Hi Bigj! Sorry for what you are going thru and sending you a big hug. Do you have an Aging and Disability Resource Center in your area. They could give you suggestions on adaptive housing and many other things.
Hey BigJ: Totally empathize with your emotional state. Even now, nearly five years after I nearly lost my life in a fall from a tree, I get into Depression Mode. Generally when this happens I load up the pot pipe, switch on a movie on the computer, and space out for a while. Sometimes that works, sometimes it doesn't. I think your wife is freaking out with exhaustion and just the sheer terror of what happened to you. But that is beside the point. You must focus on you and what helps you get through your day. Now that I have been disabled for nearly 5 years, I can honestly say based on my own observations, that the people in our lives have little idea of just what to think and how to cope with a person with a major disability; a person like me--or you.That is not going to change anytime soon. It is as if our situations are somehow contagious, like a virus or the measles. Because of this, I ignore the occasional explosions or meltdowns or, if I am just not in the mood, I let that person know exactly what I think about their gripes with the fact that I am still alive. That is their s*** to deal with and I make no apologies for having made the inconvenient decision to live.
Don't let anybody in your life bully you into a depression. Since the accident, I have been much more confrontational when someone like my partner, a relative, or a friend gets in my face about issues they, and I, know are just part of life in the present, and that's that. Your wife, not you, needs a good shrink. She is dumping her s*** on you and while her grief and frustration and fear are understandable, she has no right to use you, of all people, as a dumping ground for her feelings about anything. After all, if she is overwhelmed there are plenty of alternatives she should explore with your hospital/doctor. She is the one who must do the research and find out how she can help herself. Generally I have found that the attitude among most people in my orbit is "Well your the disabled person, so you should do the work to make my life easier." Which translates into: "It's your fault you are disabled, you fix it!" I have been dropped by former friends and colleagues because they just could not handle my situation. I find this intriguing, as I am totally mobile and not wheelchair bound. The implication of this behavior is obvious; it is just the thought of my disability that sent them scurrying away. I am a constant reminder of something depressing and in our society we are supposed to avoid "negative" thoughts and negative people.
It is true and everyone in my life knows it; they better not tell me to my face that I am "lucky to be alive". I know people "mean well", but that's a stupid remark to make to anyone who has been through a severe physical trauma. Thankfully, those people who told me I was "lucky" are the same shallow folks who left my life.
Whatever happens, don't let anyone else's hangups or emotional turmoil send you into a nosedive. You have a right to live. If others don't like it, tough s*** on them. Better yet, offer them a toke on the peace pipe. That should mellow them out.
I would suggest getting a caregiver. I had one from Bayada Home Care for quite a while after I was home from the rehab hospital. The deal included running through physical therapy exercises, so I didn't turn into a giant marshmallow. The medical marijuana was a wise choice on my part. I definitely suggest getting out and/or getting in some kind of therapeutic exercise. I get depressed--VERY depressed--but I know what it's about and I know it will pass like a headache or a sore throat. Anyway, I have to get out to walk the dog. Take care of yourself and light a joint for me.
Can you keep the counseling appointment for yourself? It might help to see someone on your own. You are dealing with very difficult circumstances. Not only the loss of your mobility but now your wife. I’m sorry, just know you’ll be ok. There’s help available to help find or create a home that is handicap accessible. This suppprt group is here for you too. My son is 21 and a complete T-11 para for three years now. He is ok, going to college but his girlfriend (from before his injury) broke up with him. He’s had a hard time with it. I know this is nothing compared to a 20 year marriage, so I can only imagine how you must feel. Will be praying for you.
Hello Hope. I didn’t keep the appointment but I do plan on making another one. I am sorry your son has had to endure this at a young age, I thought late 30’s was bad enough, but 21 is just starting to live. I appreciate the prayers!
Sorry to hear about your circumstances. In all honesty, I think everyone has said enough about what's coming up with your divorce. My only advice is to secure the services of a good lawyer. You mentioned that you won a big lawsuit, you probably want to ensure that you can protect that money so that you can spend it and save it as you see fit.
