Inspired Spinal Cord Injury Support Forum

Lαrα Global Moderator STAFF Posts: 7,350 Post Likes Received: 3,100 Date Joined: August 2013 Injury: CES Date Injured: March 2011 Member is: Offline Send PM	The Benefits of Water Therapy Jun 12, 2014 6:02:20 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Lαrα on Jun 12, 2014 6:02:20 GMT -8 fishkybizniz thats very kind of you It sounds like you have the equipment you need...I understand what you mean about losing muscle power in your legs..do you ever use a chair?

fishkybizniz
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The Benefits of Water Therapy Jun 14, 2014 13:51:42 GMT -8

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Post by fishkybizniz on Jun 14, 2014 13:51:42 GMT -8

I don't use my chair in my home, just the Walker. I'm being assaulted with severe spasticity right now. My week day care giver and husband are with me when I need to get up. Zaps all my strength. Cheats all my peeps I know and those I don't out of compliments, well wishes, being goofy and anything I can do to make their day a better one. Speaking of, I need to tune out. My body insists on a nap. I do not remember being voted off the board??

cbdives Advanced Member Posts: 735 Post Likes Received: 490 Date Joined: November 2013 Injury: Peripheral Neuropathy Date Injured: Progressive Member is: Offline Send PM	The Benefits of Water Therapy Jun 14, 2014 15:29:56 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by cbdives on Jun 14, 2014 15:29:56 GMT -8 Anyway Son & I going tomorrow. The beach is flat!
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wavewolf
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The Benefits of Water Therapy Jun 14, 2014 22:48:32 GMT -8

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Post by wavewolf on Jun 14, 2014 22:48:32 GMT -8

Jun 10, 2014 4:58:00 GMT -8 DJ said:

wavewolf & Butiki, do you think it's still risky to get into a pool with the bowel and bladder issues?

For me, yes. Flaccid bowel and bladder (lower motor neuron problem) means that I cannot control exit, and efficacy of diapers or pads in pool is most doubtful.

Hoea ra!

wavewolf
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The Benefits of Water Therapy Jun 14, 2014 23:04:59 GMT -8

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Post by wavewolf on Jun 14, 2014 23:04:59 GMT -8

Jun 10, 2014 16:38:00 GMT -8 fishkybizniz said:

Dear wavewolf, I used crutches before I went into the hospital with my body under non stop assault I believe the doctors called a hyper spastic escaperation. Not sure if I have that name right. After I was too weak for the crutches so I used a Walker. Hospital docs told me it would be a minimum of of six months maybe more before I could qualify to get off some of the meds. They explained the spasticity makes recovery difficult because the spasticity uses up my energy going 24/7. I keep pushing and get knocked on my butt. The good news, my set backs don't take away my strength. Stamina is what we're working on now. It's a bit of a dance to guess what I can get away with. Right now I'm on bed rest from over doing it. It's obvious my nerves are not ready to be seeing doctors 3 times a week with physical therapy on top. We're exploring what in home therapy is available. The hospital I go to for out patient will open a nuro science wing this fall. I'm looking forward to that guessing my pain management doctor will have a treasure of talent we can tap to help me along.

I have learned that moving between various assistive devices improves my stamina and gives some body parts a break while taxing others, so the energy drain is less or maybe just better spread around. Spasticity can have a benefit, which is maintaining muscle tone. But if nerves are firing so hard that it causes pain, or you're constantly trying to control weird movements so your friends aren't scared (been there, done that!), then it's probably time to try some meds. I found that a low dose of Baclofen has given me a balance of less pain and physical stress, without weakening my muscles so I cannot do the most possible. I started taking Bovine Colostrum supplement for immune support and healing of GI tract, and a very lovely side effect was greater muscle strength. I mention these two things as relatively inexpensive and quite helpful.

BTW, to tag another forum member in a reply, type "@" before the user name. It will show up as fishkybizniz, and you will get a notification then.

Hoea ra!

