Post by impatientsue on Jul 20, 2014 17:54:23 GMT -8
Hi DJ Thank you welcoming me to the forum! I don't see the neurosurgeon until October so as long as the symptoms don't get any worse I'm going to wait until then.
I wish it would let me choose more than 2. I chose Yes, then put in Bladder, but I wanted to put in thighs too, but I suppose "Yes" kind of covers everything.
I think it will interesting to find out how if many people actually suffer from spasticity with Cauda Equine Syndrome. When I was in my rehab spinal unit i explained to one of the physiotherapists that i experience spasms in my left ankle. The spasms were strong and would twist my foot and be very painful...often needing assistance to straighten it back.
Now, the spasms are in both ankles and in my toes...my toes bend back and my ankle stiffens and then twists either left or right...its painful but very annoying!
In addition i also experience bladder spasms when catheterising and in the back of my thighs.
I do notice that when my bladder is full the spasms are worse. Ive tried to assess wether the spasm are worse with activity such as upright mobility but i havent yet noticed a pattern.
Please participate in the poll and your comments will be more than welcome..if you replied yes then please tick one of the boxes to say where you experience the most..and then in your comment you can say where else you experience them
Lara, I am a new injury. 09/30/2015 L4L5 decompression for CESR. I have spasms in my right leg and foot, but when I brought it up to the neurosurgeon he said CES is a lower motor neuron injury which causes a flaccid response. I'm thinking then spasming must be caused by the non neurological affected muscles getting over worked and spasming as a result of a heavier burden. What do you know about this? Have so much to learn. Chrioli
Lara, I am a new injury. 09/30/2015 L4L5 decompression for CESR. I have spasms in my right leg and foot, but when I brought it up to the neurosurgeon he said CES is a lower motor neuron injury which causes a flaccid response. I'm thinking then spasming must be caused by the non neurological affected muscles getting over worked and spasming as a result of a heavier burden. What do you know about this? Have so much to learn. Chrioli
It is often said that lower motor neurone does not cause spasticity but i do think and believe personally that we do suffer from spasticity. The problem is that the nerves become significantly damaged the further from the spinal cord.
I certainly have spasms and my consultant accepts such and has offered me baclofen.
You are new to your injury indeed and i am sure you will get stronger yet too. Have you had any rehab?
So my experience is most likely differrent than anybody elses; I think it's safe to say that everyone would say the same about themselves. If you've read any of my previous posts then you know my mobility has recently totally returned(2013) after 14 years of being paralyzed on my right side, neck down. I spent significant time daily over the years manually stretching my muscles to keep them from shriveling up. This helped immensely, but atrophy had still set in and there was a difference in the size of my muscles from the left to the right side; there still is. So to the point, I get spasms in my groin area on my right side, especially early in the morning when I wake up. I previously had them all up and down my right side. They come from being worked and stretched beyond their normal capacity as they've shrunken but my regular daily exercise stretches them out. So after sitting for a while, or sleeping for hours, they heal and shrink again. So every day I get up it's a fight to stretch them out again. It's about 20 minutes of stretching to stand up straight fighting spasms all the while. Presently the only issues I have is my groin. Everything else has been restored to full elasticity. I actually had to pull and strain and sprain everything to achieve the results. I currently have my 2nd pulled groin muscle in a month. It's terribly painful, but if when it heals this time it's full elasticity is restored, then the pain is well worth it. I don't take any medication, just smoke a whole lotta bud. My only personal advice, if it's a muscular issue, is to stretch; stretch until it hurts and hold the stretched position until it doesn't hurt anymore, then try to stretch further until it hurts again. Hold. Repeat. Make it a daily routine. If you can't do it, have somebody else do it. That's all I got. The mix is new I just finished it; please enjoy!
Lara, I am a new injury. 09/30/2015 L4L5 decompression for CESR. I have spasms in my right leg and foot, but when I brought it up to the neurosurgeon he said CES is a lower motor neuron injury which causes a flaccid response. I'm thinking then spasming must be caused by the non neurological affected muscles getting over worked and spasming as a result of a heavier burden. What do you know about this? Have so much to learn. Chrioli
It is often said that lower motor neurone does not cause spasticity but i do think and believe personally that we do suffer from spasticity. The problem is that the nerves become significantly damaged the further from the spinal cord.
I certainly have spasms and my consultant accepts such and has offered me baclofen.
You are new to your injury indeed and i am sure you will get stronger yet too. Have you had any rehab?
Lara, I was told by my neurosurgeon I don't have anything that would cause spasm when I told him I have spasm that cause my right foot to turn so I can't plant it flat on the floor sometimes to walk and curling toes. Major spasm in back of thigh, calf, and to the right of my shin. I found this forum by googling CES and spasms!! So glad I found this and you confirmed that they are not in my head as he so convincingly would have me believe. Thank you!! And no, I have not had rehab. No one mentioned it. I am not confident my work related appointed provider knows what to do with me. Chrioli
Lara, I was told by my neurosurgeon I don't have anything that would cause spasm when I told him I have spasm that cause my right foot to turn so I can't plant it flat on the floor sometimes to walk and curling toes. Major spasm in back of thigh, calf, and to the right of my shin. I found this forum by googling CES and spasms!! So glad I found this and you confirmed that they are not in my head as he so convincingly would have me believe. Thank you!! And no, I have not had rehab. No one mentioned it. I am not confident my work related appointed provider knows what to do with me. Chrioli
chrioli, rest assured, you are experiencing spasms and that it is Cauda Equina related...I am going to be preparing factsheets which im hoping are used to pass on to healthcare professionals and one will be especially mentioning this fact and in this case the patient know better!
Ok so you need to be given input and support from a spinal unit ideally so go to see your doctor and ask for a referral to a spinal/rehab unit. Tell him/her that you have CES which is a spinal injury and say that you need specialist advice on how to manage your related health issues. Such as you bladder and bowel, you need expert rehab and advice on your spasms and any nerve pain that may develop. You need your upright mobility to be assessed, thats presuming you walk.