The twitches that youre having could be in response to the muscle soreness.......I dont suffer much from spasms but Ive found over the years that if I strain a muscle or bruise myself, then I can tend to twitch more. The muscles will heal, doctors will tell you to rest them but I used to be a professional sportsman and I'll tell you that muscles need to be kept working, not to overly strain them but to keep them working. If the muscle soreness is really bad, then taking anti inflammatories could help
Youre doing so well Sam.... I'm a C5/6 quad walker, had my accident 19 years ago (tomorrow is the anniversary)......while youre improving, dont quit...but just be aware that there will come a day when there's no more improvement to be had, you just have to find your limit and work hard to get there...for me....I was so determined to be 100% again that when I reached that plateau, it finally hit home that I was never going to be 'normal' again...that ended up being a very hard time for me.
That is an interesting comment. From the time of my accident (3 months ago tomorrow) my friends and family have been pushing the “happy thoughts and prayers” on me and saying I will be whole again. They didn’t like it when I challenged them and said “what if I’m not?”. The councillor in the rehab centre told me that I had a healthy attitude. It’s good to have hope with a sprinkling of reality.
I understand your colored font area treeguy that I will probably never be normal again, I realize that but does have to be so painful and sore to try and get back to 70% of what I used to be? its ed if it is true. don't get me wrong our bodies are amazing and wonderful but this is still bulls***.
another amazing awakening happened yesterday, my left hand was able to close in a half fist. my left hand was probably the most impaired part of body. all fingers except thumb and index I had no control or dexterity at all, was able to move all fingers on left hand at once yesterday for first time since injury. it was small movement but still exciting, maybe in a year or so I may be able to keyboard or type with 2 hands again. small advancements like this keep me pushing forward.
Sam, thats fantastic news!...I really hope your body keeps on having these improvements, I remember the first time when I got some movement back (about 5weeks after accident) and every improvement after that was exciting. Its great that you and Youngun can do squats, Ive never been able to, I used to be able to get off the ground without help but after 20years and now 15kgs overweight, I need something to hold onto to get back onto my feet from the ground. By the way...dont be too tough on yourself...building up muscles is a good thing to do but they arent all the reason for not recovering as you'd like, its all down to how those messages get through your spinal cord now... I also used to think that if I built up enough muscle, it would make me walk better and better but even after getting to a point of being very fit (I used to be a pro sportsman so know about muscle), I still could only walk a certain distance and then would need to stop, I wasnt tired but I'd still have to stop. And I'm still that way now...I walk then stop for a few seconds and start again, its just how it is.
The twitches that youre having could be in response to the muscle soreness.......I dont suffer much from spasms but Ive found over the years that if I strain a muscle or bruise myself, then I can tend to twitch more. The muscles will heal, doctors will tell you to rest them but I used to be a professional sportsman and I'll tell you that muscles need to be kept working, not to overly strain them but to keep them working. If the muscle soreness is really bad, then taking anti inflammatories could help
Youre doing so well Sam.... I'm a C5/6 quad walker, had my accident 19 years ago (tomorrow is the anniversary)......while youre improving, dont quit...but just be aware that there will come a day when there's no more improvement to be had, you just have to find your limit and work hard to get there...for me....I was so determined to be 100% again that when I reached that plateau, it finally hit home that I was never going to be 'normal' again...that ended up being a very hard time for me.
That is an interesting comment. From the time of my accident (3 months ago tomorrow) my friends and family have been pushing the “happy thoughts and prayers” on me and saying I will be whole again. They didn’t like it when I challenged them and said “what if I’m not?”. The councillor in the rehab centre told me that I had a healthy attitude. It’s good to have hope with a sprinkling of reality.
Some of the problem for me was that my family and I had been told that I would NEVER be able to walk again and even after I got some movement back, the experts still told me that ok, youve got movement but you still wont walk so the negativity was paramount, so much so that my family and I checked me out of rehab 3months early and I got a private physio to help me learn to walk again. I'd also had the attitude of all jockeys (I used to be a jockey) that when one gets hurt, we heal and ride again and that was my goal, to ride again and do what I loved again, so when the day came that I had to realise that I'd never be 'normal' again, it was also having to face facts that the successful career that I'd had since I was 15, was finished.
Treeguy, you have the right attitude....its very hard for family and friends to see the difficulty that youre going through and they wish for you to be able to recover fully, its what all people close to us want, it hurts them to see us having difficulty...gee..it was only a couple of weeks ago I stayed with my Mum for a few days and I fell during the night when I went to the toilet, I woke Mum up and when she realised that I'd fallen, the sorrow on her face hurt me so much to see....and this is after almost 20years.
another amazing awakening happened yesterday, my left hand was able to close in a half fist. my left hand was probably the most impaired part of body. all fingers except thumb and index I had no control or dexterity at all, was able to move all fingers on left hand at once yesterday for first time since injury. it was small movement but still exciting, maybe in a year or so I may be able to keyboard or type with 2 hands again. small advancements like this keep me pushing forward.
