal. How could I have invested my heart and efforts into something that just evaporated? Please don’t “exit”. We are here for you. I am here for you. We’ll just talk. Something good will eventually come out of it.
I am in sympathy for your predicament but urge you to find some support. Your wife is mistreating you, creating a situation in which you are suffering emotional abuse. Yes- that term applies. You might read Christopher Reeve's story to appreciate the contrast of how his wife treated him. Some situations bring out the worst in people, and this has happened to your wife. In a way it has happened to you. If your marriage was previously a quite good one your wife's complaining may be an expression of her own grief for your situation and how it has changed her life and her image of her marriage. Counseling with someone experienced with disability problems can help a lot.
Are you suffering medical complications? If not you have plenty of capability to be independent and drive yourself wherever you need to go. A healthy T-7 has the ability to do housework and fix anything he can reach from a chair. Your depression may be preventing you from grasping your own power to be an equal partner in a marriage. I know haw hard it can be to imagine anything positive when one is stuck in depression. Most of us have been there.
It might help to spend some time on youtube watching how other chair-users manage their lives. Start with "the Angry Quad" He is a LOT more limited in ability than you are yet he wins at life. He must have been a sargeant in the Army. Each of us has to figure his or her own way of developing whatever function we retain. Even a compete T-7 can do all sorts of things. Start with one thing. Work at it every day until you can do it, then try something harder. Honestly, BigJ, none of us are worthless and almost any para can be independent and handle many responsibilities. At the moment you are limited by depression, NOT by the paralysis.
Also 'search' youtube for 'wheelchair transfers' , stuff like that, and you will stumble across many many videos of people like you handling life successfully and feeling happy about it. Keep us informed. I care.
I appreciate it Tetra. Some great info in there. Unfortunately on the marriage front I had scheduled a counseling appointment for today and she knew about it for over a week. She decided she didn’t want to go and told me instead she’s done with me and wants a divorce. I don’t know where I’m gonna go or how I’m gonna get by as she helps me with almost everything at the moment. Mostly because we do not have a handicap accessible house. I am so wiped from crying and mourning the loss of my 20+ year relationship that I can’t hardly think straight. Thanks again for the info.
Can you keep the counseling appointment for yourself? It might help to see someone on your own. You are dealing with very difficult circumstances. Not only the loss of your mobility but now your wife. I’m sorry, just know you’ll be ok. There’s help available to help find or create a home that is handicap accessible. This suppprt group is here for you too. My son is 21 and a complete T-11 para for three years now. He is ok, going to college but his girlfriend (from before his injury) broke up with him. He’s had a hard time with it. I know this is nothing compared to a 20 year marriage, so I can only imagine how you must feel. Will be praying for you.
Sorry to hear about your circumstances. In all honesty, I think everyone has said enough about what's coming up with your divorce. My only advice is to secure the services of a good lawyer. You mentioned that you won a big lawsuit, you probably want to ensure that you can protect that money so that you can spend it and save it as you see fit.
Speaking of the lawsuit, if your payout was substantial enough to make it so that your wife didn't have to work anymore, then it sounds like you've got enough money to start focusing on yourself. You said that you don't have an accessible place to live. To that end, maybe it's time to start looking for an accessible home for yourself and possibly hiring a caregiver. After all, if you're going to get divorced in the near term, I imagine that you'll no longer have the expense of supporting both yourself an your wife. Accordingly, you'll have more money to focus on yourself.
What sort of training/therapy did you have after you sustained your injury. The reason I ask is because as a T7 you really should be able to do a lot of things for yourself. I'm a T5/6 and thanks to some good OT, I manage to live fairly independently. Perhaps you should look into those services yourself. I don't know what sorts of things you depend on your wife for, but I'm guessing that some of those things you can do yourself. It can be hard to force yourself to do things when you're feeling depressed. However, you might start feeling better once you start seeing how much you can for yourself. It's very empowering.
bigj, I was injured in auto accident 2 months after filing for divorce in 2015 and a month after I got out of hospital it was finalized by judge. guess who was there to get me out of hospital, my wife I was divorcing. life throws curveballs at you, you never know what will happen tomorrow, it could be amazing. don't know how this might help but hopefully it does.
