one issue I have is edema in left ankle and foot and its very fragile and cuts easily, so I am constantly dealing with oozing cuts on left ankle because of very sensitive and fragile skin, ooze is clear. [/quote]
thanks vintage, its doing much better now because im taking care of it instead of ignoring it, the edema I mean. I have dvt clot in left leg with the sci isn't helping it.
an update, seems im gaining strength but not gaining stamina, feeling no energy at times, is thier any recommendations to gain stamina? i blame my powerchair for this, i tried going to manual chair one day a week but i didnt last long got tired. help?
i live alone so i always need to be aware about safety and falling so i cant just keep moving as AB ones do. if i do to much my body retaliates by shutting down for a few days, which does me no good. ive been trying to get some sort of exersize equipment but no success yet. any ideas?
Try using the manual hair for just 2 hours a day for awhile. Or 3/week.
Are you lifting weights at home? We can often use very simple things, like water bottles or shopping bags with a few canned goods in them. You may need some nutritional assistance.
i do some but not on reg basis, because i am independent i have to do all menial tasks like laundry, minor cooking, minor repairs around home so to say the least i am exhausted by end of day, so adding exercize tasks just seems very difficult, currently i feel my mu7scle on the verge of exhaustion but i have to keep pushing to remain independent, i hope to one day not feel the soreness and muscle pain all the time but currently doesnt look good.
compared to AB persons what i do in a day isnt much, could i still be doing too much in my condition?
i do some but not on reg basis, because i am independent i have to do all menial tasks like laundry, minor cooking, minor repairs around home so to say the least i am exhausted by end of day, so adding exercize tasks just seems very difficult, currently i feel my mu7scle on the verge of exhaustion but i have to keep pushing to remain independent, i hope to one day not feel the soreness and muscle pain all the time but currently doesnt look good.
compared to AB persons what i do in a day isn't much, could i still be doing too much in my condition?
That does leave you in a difficult situation, Sam, and I get what you are saying. What about this option-as you go through your activities of daily living (gosh, i just love the ADL shorthand that Occupational Therapists created four us) focus on how you do things? Is your posture distorted to one side as you lift and carry, or whatever the action is? Notice and analyze how you move when you do things. If you are stronger on the right side then practice using the left side more . Pick things up from your off side. Focus on keeping your weight balanced, right to left, in your butt as you use your chair. If you are now doing some things on your feet use the same strategy. Keep your back straight as you move.
You probably do those things quite a lot already but we can't do enough of it because favoring the strong side is so automatic, and we get in a rush to complete a task. Iff you can work in a 30 minute rest in bed during the day would that help? For me laying down decreases muscle tension and neuropathy symptoms quite bit.
Likely you can work in a few stretches and a bit of lifting things while standing as you go through your day. Lifting a can or bag with weight while standing within the walker, or next to the sink as I do is a very good way to strengthen your core and core coordination. This plan of full-time "awareness" is actually what all of us need to strive for anyway. As we improve our coordination it takes less energy to complete ADLs and you may find your day a bit less exhausting. I can do more now simply because the way I move is less taxing.
i do think now before i do things, and try and use my weak side more, but my right arm is way overused and is sore from use in many joints or muscles and i lay down 2x a day for 1-1/2 hrs each and i sleep most of that time. maybe this is just the way life will be like now, struggling to do minor tasks, hope not.
Sam, I'm fighting similar issues. I try and do things in spurts. And, although I hate it. I take a nap mid day. My van has been down (fuel pump), so I've been using my manual chair more often. Can't believe how hard it is to get around with it. On the stamina subject, my TSH was off a bit and that can raise heck with energy. Might want to check your thyroid numbers. Mike
Sam, I'm fighting similar issues. I try and do things in spurts. And, although I hate it. I take a nap mid day. My van has been down (fuel pump), so I've been using my manual chair more often. Can't believe how hard it is to get around with it. On the stamina subject, my TSH was off a bit and that can raise heck with energy. Might want to check your thyroid numbers. Mike
i still have energy just not a lot, i still do things it just sucks with the pain, short stamina, and soreness, not to mention nausea when i get to exhausted. thats when the cannabis vape comes in handy. ill ask my dr next time i visit him about thyroid tests. i used to hate my 2 naps a day but now i need them.
received a new pedal exerciser last friday, cost $60, free shipping. i have noticed that this equipment is what i needed, i feel the strength building over the last few days. i use 3 min a day for both arms and legs each. my left foot starts clonus at about 2 min and 3 mins is about all i can do now. so as i get stronger the clonus should diminish so i can gradually increase time. for anyone who is weak and needs to gain strength get a pedal exerciser, it does the trick.