Speaking of the lawsuit, if your payout was substantial enough to make it so that your wife didn't have to work anymore, then it sounds like you've got enough money to start focusing on yourself. You said that you don't have an accessible place to live. To that end, maybe it's time to start looking for an accessible home for yourself and possibly hiring a caregiver. After all, if you're going to get divorced in the near term, I imagine that you'll no longer have the expense of supporting both yourself an your wife. Accordingly, you'll have more money to focus on yourself.
What sort of training/therapy did you have after you sustained your injury. The reason I ask is because as a T7 you really should be able to do a lot of things for yourself. I'm a T5/6 and thanks to some good OT, I manage to live fairly independently. Perhaps you should look into those services yourself. I don't know what sorts of things you depend on your wife for, but I'm guessing that some of those things you can do yourself. It can be hard to force yourself to do things when you're feeling depressed. However, you might start feeling better once you start seeing how much you can for yourself. It's very empowering.
--SD
Stephend, I already have my lawyer who helped me win the lawsuit. I spoke to him and she has zero entitlement to it as it is for my pain and suffering from the injury, so I’m set there. I have a handicap house being built that my wife and I designed. Ground breaks in a week and is supposed to take 4-5 months to complete. So I need an apartment or something in the mean time. I live southeast of Phoenix in Arizona and have searched many times for handicap housing as I can’t stand living where I am but to no avail. I find plenty first floor apartments with wider doors, but none with ADA shower, toilet or counters. I have been dependent on my wife to help with bathing and using the restroom as since my surgery my back is so tight I cannot bend and I have put on a lot of weight from inactivity. I always struggled up and down with weight but now that I cant run and hit the gym I’m a constant big guy. I am in the process of getting clearance for weight loss surgery to combat that. I have been trying to retrain my bowel and bladder and it goes well for a bit then BAM! UTI infection. I use all precautions. Washed hands, new gloves every time, iodine the tip, closed system cath. I’m even on a daily low dose of macrobid to help prevent them!
BigJ, when I first got home to my house after the accident, I couldn’t even get out to the street in order to take the city van to the grocery store. The ramp that an entity had installed got me down off my front porch, but it then stopped at “grass”. The grass would have turned to mud if I had tried to roll on it. I would have just been stuck in mud in my front yard. I hired what was supposedly a reputable, long-established company to put a sidewalk from the end of the ramp out to the other sidewalk. They made it with a ridiculously steep incline at one end, then flat,...rather than making the whole thing a gentle incline. I couldn’t use it, and they wouldn’t fix it. I had to pay other workers to take it out and re-do it...spending money that I didn’t have. During this time, I couldn’t leave my house, not even for groceries. Sometimes I ordered pizza. Sometimes a friend would go to the store for me. ACCESSIBLE. Yes, we need a house that is accessible. I still can’t get into my bathroom because the door is too narrow, and I don’t have insurance coverage that will pay for the remodeling. Regarding the marriage, “counseling” isn’t all it’s cracked up to be. When one party wants out of the marriage, counseling is just where they go to blame the other party ‘one more time’, for good measure.
I’ve now got a sidewalk that gets me to the curb. I’ve taken the city van to the grocery store and home many times. I cook what I want to eat, though nothing too complex. And I have a kind lady as an aide, part time. She changes burnt out lightbulbs, reaches cabinets that I can’t reach, and sweeps. You’ll probably need a part time aide, at least until you can get your house more accessible and have the essential things you need daily within reach.
Please order some Kratom for pain. It is still legal in all but a few states. You are in the US?
I totally relate to the stuck in the house thing. That was me for the longest time. I too do not have an accessible bathroom, it’s depressing to do bed baths and bedside commode. No matter how much soap and shampoo I use I never feel clean. I know that I am and I never stink or have skin breakdowns and such but I was a crazy shower guy before the injury. Washed my hands all day long and sometimes showered twice a day. As far as an aide, I am so self conscious of how I look and my privacy now that I don’t want an aide helping me with the personal hygiene stuff. I’ve gotten heavy. I mean not like the 600lb life show heavy but yeah heavier than before and I feel self conscious.
