Paralysis sucks for sure, I won't embrace it, I don't accept it as a permanent thing, I don't think it was done to me by any being. Rehab is a godawful thing, with every session of rehab comes a lot of pain but its all thats out there right now. Every time I pee myself or have to put a catheter in I curse the situation Im in, yea the bowel program is fun too…….whats it gonna be today rocks or the scutters. It sucks for us and the people who love us. I don't fear death as much as I used to but I know now that I do love life and try to live a day at a time the best I can. Something keeps me fighting though no matter how dark it gets. I won't/can't give in….sometimes thats great and sometimes it a curse.
Paralysis sucks for sure, I won't embrace it, I don't accept it as a permanent thing, I don't think it was done to me by any being. Rehab is a godawful thing, with every session of rehab comes a lot of pain but its all thats out there right now. Every time I pee myself or have to put a catheter in I curse the situation Im in, yea the bowel program is fun too…….whats it gonna be today rocks or the scutters. It sucks for us and the people who love us. I don't fear death as much as I used to but I know now that I do love life and try to live a day at a time the best I can. Something keeps me fighting though no matter how dark it gets. I won't/can't give in….sometimes thats great and sometimes it a curse.
tbone57 saidParalysis sucks for sure, I won't embrace it, I don't accept it as a permanent thing, I don't think it was done to me by any being. Rehab is a godawful thing, with every session of rehab comes a lot of pain but its all thats out there right now. Every time I pee myself or have to put a catheter in I curse the situation Im in, yea the bowel program is fun too…….whats it gonna be today rocks or the scutters. It sucks for us and the people who love us. I don't fear death as much as I used to but I know now that I do love life and try to live a day at a time the best I can. Something keeps me fighting though no matter how dark it gets. I won't/can't give in….sometimes thats great and sometimes it a curse
I do not have your problems But I suffer from Fibromyalgia/Cfs and it as put me in a wheel chair. And many others like me I know feel exactly the way you feel. In a way Our problems are not too many miles apart. And I can understand and completely sympathise with you. It is good to hear some one say how they really feel.
It is like we need to be happy and positive all the time no matter what we suffer with. I am sure we all would love to feel that way but we don't. It is not that we feel gloom and doom 24/7 But I bet no one out there would swap places with us Good for you get it out then try and move on.
We have to move on or what we feel will eat us alive. And I do believe we do have a life not as we once knew it but a new life. That's what we have to try and embrace imo. Finding a new way to live and replacing the things we enjoyed that we can no longer do with new things.
It is hard and people don't understand your loss our loss But we can move forward with great sites like this hang in there I do understand
Paralysis sucks for sure, I won't embrace it, I don't accept it as a permanent thing, I don't think it was done to me by any being. Rehab is a godawful thing, with every session of rehab comes a lot of pain but its all thats out there right now. Every time I pee myself or have to put a catheter in I curse the situation Im in, yea the bowel program is fun too…….whats it gonna be today rocks or the scutters. It sucks for us and the people who love us. I don't fear death as much as I used to but I know now that I do love life and try to live a day at a time the best I can. Something keeps me fighting though no matter how dark it gets. I won't/can't give in….sometimes thats great and sometimes it a curse.
you read my mind man. I didn't know how to word it, but you worded it perfectly. You have a great outlook on life and on your situation!
Paralysis sucks for sure, I won't embrace it, I don't accept it as a permanent thing, I don't think it was done to me by any being. Rehab is a godawful thing, with every session of rehab comes a lot of pain but its all thats out there right now. Every time I pee myself or have to put a catheter in I curse the situation Im in, yea the bowel program is fun too…….whats it gonna be today rocks or the scutters. It sucks for us and the people who love us. I don't fear death as much as I used to but I know now that I do love life and try to live a day at a time the best I can. Something keeps me fighting though no matter how dark it gets. I won't/can't give in….sometimes thats great and sometimes it a curse.
tbone57, I couldn't have said it better myself. I find everyday a battle but we have no choice other than to battle on and get on with what we have.