DJ
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The Benefits of Water Therapy Jun 15, 2014 5:41:28 GMT -8

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Post by DJ on Jun 15, 2014 5:41:28 GMT -8

Jun 14, 2014 22:48:32 GMT -8 wavewolf said:

For me, yes. Flaccid bowel and bladder (lower motor neuron problem) means that I cannot control exit, and efficacy of diapers or pads in pool is most doubtful.

Oh I know what you mean wavewolf

Maybe one day if you've have a good bowel routine you can try getting into the pool.

Jun 14, 2014 23:04:59 GMT -8 wavewolf said:

BTW, to tag another forum member in a reply, type "@" before the user name. It will show up as fishkybizniz, and you will get a notification then.

Thanks for suggesting that wavewolf! It's a very useful feature fishkybizniz and if you want to read more about the feature, you can do so here - www.inspiredsciforum.com/thread/88/tagging-members

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fishkybizniz
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The Benefits of Water Therapy Jun 15, 2014 16:41:02 GMT -8

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Post by fishkybizniz on Jun 15, 2014 16:41:02 GMT -8

Hi all, sorry for the late reply. I'm a mess right now. As I shared when joining, I'm a rookie. Just suffered a set back. My cord thew a hissy fit much like (too much like! ) my eight days of hell in the hospital. Had to see my primary doc and my dumb luck to have a kidney infection joining in to make it as pitiful as possible.

"Everything is OK in the end. If it's not OK, then it's not the end. " author : I forgot. Must be the drugs!

wavewolf Advanced Member Posts: 1,407 Post Likes Received: 1,159 Date Joined: July 2013 Injury: T9 incomplete + other neurological Date Injured: 10 February 2009 Member is: Offline Send PM	The Benefits of Water Therapy Jun 15, 2014 20:30:21 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by wavewolf on Jun 15, 2014 20:30:21 GMT -8 fishkybizniz, So sorry to hear of these medical trials you are going through. Hope you can get the infection and pain under control very soon. Please, no worries about "rookiness"--we all had to learn!!!!
	Hoea ra!

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The Benefits of Water Therapy Jun 15, 2014 23:32:01 GMT -8

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Post by Lαrα on Jun 15, 2014 23:32:01 GMT -8

Jun 15, 2014 16:41:02 GMT -8 fishkybizniz said:

Hi all, sorry for the late reply. I'm a mess right now. As I shared when joining, I'm a rookie. Just suffered a set back. My cord thew a hissy fit much like (too much like! ) my eight days of hell in the hospital. Had to see my primary doc and my dumb luck to have a kidney infection joining in to make it as pitiful as possible.

"Everything is OK in the end. If it's not OK, then it's not the end. " author : I forgot. Must be the drugs!

Oh dear..not good! I hope you feel better soon. fishkybizniz, why dont you post up an introduction so members can welcome you to the forum

Introductions

Let me know if you need any help

wavewolf
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The Benefits of Water Therapy Jun 16, 2014 0:15:54 GMT -8

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Post by wavewolf on Jun 16, 2014 0:15:54 GMT -8

Jun 14, 2014 22:48:32 GMT -8 wavewolf said:

Jun 10, 2014 4:58:00 GMT -8 DJ said:

wavewolf & Butiki, do you think it's still risky to get into a pool with the bowel and bladder issues?

For me, yes. Flaccid bowel and bladder (lower motor neuron problem) means that I cannot control exit, and efficacy of diapers or pads in pool is most doubtful.

fishkybizniz shared this link with me, so wondering if I might have a chance!
www.northshorecare.com/swim-diaper-discovery.html

Hoea ra!

dodahman
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The Benefits of Water Therapy Oct 10, 2014 11:50:26 GMT -8

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Post by dodahman on Oct 10, 2014 11:50:26 GMT -8

Ok, I am inspired to get back in the pool. Thanks to everyone who has posted and who helps keep the site so we can post. Thank you.