Kratom? Never heard of it. I do live in the states, Arizona to be exact.
BigJ- Once again the Goddess of Irony has struck. You try to improve your marriage and the effort only motivates your wife to declare she wants out. It happens, and in a few years you will feel it is for the best. Yuck. It may be hard to set aside the need to mourn for some hours each day, but time spent creating your own plan for your brand new life will also reveal that you are capable of managing as a paraplegic. Listen to Stevend, he offers good advice.
Just one little step at a time. An accessible home or apartment will totally change your life. How to find that depends on where you live, of course. If you feel comfortable sharing that detail people may have useful suggestions.
On a personal note, I consider divorce nearly every day because living with my guy is like having a dog that is not house-trained. He is also flirting with dementia and gets verbally difficult. Yet the thought of leaving our home, which I've spent many thousands of dollars making easy for me, is Exhausting. Just the thought is exhausting. I can stand the idea of caring for this guy who has completely changed from the person I married (frequently emotionally abusive now and another quirk I do not discuss on-line). Yet being responsible for his finances plus cleaning up after him consumes a lot of my energy when that energy is quite limited. For now I accept my situation, hope for improvement, but also maintain contingency plans so I do not feel trapped.
You are a lot younger than I, so divorce probably makes sense for both you and your wife. Maybe you could have worked things out, but she may feel this situation has brought out the worst in her and she believes divorce will change her life as suits her. There's not much we can do about the decisions of others. I can tell you that others in situations at least as challenging as yours have succeeded at setting up good living accommodations and getting on with life.
Things to consider: Is it best to remain in your present town?
What needs to happen in order for you to get a vehicle and drive yourself?
Is there a local support network you can lean on? (If you are in Canada the answer is YES. )
I'm curious- does your screen name mean you are overweight? I only ask because that determines much of what we can do. Manual chair?
My thoughts are with you.
That goddess of irony is a real witch!!
Divorce doesn’t appeal to me for many reasons. First and foremost I have only ever been with her. First everything was with her. Love, kiss, sex. We have 4 kids together and it breaks my heart to know how this will impact them when they find out. We agreed to not say anything until plans are fully in play. But you are right, I can’t help what someone else decides. I just thought forever meant forever...
Definitely best to remain in this town, my kids are all here. Life without them isn’t worth living!
I have the money to buy a vehicle to drive myself but I was nagged that there are too many cars out front already from her family that we share a house with. We were renting her parents house but then they got sick and one of her brothers too and now we are like a motel 6 and I hate it. My disability pays almost everything here and I am the one who feels like I’m in the way.
Don’t know about support groups. I finally felt the need to talk so much I found this forum.
Yeah Big J is partially cause I’m overweight. Was also my high school nickname as I was built like a linebacker. 6’5” 275lbs. Now I’m much heavier since my injury almost 3 years ago. I only have a manual chair cause insurance keeps rejecting the motorized one. All my life working mostly the same job but always working paying in and now I have to beg to get something as cheap as a bedside toilet. Don’t get me started on the horrible healthcare here in the states.
So where are you from? I got divorced a few years after my sci accident and never thought i would meet someone else. I dating live became very active and 4 years ago i met a great woman who supports me in any way needed.Dont give up, life can be better you just got to put in an effort to go get what you want.
I’m from Arizona. I definitely don’t think I’ll ever meet anyone who wants me now. My wife of 20+ years doesn’t want me what woman will? I feel like broken down damaged goods. I’m almost 40, have 4 kids and I’m still trying to learn to not pee on myself sometimes. I assume she’s turned off and that’s part of the problem. =( I am happy for you to have found someone, everyone deserves someone who cares.
