Walking isn't everything, right? I am 11 years post injury, a quad, and have neglected my hands. They work well enough to get me through life but they do not work well, especially the left one, and they are weak.
I bought myself an electronic piano keyboard with 2 goals: work my hands and improve my voice. Until about 1 month ago I had not been able to sing in 11 years. The fusion operation in the throat likely did some damage, as well as a month of intubation. My voice has been weak and gravelly except in the upper range. i could not carry a tune, whereas once I was reasonably good singer.
Then a month ago, after a regular acupuncture treatment, my voice was mine again! Whoopee! It only took a few weeks of singing scales and intervals to regain control. She had stimulated the lung meridian, if you are curious. I decided it would be fun to have a keyboard to help with the singing.
First try was a big discouragement. I will never be able to lift the fingers not in use on the left hand, so not sure what I'll do to keep them from interfering. This will definitely take a lot of work and if I don't stick with it I will have a $300 failure staring at me in my bedroom. Time will tell but for now I am hopeful. I have my old Sacred Harp songbook that is relatively simple. I can trim down cords and only use a few fingers from the left hand.
It might not happen today. It probably seems impossible. Here is the question -- WHAT CAN YOU LOSE??? I'm guessing not much. In a similar situation. Go for it -- I know you're a fighter!!!
tetra , Agree re hand function being really important. We have had this conversation previously . Peter gets more frustrated with loss of hand function than wonky legs. I love your pioneering spirit Tetra. I will be very surprised if the "$300 failure staring at me in my bedroom." scenario happens. You are very determined and mainly find a way to achieve your goals. Even if you have to adjust the goals a little on the way .
And great news that you have found your voice again. Singing is such a brilliant stress buster. Choir? I went to a meditation event last week and we spent a happy hour singing OMs. Shy to open up initially, by the end of the hour 150 of us were OMing away like good 'uns. The event was in an old Franciscan Monastery and the nave was almost hazy with the sounds floating up to the ceiling. Vibrations right though the body and brain (and soul if you are so inclined). Loved it! x
$300 has bought you a little extra hope so it wasnt wasted, and if it makes you more happy than frustrated it will be well worth it.
I could have done this for less expense, Sam, but not as well. For finger therapy one needs weighted keys, which is higher end. The used ones I saw were overpriced given that new ones are better engineered. And there is this: new looks so pretty! Yesterday I stopped at the thing about 4 times to try different moves. Just 5 minutes each to avoid frustration. Soon: a premier concert of "Three Blind Mice".
That's great that you're tryng to make music again Tetra . Reading your post has made me realise that I too have neglected my hands since my accident, the messages which go to the tendons to hold my right hand straight, arent there at all so that after 20 years, even with stretching my fingers every day....my fingers are unable to straighten when holding my hand and wrist in alignment.
Its wonderful that you are able to sing again, fascinating that acupuncture helped get your voice back though! As for your fingers not in use.....are you able to control them at all? Or is it more that you're unable to straighten them and press the keys fast enough to play music?
i have issues with finger movement on left hand, it is getting stronger and i now am able to run my fingers through hair which was impossible 6 months ago because i was unable to straighten fingers well. so it will take time but there is hope for all of us getting back to accomplishing things with our weak hand.
outlier, I agree- not much to lose with this attempt, other than a bit of self-delusion. moco, that is so cool to enjoy that experience with sound and chanting. Sound can do amazing things...I remember, vaguely. tarabev, It sounds as though your hands are still a bit better off than mine. Even out of the gate I could not straighten my fingers with the wrist straight. Index finger goes to 90 degrees on both hands with wrists straight. Very strange things happen when I type. A big limitation is that, especially with the left, If i try to press down with thumb, middle, and little finger, the other two will not lift to avoid intervening keys. I'm fooling around with only using 2 fingers, or thumb and one finger, on that hand. Sometimes using the index finger as curled knuckle us useful. With the left I still cannot move fingers independently very fast but I think that is just coordination and will improve with repetition. Speed is faster on the right, as you would expect of the dominant hand, and surely that will improve also.
My very first finger therapy was with computer use. I had my mate bring in the laptop to the hospital and the day i successfully depressed just the spacebar I was ecstatic and inspired. Typing has been my consistent challenge with fingers and I refuse to devolve into 2 fingered typing. Days when spasticity is low I do much better.
one more helpful trick i stumbled upon, chocolate kisses, so delicious and very difficult to unwrap over, makes you work hard to use fingers to get to that chocolate.
'There's always something magic, there's always something true. And when you really, really need it the most, that's when rock 'n roll dreams come true.'
Screw walking. Use of my arms and hands is what I would give anything for. Wishing you success tetra ,
How could you feel differently? I have known several people without any arm or hand function and it's about as hard as it gets, unless we refer to those who also cannot speak due to TBIs. Still, there are thoughts you and your cohort contribute that I value immensely. You enrich our understanding of what it means to be a human being.
I already am improving at hitting a black key without my finger just sliding off. There are many small challenges I had not anticipated. Among others, my hearing is inadequate for telling me if my voice is true to the note I play. Some notes I cannot distinguish between. Partial solution? Sing and play LOUDER. My hearing devices make it possible, but they cannot make it easy.
You and I once discussed singing, in another context. Are you singing taanshi79? You might surprise yourself.
one more helpful trick i stumbled upon, chocolate kisses, so delicious and very difficult to unwrap over, makes you work hard to use fingers to get to that chocolate.
My dad rigged up his reward system with Hershey's chocolate. He walked with 2 canes and practiced laps around his house after dinner. At the corner of the kitchen, as he passed on to the next lap, he popped a chocolate square in his mouth. If you have to stop and try to unwrap a chocolate WHILE STANDING that will check off at least 2 dozen rehab exercise boxes, Sam.