Hi jakem, do what the coloplast instructions say. If you have a flaccid bowel do it daily. There is no need to do a PR at all, that's why your using the product to stop all that stuff. It's supposed to make life a bit easier not harder. You do it when you want to, it's your body not your nurses, ok mate.
I find if the rectum is not clear after BC it comes out during the day. I put my foot don this morning and went again. 50/50 result. Put in 300 ml. Took about 40 min util it came out. Nothing formed, like soup. Going to up the amount of water tomorrow to 400 ml.
Butiki do you keep the balloon inflated for any amount of time or release it once the water is pump in?
I'm glad to see that your standing up for yourself jakem. I keep the balloon in for one cigarette, let's say about five minutes . I usually get a trickle of water, then the action starts. On average I would say I sit on the loo for 45 to 60 minutes, I like to make sure everything is out, especially the water, otherwise it can lead to a leak latter in the day.
I'm glad to see that your standing up for yourself jakem. I keep the balloon in for one cigarette, let's say about five minutes . I usually get a trickle of water, then the action starts. On average I would say I sit on the loo for 45 to 60 minutes, I like to make sure everything is out, especially the water, otherwise it can lead to a leak latter in the day.
One cigarette lol. I will try that 5 minute. I am getting the little trickle of water at first. A couple of minutes after a bit more then a trickle. Thn today a got a got dome good action. A lot more formed poo for the first times then it really started to empty. Then nothing. I did not feel good, had a yuck buning feeling, like I get fom bisalax. The reason I switched over for. I use 400 ml today. I think the burning feeling is my body telling I m not empty. Next time I will use 500 ml. My nurse will also have to slow down the pumping. Let it go up slowly.
Yes jakem, pump slowly. It will take a few weeks for your body to get used to this new way of pooing, lol. Just keep at it and I think it will work out well for you. It took about a week for me to get it all working well.
Just when I thought things were getting better was let down big time today. Pumped in 400 ml and some leaked out so one more pump for the ballon. Sat there for a couple of minutes than removed the Cath. After 5 min a couple of small trickles of water then nothing. Normally I get two gushes but none today. Nurse did a PR after 30 min and bingo was all sitting there. Could it be we miscalculated the amount of water that leaked out and did not pump in enough? Sitting in my chair now waiting for all hell to break out because the nurse was not allowed to do another PR.
Hi all. Well it's been a while since I posted. I tried the peristeen for a while and it was ok but time consuming. I ended up going for a colostomy bag. It's be n 4 weeks since the operation. First couple of weeks I thought I had made a big mistake,pain,not much coming out and feeling down in the dumps. I was told this happen and they were spot on. 3 week I was feeling much better. Could breath easy,talk easy, feeling hungry and alive" Week 4 is even better. Feeling even better. Output has improved,changing the bags a breeze less then 5 minutes. Plenty of spare time,carers can do more for me and seem very happy. I have got a big part of myself and life back.
Hi jakem, glad to see that things seem to be working out for you. I have been seriously considering going down the colostomy road myself, from what I've seen it seems to make life a hell of a lot simpler. I just have to get my head around the idea of a bag stuck on my side.
I do not have a spinal cord injury but have very much enjoyed this message board. I work for a company that is developing a bowel management system. This message board has provided some excellent insights for the likes, dislikes & challenges of such products from actual users. I plan on using that information to develop a product that meets user wants & needs effectively.
I understand that Peristeen product is nice and works well but can be expensive. If there are any other design inputs you'd like to share with a biomedical engineer, feel free to send them my way. I'd be happy to keep you updated on the development status of our device.
ps. Very impressed by the supportive & sharing nature of your members.
I'm glad to see that your company is interested in creating something that could help us with better manage our bowel routines. Are you allowed to talk about what you're currently developing and how it would work?