Hey BigJ: Totally empathize with your emotional state. Even now, nearly five years after I nearly lost my life in a fall from a tree, I get into Depression Mode. Generally when this happens I load up the pot pipe, switch on a movie on the computer, and space out for a while. Sometimes that works, sometimes it doesn't. I think your wife is freaking out with exhaustion and just the sheer terror of what happened to you. But that is beside the point. You must focus on you and what helps you get through your day. Now that I have been disabled for nearly 5 years, I can honestly say based on my own observations, that the people in our lives have little idea of just what to think and how to cope with a person with a major disability; a person like me--or you.That is not going to change anytime soon. It is as if our situations are somehow contagious, like a virus or the measles. Because of this, I ignore the occasional explosions or meltdowns or, if I am just not in the mood, I let that person know exactly what I think about their gripes with the fact that I am still alive. That is their s*** to deal with and I make no apologies for having made the inconvenient decision to live.
Don't let anybody in your life bully you into a depression. Since the accident, I have been much more confrontational when someone like my partner, a relative, or a friend gets in my face about issues they, and I, know are just part of life in the present, and that's that. Your wife, not you, needs a good shrink. She is dumping her s*** on you and while her grief and frustration and fear are understandable, she has no right to use you, of all people, as a dumping ground for her feelings about anything. After all, if she is overwhelmed there are plenty of alternatives she should explore with your hospital/doctor. She is the one who must do the research and find out how she can help herself. Generally I have found that the attitude among most people in my orbit is "Well your the disabled person, so you should do the work to make my life easier." Which translates into: "It's your fault you are disabled, you fix it!" I have been dropped by former friends and colleagues because they just could not handle my situation. I find this intriguing, as I am totally mobile and not wheelchair bound. The implication of this behavior is obvious; it is just the thought of my disability that sent them scurrying away. I am a constant reminder of something depressing and in our society we are supposed to avoid "negative" thoughts and negative people.
It is true and everyone in my life knows it; they better not tell me to my face that I am "lucky to be alive". I know people "mean well", but that's a stupid remark to make to anyone who has been through a severe physical trauma. Thankfully, those people who told me I was "lucky" are the same shallow folks who left my life.
Whatever happens, don't let anyone else's hangups or emotional turmoil send you into a nosedive. You have a right to live. If others don't like it, tough s*** on them. Better yet, offer them a toke on the peace pipe. That should mellow them out.
I would suggest getting a caregiver. I had one from Bayada Home Care for quite a while after I was home from the rehab hospital. The deal included running through physical therapy exercises, so I didn't turn into a giant marshmallow. The medical marijuana was a wise choice on my part. I definitely suggest getting out and/or getting in some kind of therapeutic exercise. I get depressed--VERY depressed--but I know what it's about and I know it will pass like a headache or a sore throat. Anyway, I have to get out to walk the dog. Take care of yourself and light a joint for me.
Definitely sounds like you and I have some similar struggles. I haven’t smoked weed since I was in my late teens. No issues with those who do, just haven’t felt the need to go that direction. Depressed is my middle name most the time though. I do PT 2-3 times per week. It helps a lot but it’s such a slow process it’s frustrating!!
Bigj, here’s a good site on Kratom. “It combats sad feelings and helps the users to live a healthy life. Choosing the right kind of Kratom strains can make the feelings of depression and stress go away, helping the users to feel happy and focus on everyday tasks in a better way.” redstormscientific.com/youre-sad-today-try-4-kratom-strains-uplift-mood/
“Kratom is legal in every part of Arizona, which means there are no limits on how much you can consume and how much they can buy.” kratomonline.org/kratom-arizona/
Post by ladylimpsalot on Feb 12, 2018 10:29:36 GMT -8
Bigj, A spinal injury is so horrible for anyone, and unfortunately it affects everyone in your family. It sounds as if your wife is nowhere near as supportive as she ought to be, but she is in this too. She is probably having a difficult time adjusting to things herself. I am glad that you got your settlement, that will make things quite a bit easier. May I suggest counseling for both of you?