I have been going to the gym for 3 months, and saying that I wanted to get in the pool as soon as I can figure out how to physically do that. Screw waiting. I am going to try something and see if it works. My rt side is much weaker than left and my gait/posture awful. Standing in water sounds perfect, and has sounded perfect for a while. You guys have made me realize, I need to try, not just think about trying.

I too have issues with feeling pretty good, then immediately overdoing. My friends say I will learn , but ........

Anyway, good luck to all, and don't stop trying something....Doing anything that might improve your situation will be good for your mental health, and thus your physical health.

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The Benefits of Water Therapy Oct 12, 2014 1:44:16 GMT -8

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Post by Lαrα on Oct 12, 2014 1:44:16 GMT -8

Oct 10, 2014 11:50:26 GMT -8 dodahman said:

Ok, I am inspired to get back in the pool. Thanks to everyone who has posted and who helps keep the site so we can post. Thank you.

I have been going to the gym for 3 months, and saying that I wanted to get in the pool as soon as I can figure out how to physically do that. Screw waiting. I am going to try something and see if it works. My rt side is much weaker than left and my gait/posture awful. Standing in water sounds perfect, and has sounded perfect for a while. You guys have made me realize, I need to try, not just think about trying.

I too have issues with feeling pretty good, then immediately overdoing. My friends say I will learn , but ........

Anyway, good luck to all, and don't stop trying something....Doing anything that might improve your situation will be good for your mental health, and thus your physical health.

This is so good to hear dodahman! Let us know how you get on

You go for it!!

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	The Benefits of Water Therapy Oct 14, 2014 3:26:57 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Oct 14, 2014 3:26:57 GMT -8 That's excellent dodahman! Have fun

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The Benefits of Water Therapy May 8, 2015 11:23:53 GMT -8

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Post by dodahman on May 8, 2015 11:23:53 GMT -8

well that was in Oct of last year I promised ya'll (and myself) that I was going to the pool. OK with SCI, sometimes the clocks stands still , or even turn backwards for me, if only measuring progress. 'There will be setbacks' I was told by a trusted physical therapy person. She was right. And it is good to know there will be, so you don't get discouraged too terribly when it happens.

The good news: I finally made it today to the pool. I was able to get back in the car when I was through. I only stayed 15 minutes, but did about what I had hoped to the first visit. I have been going to this gym for a long while(prior to injury) and it was good to see folks who were encouraging and supportive. I think it will be very positive for me as long as I don't try too much too soon.

Best Regards to all,
I get lots of inspiration and information from this forum. thanks to everyone who has contributed in both large and small ways.

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DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	The Benefits of Water Therapy May 9, 2015 5:23:58 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on May 9, 2015 5:23:58 GMT -8 Congrats dodahman, that's excellent news! There'll always be setbacks with spinal cord injuries but we have to keep pushing forward and that's what you've done. I think I'm ready to get into a pool/beach this year too!

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The Benefits of Water Therapy

Post by Lαrα on Jun 12, 2014 6:02:20 GMT -8

Post by fishkybizniz on Jun 14, 2014 13:51:42 GMT -8

Post by cbdives on Jun 14, 2014 15:29:56 GMT -8

Post by wavewolf on Jun 14, 2014 22:48:32 GMT -8

Post by wavewolf on Jun 14, 2014 23:04:59 GMT -8

Post by DJ on Jun 15, 2014 5:41:28 GMT -8

Post by fishkybizniz on Jun 15, 2014 16:41:02 GMT -8

Post by wavewolf on Jun 15, 2014 20:30:21 GMT -8

Post by Lαrα on Jun 15, 2014 23:32:01 GMT -8

Post by wavewolf on Jun 16, 2014 0:15:54 GMT -8

Post by dodahman on Oct 10, 2014 11:50:26 GMT -8

Post by Lαrα on Oct 12, 2014 1:44:16 GMT -8

Post by DJ on Oct 14, 2014 3:26:57 GMT -8

Post by dodahman on May 8, 2015 11:23:53 GMT -8

Post by DJ on May 9, 2015 5:23:58 GMT -8

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