I think it will interesting to find out how if many people actually suffer from spasticity with Cauda Equine Syndrome. When I was in my rehab spinal unit i explained to one of the physiotherapists that i experience spasms in my left ankle. The spasms were strong and would twist my foot and be very painful...often needing assistance to straighten it back.
Now, the spasms are in both ankles and in my toes...my toes bend back and my ankle stiffens and then twists either left or right...its painful but very annoying!
In addition i also experience bladder spasms when catheterising and in the back of my thighs.
I do notice that when my bladder is full the spasms are worse. Ive tried to assess wether the spasm are worse with activity such as upright mobility but i havent yet noticed a pattern.
Please participate in the poll and your comments will be more than welcome..if you replied yes then please tick one of the boxes to say where you experience the most..and then in your comment you can say where else you experience them
Exactly! I told a doctor about my toes bending and moving on their own and he looked at me with disgust and told me that isn't possible! Ugh!
I've had really bad spasms with my bladder, sometimes it feels like a very severe UTI. I have no muscles in my calf and they do have a lot of spasms. My feet is curled up and I pretty much balance myself with my toe nails. I've been asked by two different Drs if I had broken my Achilles. I have also lost a lot of muscle in my butt and numb in my saddle area. I have not been told what SCI level I'm at, all I know is L2 is shattered and I have rods and screws in my back. After the hospital stay they sent me home without out patient therapy. I learned later that I have to do bowel program and do straight cath. I just wonder with the symptoms I have do I have Cauda Equina Syndrome?
I've had really bad spasms with my bladder, sometimes it feels like a very severe UTI. I have no muscles in my calf and they do have a lot of spasms. My feet is curled up and I pretty much balance myself with my toe nails. I've been asked by two different Drs if I had broken my Achilles. I have also lost a lot of muscle in my butt and numb in my saddle area. I have not been told what SCI level I'm at, all I know is L2 is shattered and I have rods and screws in my back. After the hospital stay they sent me home without out patient therapy. I learned later that I have to do bowel program and do straight cath. I just wonder with the symptoms I have do I have Cauda Equina Syndrome?
donnajr,firstly, welcome to the forum Well in regards to the nerves that are affected at your L2, it is possible that you have Cauda Equine Syndrome because this is the typical area that is responsible for CES.
Your neurosurgeon would confirm this for you, have you read your discharge notes from hospital? They may mention if you do although your symptoms sound typical for CES.
Ideally it would help you personally if you knew and of course medically so if i was you I would make a trip back to the consultant and discuss this with him/her.
No it was not mentioned in my discharged paper. I just moved out of Spokane where that dr was and now live in Seattle area. I just saw the symptoms of CSE and like oh my god I got most of the symptoms being described here. I don't know what caused L2 to shattered. I was in a really bad car accident 2 1/2 years ago. I'm also hearing impaired, so I probably missed out so much of what the Dr was trying to tell me at the hospital. All I can say is when I went home I was so totally shocked with my body with what it was doing. I can't tell if I needed to go to the bathroom.
Yeah that's tough donnajr, it's never easy dealing with something you have no real answers to. The car accident could be the culprit, never know. Did you go to a hospital and get a scan at the time?
Yes I did go to the hospital and that's how they found out my L2 being broken, they put rods in. I had to Learn how to walk all over again. I stayed at the hospital for 3 weeks and they released me to go home. I kept asking the nurse why I can't feel the need to go to the bathroom, they said that it was normal cuz I had the catheter for to long.
Yes I did go to the hospital and that's how they found out my L2 being broken, they put rods in. I had to Learn how to walk all over again. I stayed at the hospital for 3 weeks and they released me to go home. I kept asking the nurse why I can't feel the need to go to the bathroom, they said that it was normal cuz I had the catheter for to long.
Ohh I see, so you just have a normal spinal cord injury. I'm really surprised they didn't send you to a rehab center and didn't prepare you enough for discharge! Which hospital did you go to?
Yes I did go to the hospital and that's how they found out my L2 being broken, they put rods in. I had to Learn how to walk all over again. I stayed at the hospital for 3 weeks and they released me to go home. I kept asking the nurse why I can't feel the need to go to the bathroom, they said that it was normal cuz I had the catheter for to long.
donnajr, I think you are within your right to ask for input with a specialist unit who focus on Spinal Cord Injury and associating issues. I think it is highly unlikely that it can ever be 'normal' to need to catheter for whatever reason.
Damage to the nerves will cause bladder and bowel issues so you need to understand fully what your issues are and what you are actually dealing with.
Seems like a big hospital with a big hospital network. I have no idea why they didn't send you to rehab or educate you more about your injury. I think you should go back and consult with a/your neurosurgeon!
I only got small spasms when I was first injured, but they were bothersome enough to have to take Baclofen everyday. As time went on, the nerve pain started and it made my spasms worse; I think there is a link between radiculopathy/neuropathy "shocks" and muscle spasms. After 2 years, the Baclofen stopped working, & I now use Zanaflex (tizanidine) twice a day with great results. I still occasionally get spasms, but I only get strong, throw-me-out-of-my-chair spasms if I have a UTI or a bruise on my bum or tailbone. Otherwise, my spasms are very mild and well controlled by Zanaflex, which is a prescription muscle relaxer. I find that massaging my legs helps my tonic spasms, as well as eating foods high in potassium, like bananas or potatoes.