Paralysis sucks for sure, I won't embrace it, I don't accept it as a permanent thing, I don't think it was done to me by any being. Rehab is a godawful thing, with every session of rehab comes a lot of pain but its all thats out there right now. Every time I pee myself or have to put a catheter in I curse the situation Im in, yea the bowel program is fun too…….whats it gonna be today rocks or the scutters. It sucks for us and the people who love us. I don't fear death as much as I used to but I know now that I do love life and try to live a day at a time the best I can. Something keeps me fighting though no matter how dark it gets. I won't/can't give in….sometimes thats great and sometimes it a curse.
tbone57, I couldn't have said it better myself. I find everyday a battle but we have no choice other than to battle on and get on with what we have.
tbone57 is correct we won't/can't give in. I am pleasantly surprised to read this thread and other people with paralysis writing, and having same emotions as myself. Paralysis sucks, and I have learned to hide my true emotions over the years. AB see people see me and it irks me when saying someday you will walk. Dude! I just want to pee, and crap in private independently.
tbone57 is correct we won't/can't give in. I am pleasantly surprised to read this thread and other people with paralysis writing, and having same emotions as myself. Paralysis sucks, and I have learned to hide my true emotions over the years. AB see people see me and it irks me when saying someday you will walk. Dude! I just want to pee, and crap in private independently.
It's crazy how badly all some of us want back is our bowel & bladder function eh dannygilman!
tbone57 is correct we won't/can't give in. I am pleasantly surprised to read this thread and other people with paralysis writing, and having same emotions as myself. Paralysis sucks, and I have learned to hide my true emotions over the years. AB see people see me and it irks me when saying someday you will walk. Dude! I just want to pee, and crap in private independently.
It's crazy how badly all some of us want back is our bowel & bladder function eh dannygilman!
That and some mind-blowing sex . . . . or any . . . .
I know everyone deals with it differently and some better than others but for me, i accept that it happened and nothing will change that fact so i just deal with everything in my stride and stay positive
I had this exact same conversation with some colleagues today because they find that I don't get frustrated, mad, cry enough ... With them (or hardly ever if truth be told). They said they didn't think they'd be as 'accepting' as me if they were in my shoes. I told them I am fundamentally someone who takes what is dished out without (hardly ever) complaining, go with the flow ... Also that I have no one else to blame for my accident but myself, as it wasn't a drunk driver, or disease ... To blame. It was my error in judgement!
i did admit that I do cry (sometimes) but not often. Not counting when in rehab, probably less than 5 times in the last year. And half of those times were probably pms or hormone-related (haha) therefore out of my control. ;-)
When do get overwhelmed and I feel like crying, I don't hold back.
Understanding totally where you are coming from ladylimpsalot..Sometimes its hard to see why we are given the journey that travel. Im not bitter about my injury or resentful in any way....it happened and thats it.
I know everyone deals with it differently and some better than others but for me, i accept that it happened and nothing will change that fact so i just deal with everything in my stride and stay positive
That and some mind-blowing sex . . . . or any . . . .
Any of the above would be great..
This may be in the wrong forum, so I apologize in advance, but has anyone considered Acupuncture? We use it as a secondary therapy at the facility I work in and I've been able to see many people regain their bowel and bladder function, sensation, and control back. Acupuncture
Interesting link kyle. I read the study..I think i would like to read more into it and look at the results closely...Do you have any case studies you can share with us?
Im curious as to why acupuncture is not being promoted more. Also the patients in the study were still within their recovery phase so i wonder how the results can be assessed critically. Also how do the results compare for longer SCI peeps
Lαrα Unfortunately I don't as of now, but if I find any I will definitely post a link. I think it's not as promoted because there are no "definite" results, like "doing acupuncture for x amount of sessions will get you ___ back." Some people respond well, and others not as much. I know one client, maybe 5-6 years post, was in for acupuncture and ended up regaining bowel and bladder.. Another gal who was 12 years post regained lower leg function through a combination of therapy and acupuncture. Again, and this is the difficult part, the results from these things do and WILL vary from person to person, but it's better than doing nothing, PLUS I don't think I've ever felt as relaxed as I do after an acupuncture session!