I am sure we all have so many stories to talk about from our experiences whilst rolling through this spinal cord injury journey. Some funny and some not so funny, some are embarrassing and some are so bad that if we don't laugh we will cry and I am sure we have all cried.
This is, I am sure the challenge of a lifetime, many lifetimes, if you believe in that kind of thing but this is often forgotten by the spinal experts, that it is our challenge and only we know truly how SCI feels and only we can write that book. I do feel that there needs to be new books written on SCI, written by the people who know best and new approaches, not so restricted and stuffy.
Anyway, back to the original topic....
So, my first one is the pin prick test whilst still wearing clothes, truly, what is the point and purpose? I actually have had a pin prick test by a very serious, professional consultant whilst still clothed. No I didnt feel much, you pin pricked my leggings!
I have a fair few but I want to hear yours so come on guys...speak out!
Recently, I went to a doctor appointment. The doctor got down on the floor by my foot, touched it, and asked if I could move it. I was only wearing a sock, not a shoe, so I told him that I could move one toe. He was holding my foot. I said, “Here. Watch”. Then, with effort and concentration, I moved it. He almost missed it. I think that he was expecting it to be my big toe. I said, “The second one.” And moved it again. I said, “There. Did you feel it?”. He vaguely nodded and grunted “yes”, which was a bit of a let-down. He seemed to barely be hearing me. Then, WHOP! Out of nowhere he banged my knee with his mallet. He seemed pleased with himself —apparently because he had tricked me and snuck up on me. I felt angry and assaulted. I immediately said, “Well, don’t hit it again! Last time you kept beating on it and you hurt me.” He said, “No. I won’t hit it again.” But the smugness was still there. My knee reflect is absent. It didn’t kick.
He got up off the floor, and while looking at something on his computer, asked me several questions regarding my condition that were so vague it was hard to give an answer. Then, sounding annoyed and frustrated, he finally asked the question that the computer form was telling him to ask me,...which was simple to answer. I can only guess that he was trying to “outsmart me” by not asking the simple question that the computer was asking.,..but was blaming me for not giving the simple answer. (This would be a long story, as my doctor -though a nice man- is completely ignorant on SCI.)
Having read your story, Lαrα, I began to mentally review my doctor appointment from a different perspective. What I realized gave me an angry, sinking feeling, because I believe that -in all that time he spent down by my foot- he probably gave me a prick test without asking my permission in advance and without telling me afterward that he had done it. Here’s part of my objection to this sort of “spring it on me” testing...if I get an infection where he pricked me, I wouldn’t know why I had gotten it there, and I wouldn’t be keeping an eye on the spot so as to put iodine, etc. Also, with the mallet on the knee reflex test, if my foot is wedged on the wheelchair pedal plate, rather than lifted, then my knee could try to kick and strain itself. I have a large scar on that knee where I had a patella surgery, and I have always been very protective of it. Does he really think that I would be controlling myself so as to hide a knee reflex?!!!
During the questions that he paraphrased —and after the knee reflex test—, the doctor asked, “And can you lift your leg and straighten it?” I hope that the look I gave him conveyed my lack of enthusiasm for his lack of insight. I said, slowly, “I can move one toe.” He paused, then turned back to his list.
Thanks for giving us a Thread, Lαrα, where we can tell our stories and maybe learn from each other. I have learned from you. On my next visit, I will ask my doctor not to perform any tests, such as knee reflex or prick test, without first asking my permission and receiving it.
The nurses who prepared me for the testing threw all used materials on the floor. When the neuro-urologist asked them if this were okay, they answered the floor did not have to be sterile. Then they started arguing.
All of a sudden the neuro-urologist jumped up to me and pressed as hard as he could repeatedly against my bladder.
Neither I nor my bladder showed any reaction. He was literally disappointed that he could not trick me. I still don't know what he had expected.
On my next visit, I will ask my doctor not to perform any tests, such as knee reflex or prick test, without first asking my permission and receiving it.
I remember, on a Monday at the Spinal Unit, the consultants, doctors and students would visit us in their large group bed by bed on the weekly 'walk round'. We would be asked about any issues/changes and the week's procedures and plans would be discussed. The most irritating thing is when I told my consultant about the very painful spasms that I was experiencing in my ankles. I experienced this particular issue several times a day at this time of injury but because I am classed as Lower Motor Neurone, I was not meant to suffer with spasms,therefor it was more or less dismissed.
This is one incident that made me realise how stuck in their thinking some of these professionals are and how they need to think outside that box sometimes and listen.
Years back, before SCI, a nurse came to my room with her students. (I had had surgery.) She asked my permission and then proceeded to show her students how to disconnect and reconnect the machine that was periodically gently squeezing and releasing my legs -so that I wouldn’t get blood clots. I was on pain killers, so I wasn’t alert enough to keep track of things or to know the passage of time. Hours later, I realized that my legs were bothering me, and that -gasp- I’d been lying there all that time without the benefit of the ‘blood squeezing’ machine. The nurse had done her demonstration for her students, but hadn’t turned the machine back on. Grrrr. It made me wish that I had refused to be her guinea pig.
My sister is dual licensed RN/LVN, and works as an RN in Oncology research. Years ago, she told me that the reason an injection sometimes has a burning sensation is because the vein gets inflated when the medication is pushed in too quickly. She advised to always ask for a slow push.
When I was in hospital with SCI, I received an injection every morning, and it always burned. One morning, I asked the nurse if he would do a slow push. He said OK and proceed to insert the needle ever so slowly. Once inserted, he rammed the plunger home (and yes, it burned).
I was laughing so hard that the head nurse came running in to see what was going on. I told her and her reaction was priceless.
Honestly, the guy had not a clue why I was laughing or what he'd done wrong...
Speaking of pin prick tests. The first one I had the doctor kept pricking the middle of my forehead for reference.. .. Only problem is I have scar tissue in the middle of my fore head so my sensation is impaired..
Speaking of pin prick tests. The first one I had the doctor kept pricking the middle of my forehead for reference.. .. Only problem is I have scar tissue in the middle of my fore head so my sensation is impaired..
Speaking of pin prick tests. The first one I had the doctor kept pricking the middle of my forehead for reference.. .. Only problem is I have scar tissue in the middle of my fore head so my sensation is impaired..
Soooo then,... did the doctor make the revolutionary diagnosis that you are paralyzed clear up to your forehead?
Post by catheterboy on Nov 10, 2018 5:48:56 GMT -8
It's always amazed me whenever I have been admitted to hospital how quickly someone has their finger up my bum. I don't think I have ever been more than half an hour before it happens. On the first day in hospital it's not unknown for three or four different people to perform this act. I swear next time I will be selling tickets.
It's always amazed me whenever I have been admitted to hospital how quickly someone has their finger up my bum. I don't think I have ever been more than half an hour before it happens. On the first day in hospital it's not unknown for three or four different people to perform this act. I swear next time I will be selling tickets.
catheterboy, I’m only ‘half joking’ when I ask this... Maybe someone, even maliciously, put it on your chart for them to do this. II didn’t comment when I firstt read your post because I thought it might be a “guy thing”, but other males here have apparently not had the same experience. Maybe you should ask them “Why?” next time.
Post by catheterboy on Nov 12, 2018 5:14:22 GMT -8
Wow yes ok. I know other people who have experienced the same. Also a guy came into a ward I was on in the middle of the night with possible SCI and they were soon doing it to him too I could hear everything. Another guy I know refused to have it done after three people in twenty four hours had done it to him. I only put the post on as a bit of humour. I am not bothered about it good greif it's the least of your worries at the time but it has happened several times. I think personally they are checking the workings of the bowel muscles .