My husband passed away 10 years ago. But if I were to look for a new guy, I would be a lot more interested in his mind, and in his soul, than I would be in his body, what he was able to do, and not to do. I do believe that you continue to be alive for a purpose, you are still a thinking, giving human being, and hopefully you will be shown what that purpose is. In the meantime, stick around. There is still life to be lived. ,
Before I was discharged from the hospital last Sep, I tried my best to do PT and OT to make myself more independent. However, my mom came to take care of me and all the house work. I was so depend on her that I was very sad and devastated before and after she went back China this Jan. And then I had to depend on my husband. As he has to work and is busy, I started to learn to prepare meat and vegetables and wait for him comes back to cook. It will just take him less than half an hour do finish cooking. I learned about dishwash and get the dishes out, laundry, and stransfer from the bath chair to wheel chair. And I figured out that I will never “grow up” if I let others do all the things for me or I depend on them too much.
I also have stage IV cancer with brain and spine mets. It was the spine one caused my paralysis. Well , I am also young, 31. And no child even though I strongly hope I have. Life is till going on . Many many side effects from chemo and radiation are eating me bite by bite. I thought of death. And I think, if I have someone or something I treasure, I must stay strong and live everyday happily. If I have nothing to cherish, then do not hesitate to die. I love my family and my husband. So try my best to enjoy the rest of my life.
I hope you can do it too. Try to Enjoy you life, Big J!
I was an ourdoor person, but now I am learning pencil drawing from YouTube videos. Drawing makes me happy ,focus and calm. I love it! New hobbies are good for us!
Hi BigJ, I read your post and it took me right back to my own situation postinjury. Feeling completely useless was something I struggled with for a long time. Especially since my injury is in the upper spinal cord at the C4 level. Every time I thought about suicide, felt even worse: I have no hand function and can't even hold a gun! When it got to the point where I had a possible method to use, I realized I better ask for help, and soon my doctor had me on antidepressants. Never in my life did I think I would have to resort to them, but they sure helped me through the first year, and then the following winter again. I weaned myself off them as soon as the spring sunshine returned. (Please forgive the occasional random errors, since our relying on Dragon voice dictation as I can no longer use a computer keyboard with more than the side of one thumb. And to think I used type with 10 fingers at a rate of 50 words per minute! So frustrating these days.)
I can imagine what you're going through is very difficult at an emotional level. For 10 years prior to my accident (ending one year before my accident), I lived with my wife who I eventually left. She was clinically depressed, and it was so hard being dragged down all the time. Eventually I realized if I stayed with her I might hurt myself, and I needed to get out for the sake of my own sanity. So I think about your wife, and the struggle she's having. It may be that she's not strong enough to cope with your situation. My ex- girlfriend's husband left her because he couldn't cope with her getting ovarian cancer. The two of you have a similar challenge ahead of you. Perhaps counselling can help. But perhaps there's another path as well.
Have you considered getting your own place to live and hiring people to come in once a day to help you with the necessities? As a mid-level paraplegic, it's hard not for me to think of you as a Superman! Think of it, you can dress yourself, you can feed yourself, you can cook, you can jump in a car and drive yourself around. Even go away for the weekend skiing or camping if you want. Sure, there are many challenges, and in this regard you are no different from anyone else matter what their level of impairment is. We are all not where we want to be, not where we used to be.
Six years postinjury, I now realize the main challenge anyone of us faces is to reach acceptance of our situation. This is very hard!
Hey, one more thing. I have found it illuminating to listen to others that are going through similar challenges, even if their entry level is lower or not as severe. KJ Walker is one of them, and in this video she talks about facing betrayal and separation. I've lost 90% of my so-called friends after my injury, so I can sure relate. In another one of her videos she also talks about the need to reach that state of acceptance.
Have you considered getting your own place to live and hiring people to come in once a day to help you with the necessities? As a mid-level paraplegic, it's hard not for me to think of you as a Superman!
I knew a para who was quite large, easily 300 lbs, and it was tough for him to get around and take care of himself. As always with guys, size matters
I step in the water, but the water has moved on...