“CES occurs in approximately 2% of cases of herniated lumbar discs and is one of the few spinal surgical emergencies.”
We are often told that Cauda Equina is a rare syndrome, but how rare is it?
Finding statistical information isn't easy but i did find an article published in 2012 by the British Association of Spine Surgeons. It states that per every 1 million people there are approximately between 6-10 people with Cauda Equina Syndrome.
In the UK there are currently approximately 40,000 people living with Spinal Cord Injuries (300,000 in the US)
We have a population of 63 million in the UK. The figures at least show that CES is a rare spinal condition compared to other Spinal Cord Injuries.
I remember when i was first diagnosed with CES and looked for info on the net, it seemed to me that the condition was in fact very rare with only a few people suffering with it worldwide even. Now i find that isn't the case as the numbers are higher than i originally thought.
The main problem i found was actually the lack of information about the condition. Information can be sought about the neurological nature of the condition but not necessarily the effects of it and the complications.
There needs to be a source of information that helps sufferers out there and here at Inspired we are going to work hard to provide as much as is possible to find.
Our CES forum will develop into an informative resource center which can be a reference point for all and our members imput, sharing of their experiences will be a vital part of this process.
Lαrα, thanks for the information. Reading this made me realize how big population wise USA is and how many people live there with spinal cord injuries. Also, it doesn't seem like CES is as rare as they say it is. We actually have a high number of CES members on here!
Post by kilg0retr0ut on Sept 2, 2013 6:21:31 GMT -8
I think this site will be able to help people with CES like no other. Lara having with CES has been great for this site, not good for her, but you know what I mean. People with CES have been looking for a place just like this. I hope our numbers grow and people with fresh injury's have a place to get real info. I see this as the #1 site for CES info. My thanks go out to DJ and Lara for all they have done and are doing.
I think this site will be able to help people with CES like no other. Lara having with CES has been great for this site, not good for her, but you know what I mean. People with CES have been looking for a place just like this. I hope our numbers grow and people with fresh injury's have a place to get real info. I see this as the #1 site for CES info. My thanks go out to DJ and Lara for all they have done and are doing.
Thankyou for saying kilg0retr0ut...we are certainly working on it!
Post by ladylimpsalot on Sept 2, 2013 8:05:57 GMT -8
I had been wondering how many people were in the United States, and there are approximately 314 million. And there are 300,000 folks with spinal injury. That's a bunch. Doesn't that mean that somewhere near 1 in 10 have such an injury? I need to check my math!
I also wonder if that figure includes all injury, including just herniated discs, with or without pain, and how many of those injuries are disabling.
Often people can have herniated discs or degenerated discs and not even know it. It is normal for discs to deteriorate with age.
I had been wondering how many people were in the United States, and there are approximately 314 million. And there are 300,000 folks with spinal injury. That's a bunch. Doesn't that mean that somewhere near 1 in 10 have such an injury? I need to check my math!
I also wonder if that figure includes all injury, including just herniated discs, with or without pain, and how many of those injuries are disabling.
Often people can have herniated discs or degenerated discs and not even know it. It is normal for discs to deteriorate with age.
The general statistic is for every one million there are 6-10 people with CES...
Post by ladylimpsalot on Sept 2, 2013 8:24:02 GMT -8
The most frequent injuries of the thoracolumbar region are to the conus medullaris and the cauda equina, particularly between T12 and L2.[4] Of these two syndromes, CES is the more common.[4] CES mainly affects middle-aged individuals, particularly those in their forties and fifties, and presents more often in men.[4][5][14] It is not a typical diagnosis, developing in only 4 to 7 out of every 10,000 to 100,000 patients, and is more likely to occurproximally.[4][3][5] Disc herniation is reportedly the most common cause of CES, and it is thought that 1 to 2% of all surgical disc herniation cases result in CES.[4][3]
Thanks Lara! I love Wikipedia. This says that 4 to 7 out of every 10,000 to 100,000 patients have it. So precise!
6-10 people in a million makes it easier to fathom.
I think this site will be able to help people with CES like no other. Lara having with CES has been great for this site, not good for her, but you know what I mean. People with CES have been looking for a place just like this. I hope our numbers grow and people with fresh injury's have a place to get real info. I see this as the #1 site for CES info. My thanks go out to DJ and Lara for all they have done and are doing.
I am so glad to have found this group. It is smaller and more personal than others that I use.
Thanks for the nice comments kilg0retr0ut and ladylimpsalot! Our aim for this forum was to have a community where everyone feels comfortable and has the help, support and info they need
That means about 1 in 100,000. That is rare. I am so glad to have found this group. It is smaller and more personal than others that I use.
I am glad you found us too ladylimpsalot.....Yes we are small at the moment, we are almost two months old now and have a steady increase of members joining but we will still maintain a personal feel to the forum with our members
Post by ladylimpsalot on Aug 13, 2014 13:01:54 GMT -8
It may be rare, but it seems like more and more people are experiencing it. I am shocked by how many are coming to the Facebook page, it might just be that folks just find out that there is information about a little known disability and they come to places like this one, and to the groups on Facebook. Together we are looking at the scant information about CES and trying to help one another.
Not that I know of. Maybe we ought to create such.
Maybe we should. We'd need help. Maybe a chat with Emmat would be helpful. Maybe DJ would help on the tech side, or connect us with someone who could? I think the U.K. is way ahead of us on CES awareness. I think it's important that we follow their lead.