Inspired Spinal Cord Injury Support Forum

lin Advanced Member Posts: 60 Post Likes Received: 68 Date Joined: July 2013 Injury: EDS, Dysautonomia, Primary Myoclonus Member is: Offline Send PM	An Update About My Spine Aug 15, 2014 21:52:20 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by lin on Aug 15, 2014 21:52:20 GMT -8 If your knee is dislocating, tape isn't going to be enough. have you ever tried a hinged knee brace? Especially one that allows you to set it to stop at a specific angle to prevent hyperextension. I have a nice one from Don Joy.
	delboy likes this I have a genetic connective tissue disorder called EDS with neuro complications

Knight Advanced Member Posts: 1,407 Post Likes Received: 773 Date Joined: August 2013 Injury: T10 Paraparetic with CES & CMS Date Injured: July 21, 2012 Member is: Offline Send PM	An Update About My Spine Aug 16, 2014 8:39:51 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Knight on Aug 16, 2014 8:39:51 GMT -8 DJ, it's been almost 2 months since the surgery. lin, sadly, I am allergic to latex and the neoprene stuff they make knee braces out of.
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lin
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An Update About My Spine Aug 16, 2014 16:03:50 GMT -8

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Post by lin on Aug 16, 2014 16:03:50 GMT -8

I'm not familiar with any using latex, I really don't see this type with neoprene. With mine theres a bit of terry cloth with the straps, and some sort of nylon blend in the lining. Some people use sleeves under the knee braces, I don't when I'm wearing it against my skin. But since I rarely wear shorts and don't use the brace when I'm in my chair in a skirt or dress it just goes over my pants. I'm getting a new one soon, here's my current one

With the new one I'm wanting an even lower profile one like

DJ, kilg0retr0ut, and 1 more like this

I have a genetic connective tissue disorder called EDS with neuro complications

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	An Update About My Spine Aug 17, 2014 6:08:45 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on Aug 17, 2014 6:08:45 GMT -8 Aug 16, 2014 8:39:51 GMT -8 Knight said: DJ, it's been almost 2 months since the surgery. Knight, has it been getting better, worse or staying the same?

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An Update About My Spine Aug 17, 2014 13:20:52 GMT -8

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Post by Knight on Aug 17, 2014 13:20:52 GMT -8

Aug 17, 2014 6:08:45 GMT -8 DJ said:

Aug 16, 2014 8:39:51 GMT -8 Knight said:

DJ, it's been almost 2 months since the surgery.

Knight, has it been getting better, worse or staying the same?

It's the same amount of pain, just different. Instead of pain of bones grinding, it's this constant stiffness and pressure, and I keep forgetting that I can't twist anymore. My nerve pain is out of control, and I have lost sensation and function in the left side of my torso. Here is a color-by-number of my dermatomes:

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kilg0retr0ut Advanced Member Posts: 2,507 Post Likes Received: 1,862 Date Joined: July 2013 Injury: L4/5 Cauda Equina Date Injured: 7-15-10 Member is: Offline Send PM	An Update About My Spine Aug 17, 2014 16:43:37 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by kilg0retr0ut on Aug 17, 2014 16:43:37 GMT -8 I thought you'd look different naked Knight. Sorry they can't get a handle on your pain.
	Butiki likes this L4/5 CES

Butiki Advanced Member Posts: 2,270 Post Likes Received: 1,154 Date Joined: July 2013 Injury: L 3 ASIA B CES Date Injured: 16/11/2012 Member is: Offline Send PM	An Update About My Spine Aug 17, 2014 22:59:43 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by Butiki on Aug 17, 2014 22:59:43 GMT -8 Aug 17, 2014 16:43:37 GMT -8 kilg0retr0ut said: I thought you'd look different naked Knight. Sorry they can't get a handle on your pain. Lol
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An Update About My Spine Aug 18, 2014 16:24:56 GMT -8

Quote

Post by DJ on Aug 18, 2014 16:24:56 GMT -8

Aug 17, 2014 13:20:52 GMT -8 Knight said:

It's the same amount of pain, just different. Instead of pain of bones grinding, it's this constant stiffness and pressure, and I keep forgetting that I can't twist anymore. My nerve pain is out of control, and I have lost sensation and function in the left side of my torso. Here is a color-by-number of my dermatomes:

Cool diagram Knight! That's really strange, I hope it gets better as things heal up internally!

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An Update About My Spine Aug 20, 2014 11:03:56 GMT -8

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Post by Knight on Aug 20, 2014 11:03:56 GMT -8

Aug 17, 2014 22:59:43 GMT -8 Butiki said:

Aug 17, 2014 16:43:37 GMT -8 kilg0retr0ut said:

I thought you'd look different naked Knight. Sorry they can't get a handle on your pain.

Lol

wow, I didn't even notice this comment until now! That tells you how out of it I've been. I now have a fly attacking me.

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An Update About My Spine

Post by lin on Aug 15, 2014 21:52:20 GMT -8

Post by Knight on Aug 16, 2014 8:39:51 GMT -8

Post by lin on Aug 16, 2014 16:03:50 GMT -8

Post by DJ on Aug 17, 2014 6:08:45 GMT -8

Post by Knight on Aug 17, 2014 13:20:52 GMT -8

Post by kilg0retr0ut on Aug 17, 2014 16:43:37 GMT -8

Post by Butiki on Aug 17, 2014 22:59:43 GMT -8

Post by DJ on Aug 18, 2014 16:24:56 GMT -8

Post by Knight on Aug 20, 2014 11:03:56 GMT -8

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