BigJ, when I first got home to my house after the accident, I couldn’t even get out to the street in order to take the city van to the grocery store. The ramp that an entity had installed got me down off my front porch, but it then stopped at “grass”. The grass would have turned to mud if I had tried to roll on it. I would have just been stuck in mud in my front yard. I hired what was supposedly a reputable, long-established company to put a sidewalk from the end of the ramp out to the other sidewalk. They made it with a ridiculously steep incline at one end, then flat,...rather than making the whole thing a gentle incline. I couldn’t use it, and they wouldn’t fix it. I had to pay other workers to take it out and re-do it...spending money that I didn’t have. During this time, I couldn’t leave my house, not even for groceries. Sometimes I ordered pizza. Sometimes a friend would go to the store for me. ACCESSIBLE. Yes, we need a house that is accessible. I still can’t get into my bathroom because the door is too narrow, and I don’t have insurance coverage that will pay for the remodeling. Regarding the marriage, “counseling” isn’t all it’s cracked up to be. When one party wants out of the marriage, counseling is just where they go to blame the other party ‘one more time’, for good measure.
I’ve now got a sidewalk that gets me to the curb. I’ve taken the city van to the grocery store and home many times. I cook what I want to eat, though nothing too complex. And I have a kind lady as an aide, part time. She changes burnt out lightbulbs, reaches cabinets that I can’t reach, and sweeps. You’ll probably need a part time aide, at least until you can get your house more accessible and have the essential things you need daily within reach.
Please order some Kratom for pain. It is still legal in all but a few states. You are in the US?
BigJ- Once again the Goddess of Irony has struck. You try to improve your marriage and the effort only motivates your wife to declare she wants out. It happens, and in a few years you will feel it is for the best. Yuck. It may be hard to set aside the need to mourn for some hours each day, but time spent creating your own plan for your brand new life will also reveal that you are capable of managing as a paraplegic. Listen to Stevend, he offers good advice.
Just one little step at a time. An accessible home or apartment will totally change your life. How to find that depends on where you live, of course. If you feel comfortable sharing that detail people may have useful suggestions.
On a personal note, I consider divorce nearly every day because living with my guy is like having a dog that is not house-trained. He is also flirting with dementia and gets verbally difficult. Yet the thought of leaving our home, which I've spent many thousands of dollars making easy for me, is Exhausting. Just the thought is exhausting. I can stand the idea of caring for this guy who has completely changed from the person I married (frequently emotionally abusive now and another quirk I do not discuss on-line). Yet being responsible for his finances plus cleaning up after him consumes a lot of my energy when that energy is quite limited. For now I accept my situation, hope for improvement, but also maintain contingency plans so I do not feel trapped.
You are a lot younger than I, so divorce probably makes sense for both you and your wife. Maybe you could have worked things out, but she may feel this situation has brought out the worst in her and she believes divorce will change her life as suits her. There's not much we can do about the decisions of others. I can tell you that others in situations at least as challenging as yours have succeeded at setting up good living accommodations and getting on with life.
Things to consider: Is it best to remain in your present town?
What needs to happen in order for you to get a vehicle and drive yourself?
Is there a local support network you can lean on? (If you are in Canada the answer is YES. )
I'm curious- does your screen name mean you are overweight? I only ask because that determines much of what we can do. Manual chair?
My thoughts are with you.
I step in the water, but the water has moved on...
So where are you from? I got divorced a few years after my sci accident and never thought i would meet someone else. I dating live became very active and 4 years ago i met a great woman who supports me in any way needed.Dont give up, life can be better you just got to put in an effort to go get what you want.