Maybe before that. My left hand was quite similar to yours at about the same stage. By the end of 6-8 months I was using a keyboard normally, just making tons of errors. It's still the same after 10 years. Biggest problem is the way the index, in particular, curls in. Typical quad claws, especially when I'm tired. I started pushing myself to use tie shoes about year 2. It was years before it became relatively easy, but if you do it hundreds, then a few thousand times, you get it. I hope that happens for you but I know you will be able to do a lot more than you think with that hand. I neglected the left for years, substituting use of the right. Silly thing to do since, like every other body part, the left hand has improved by exercising it.
tetra, that is good news, that would be great in 6 months. i didn't do much with my left arm and hand the 1st year, because I didn't have control over many muscles, over the last 1-1/2 years slowly doing more, recently about 3 months ago I started opening letters with left hand holding envelope while right hand did the dirty work of opening.
tetra, that is good news, that would be great in 6 months. i didn't do much with my left arm and hand the 1st year, because I didn't have control over many muscles, over the last 1-1/2 years slowly doing more, recently about 3 months ago I started opening letters with left hand holding envelope while right hand did the dirty work of opening.
I know I quickly got an 'attitude' that the left was hopelessly damaged and since the right could be substituted for most things, that is what I did. Plus, I was so fixated on walking I did not give the hand the importance it deserved. I won't minimize the difficulty. Sam, at your level of injury 'the claw' is common. Do your fingers curl up? Regardless, I know relentless rehab on the hands will get you farther than ignoring that poor, maligned left of yours. And mine.
I know one woman who suffered so much curling of her fingers she could not cath herself. She was able to get botox in the fingers and it helped a lot. She successfully moved to Intermittent Catheterization, though she still had to get the botox every 3 months. I dream of that for my left index finger but am convinced I could not get coverage for it, since I already cope with life and have for almost 10 years. Sigh. There are no docs in my area who do that anyway.
I step in the water, but the water has moved on...
tetra, that is good news, that would be great in 6 months. i didn't do much with my left arm and hand the 1st year, because I didn't have control over many muscles, over the last 1-1/2 years slowly doing more, recently about 3 months ago I started opening letters with left hand holding envelope while right hand did the dirty work of opening.
... Sam, at your level of injury 'the claw' is common. Do your fingers curl up? Regardless, I know relentless rehab on the hands will get you farther than ignoring that poor, maligned left of yours. And mine.
I know one woman who suffered so much curling of her fingers she could not cath herself. She was able to get botox in the fingers and it helped a lot. She successfully moved to Intermittent Catheterization, though she still had to get the botox every 3 months. I dream of that for my left index finger but am convinced I could not get coverage for it, since I already cope with life and have for almost 10 years. Sigh. There are no docs in my area who do that anyway.
I guess I am really fortunate, no curling of fingers, plus the spasms my left arm has allows me to straighten and stretch my fingers on my left hand a number of times per day and almost at will. I just need to stretch fingers on left hand with my right hand and usually when I do that my left hand muscles will spasm and make my fingers go straight and stiff for a few seconds.
like I was saying before, I am still super sore, I just went through a week of walking 120 ft per day in my walker(40 ft 3x per day). wow I am paying for it now. so since I was laid up in hospital for 5 to 7 weeks before starting PT, I think this is the biggest reason for my super sore muscles, does anyone else have these issues in recovery super sore muscles? this has been going on now for months and its driving me nuts. I guess fatigue plays a part in this typical of sci patients, would like to hear others input in their recovery.
omg, now if I didn't have an sci I would consider your input, but this is fully sci related issue, since it only started in the last year, after accident. appreciated.
like I was saying before, I am still super sore, I just went through a week of walking 120 ft per day in my walker(40 ft 3x per day). wow I am paying for it now. so since I was laid up in hospital for 5 to 7 weeks before starting PT, I think this is the biggest reason for my super sore muscles, does anyone else have these issues in recovery super sore muscles? this has been going on now for months and its driving me nuts. I guess fatigue plays a part in this typical of sci patients, would like to hear others input in their recovery.
supersore muscles are common @sam. Dont worry. Just take complete rest when they are like that. You will understand when they are super sore and they will tell that they cant take anymore. Respect it and take rest. Dont push yourself too hard. 120 per day might be toomuch for your muscles now. Soreness is just common thing. My muscles used to be fatigue with 3-4 steps a day with walker. It will get better with time.
ok younggun, I rested for 3 days and I feel a lot better. ill go much slower now. instead of pushing my body back to walking ill just gently lead my body back to walking. ill start by doing only 40 ft a day for one week, on 2nd week 80 ft/day, if I feel okay on 3rd week 120 ft/day, walking is difficult. so close its very hard to be patient.
ok younggun, I rested for 3 days and I feel a lot better. ill go much slower now. instead of pushing my body back to walking ill just gently lead my body back to walking. ill start by doing only 40 ft a day for one week, on 2nd week 80 ft/day, if I feel okay on 3rd week 120 ft/day, walking is difficult. so close its very hard to be patient.
Yeah, being patient to do what we used to do with ease causes frustration. But that is ok. You will definitely find improvement every week as you demand more out of your body. But be patient. Meditate. Keep calm and enjoy little things.