I get to wait another month before I can lift anything, and that includes my wheelchair, therefore, means I cannot go anywhere alone. Independence=ZERO
I get to wait another month before I can lift anything, and that includes my wheelchair, therefore, means I cannot go anywhere alone. Independence=ZERO
Wow, that's terrible!
I guess on the plus side, you get to spend more time here
I get to wait another month before I can lift anything, and that includes my wheelchair, therefore, means I cannot go anywhere alone. Independence=ZERO
Wow, that's terrible!
I guess on the plus side, you get to spend more time here
True, and I can focus on getting the videos I want to post done. I found out earlier this evening that Medicaid no longer covers Norco (Hydrocodone-Acetimenophen) in 10mg-325mg strength, which my surgeon wrote me a Rx for for 200! I've had an old friend and my future-boyfriend-hopeful-future-husband offer to pay for it, but I don't know who to accept the gift from...
Can you get the surgeon to change the prescription? I know thats not easy, after my surgery in June the surgeon completely ignored (though in his defense, he appeared to have a hearing problem and may have not heard everything I said) me telling him I'm in a pain management program and cannot take narcotics not approved by my pain physician, and since I'm already ON narcotics I don't know if I could add percocet to them... and sent me home with a percocet script. Plus I had a complication, so I was in excruciating pain and couldn't take anything (in addition to my chronic meds, which we all know don't affect acute pain) at all. I tried for 3 days to get an answer from my pain management facility, but didn't yet and gave up trying once the pain was going down.
I have a genetic connective tissue disorder called EDS with neuro complications
More videos sound great Knight! If you know that you can pay it back, I'd say go with your friend.
I decided to go with my future-boyfriend, since the friend has just recently re-entered my life after she had blocked me from any contact. Not much trust there, so I went with the person I know isn't going to ask for anything from me except my friendship and possible future unconditional love
Can you get the surgeon to change the prescription? I know thats not easy, after my surgery in June the surgeon completely ignored (though in his defense, he appeared to have a hearing problem and may have not heard everything I said) me telling him I'm in a pain management program and cannot take narcotics not approved by my pain physician, and since I'm already ON narcotics I don't know if I could add percocet to them... and sent me home with a percocet script. Plus I had a complication, so I was in excruciating pain and couldn't take anything (in addition to my chronic meds, which we all know don't affect acute pain) at all. I tried for 3 days to get an answer from my pain management facility, but didn't yet and gave up trying once the pain was going down.
Medicaid is just sick of paying for pain pills for people I guess, because they changed all their rules about strengths. Nobody can get Norco 10's or Percocet 10's anymore without paying out-of-pocket. My guy paid for my Norco 10's today because I would rather have 325mg of acetaminophen going into me every 4 hours than 650mg every 4 hours. They act like taking two of the 5-325mg ones is the same as taking a 10-325mg one, but the problem that I have with it is that acetaminophen causes liver damage, and taking 650mg every 4 hours adds up to 3900mg of acetaminophen per day! "You should not take more than 4000 mg of acetaminophen a day. Taking more, especially 7000 mg or more, can lead to a severe overdose if not treated." (http://www.nlm.nih.gov/medlineplus/ency/article/002598.htm)
Yea I'm totally with you on the less tylenol. I'm on medicaid as well, I take dilaudid and morphine as my daily narcotics. I took ultram (tramadol) for over 10 years though, and whenever I had anything acute people wanted to prescribe me ultracet. I always refused it. I'd rather add the tylenol as needed then be taking it from the start, especially since I also have chronic headaches and tylenol is all I can take for them (though I have imitrex for when its a migraine). I have a history of ulcers and NSAIDs just kill my stomach, I took them daily for too many years. I was given a script for toradol from the ER in June on my second visit for my kidney stone and infection. One day I couldn't stand the pain and didn't want to be back in the ER (where they'd been giving me IV toradol with IV zofran) so I took one... Spent the next day nearly ODing on zofran I was so sick. Threw the rest of the pills out, no thank you! At least the IV toradol is an option though, as far as I know it didn't damage my stomach and I'd been given it IM for migraines before as well without issue. I feel a little more comfortable having a non narcotic option available for severe pain so it won't interfere with my management protocol.
I have a genetic connective tissue disorder called EDS with neuro complications
More videos sound great Knight! If you know that you can pay it back, I'd say go with your friend.
I decided to go with my future-boyfriend, since the friend has just recently re-entered my life after she had blocked me from any contact. Not much trust there, so I went with the person I know isn't going to ask for anything from me except my friendship and possible future unconditional love
I decided to go with my future-boyfriend, since the friend has just recently re-entered my life after she had blocked me from any contact. Not much trust there, so I went with the person I know isn't going to ask for anything from me except my friendship and possible future unconditional love
Oh ok I see, I thought it was a close friend.
I thought she was a close friend when she stole my favorite hat and bashed me on Facebook (I don't have proof, but I'm 95% sure it was her, since the post was on a Confessions page and it was posted the day after she blocked me from her facebook page, her cellphone, and then made her boyfriend block me also).
I thought she was a close friend when she stole my favorite hat and bashed me on Facebook (I don't have proof, but I'm 95% sure it was her, since the post was on a Confessions page and it was posted the day after she blocked me from her facebook page, her cellphone, and then made her boyfriend block me also).
Oh I see, well yeah, I guess it's best if you don't trust her then but it was nice she offered.
I have been having kind of a hard time lately realizing things about my body that have changed since this last surgery. I have lost most sensation in my legs and my back. I did a color-by-number (it was like 1st grade again!) of dermatomes, and made some saddening discoveries since the surgery. I hoped that after a couple months, I would regain sensation in spots I lost after the surgery. I have not. On my left side, if you look at the dermatome levels I have marked where I lost sensation, I have damage all the way up to T10! My right side has maintained its T12 level, but I have lost my L3-4 dermatomes, which I had prior to surgery. My legs are completely numb, aside from radiculopathy and neuropathy. I only have sensation in an oval shape on the top of my thigh. I no longer have sensation in my hips, and part of my belly. I lost about 20% of the genital sensation I had, now leaving me with sensation only on the right side and part of the top on the inside. (Sorry if that's TMI, but it is relevant. I don't mind sharing something like that to my SCI buddies because you understand.) I am now left with only 45% of my sensation down there, and only about 30% sensation in my anus, where I had about 70% prior to the surgery.
I just thought I would share because it has saddened me that I lost so much sensation from a surgery that was supposed to "fix" me. I regained function in my left leg, but lost sensation. I cannot walk still because my right knee continues to dislocate every time I stand. They don't want to do surgery on it because it would take too long to heal, and their defense is that I have and use a wheelchair, so why do I need my knee fixed to walk? I am going to see if my physical therapist has any of the good, strong Kinesiology tape I could get to support my knee. I am hoping to get a standing frame in the future, but I am hoping for the TiLite TRA first. I am going to try and start a fundraiser so that I can get it and hopefully have less pain because I will have a properly fitting wheelchair.
Just wanted to update you guys on that. I will share a photo of my color-by-number once I get my scanner to work again.
I have been having kind of a hard time lately realizing things about my body that have changed since this last surgery. I have lost most sensation in my legs and my back. I did a color-by-number (it was like 1st grade again!) of dermatomes, and made some saddening discoveries since the surgery. I hoped that after a couple months, I would regain sensation in spots I lost after the surgery. I have not. On my left side, if you look at the dermatome levels I have marked where I lost sensation, I have damage all the way up to T10! My right side has maintained its T12 level, but I have lost my L3-4 dermatomes, which I had prior to surgery. My legs are completely numb, aside from radiculopathy and neuropathy. I only have sensation in an oval shape on the top of my thigh. I no longer have sensation in my hips, and part of my belly. I lost about 20% of the genital sensation I had, now leaving me with sensation only on the right side and part of the top on the inside. (Sorry if that's TMI, but it is relevant. I don't mind sharing something like that to my SCI buddies because you understand.) I am now left with only 45% of my sensation down there, and only about 30% sensation in my anus, where I had about 70% prior to the surgery.
I just thought I would share because it has saddened me that I lost so much sensation from a surgery that was supposed to "fix" me. I regained function in my left leg, but lost sensation. I cannot walk still because my right knee continues to dislocate every time I stand. They don't want to do surgery on it because it would take too long to heal, and their defense is that I have and use a wheelchair, so why do I need my knee fixed to walk? I am going to see if my physical therapist has any of the good, strong Kinesiology tape I could get to support my knee. I am hoping to get a standing frame in the future, but I am hoping for the TiLite TRA first. I am going to try and start a fundraiser so that I can get it and hopefully have less pain because I will have a properly fitting wheelchair.
Just wanted to update you guys on that. I will share a photo of my color-by-number once I get my scanner to work again.
Hey, that sucks Knight, sorry to hear that, do you feel with some more time you might improve some. That thing with the knee sounds like bulls***, Its like not fixing a car because you can walk, rediculous!! Doctors……they should all have to be on the other side of the crap they hand out for awhile.