Inspired Spinal Cord Injury Support Forum

steve New Member Posts: 4 Post Likes Received: 6 Date Joined: February 2014 Injury: T5 Date Injured: 1993 Member is: Offline Send PM	Bladder Spasticity May 9, 2014 8:06:30 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by steve on May 9, 2014 8:06:30 GMT -8 My Botox injections last about 6 months, then I go and get more injections. I was on Ditropan/Oxybutinin for about 19yrs an then it just stopped working for me and id void everytime I had a spasm. The Botox has been a life saver for me.

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Bladder Spasticity May 9, 2014 8:39:44 GMT -8

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Post by Lαrα on May 9, 2014 8:39:44 GMT -8

May 9, 2014 8:06:30 GMT -8 steve said:

My Botox injections last about 6 months, then I go and get more injections. I was on Ditropan/Oxybutinin for about 19yrs an then it just stopped working for me and id void everytime I had a spasm. The Botox has been a life saver for me.

Thats great to hear steve...have the spasms stopped completely now?

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Bladder Spasticity May 9, 2014 18:01:13 GMT -8

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Post by DJ on May 9, 2014 18:01:13 GMT -8

May 9, 2014 8:06:30 GMT -8 steve said:

My Botox injections last about 6 months, then I go and get more injections. I was on Ditropan/Oxybutinin for about 19yrs an then it just stopped working for me and id void everytime I had a spasm. The Botox has been a life saver for me.

I might have to end up going your route one day steve. I'm glad the Botox has helped you in a positive way!

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Bladder Spasticity May 9, 2014 19:08:53 GMT -8 via Inspired Mobile

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Post by Knight on May 9, 2014 19:08:53 GMT -8

May 9, 2014 18:01:13 GMT -8 DJ said:

May 9, 2014 8:06:30 GMT -8 steve said:

My Botox injections last about 6 months, then I go and get more injections. I was on Ditropan/Oxybutinin for about 19yrs an then it just stopped working for me and id void everytime I had a spasm. The Botox has been a life saver for me.

I might have to end up going your route one day steve. I'm glad the Botox has helped you in a positive way!

I too am interested in getting Botox in my bladder. I know a friend who had hers done and she absolutely loves not having to worry about peeing herself, having pain, or taking meds.

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Too Pretty to Walk™

iloveellisse Junior Member Posts: 99 Post Likes Received: 48 Date Joined: August 2013 Injury: T10 Incomplete Date Injured: 16-09-2012 Member is: Offline Send PM	Bladder Spasticity May 11, 2014 1:25:53 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by iloveellisse on May 11, 2014 1:25:53 GMT -8 I'm tired of trying to catheter and then get a spasm, I always overflow when I do and its a major clean up job. Ditropan isn't helping enough.

DJ Administrator STAFF Posts: 8,162 Post Likes Received: 2,829 Date Joined: July 2013 Injury: C6 - ASIA B Date Injured: June 2011 Member is: Offline Send PM	Bladder Spasticity May 11, 2014 5:42:26 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by DJ on May 11, 2014 5:42:26 GMT -8 iloveellisse, have you considered trying Botox?

iloveellisse Junior Member Posts: 99 Post Likes Received: 48 Date Joined: August 2013 Injury: T10 Incomplete Date Injured: 16-09-2012 Member is: Offline Send PM	Bladder Spasticity May 13, 2014 10:40:56 GMT -8 Quote Select Post Deselect Post Link to Post Back to Top Post by iloveellisse on May 13, 2014 10:40:56 GMT -8 May 11, 2014 5:42:26 GMT -8 DJ said: iloveellisse, have you considered trying Botox? I think I would consider it DJ. I'd like to find out more first.

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Bladder Spasticity May 13, 2014 11:59:01 GMT -8

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Post by DJ on May 13, 2014 11:59:01 GMT -8

May 13, 2014 10:40:56 GMT -8 iloveellisse said:

May 11, 2014 5:42:26 GMT -8 DJ said:

iloveellisse, have you considered trying Botox?

I think I would consider it DJ. I'd like to find out more first.

Speak to your urologist and see what he/she thinks.

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Bladder Spasticity May 25, 2014 18:30:20 GMT -8

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Post by kisch5 on May 25, 2014 18:30:20 GMT -8

How often do you catheter yourself a day? I have been able to void completely since my surgery 9 months ago. Lately, it has been more difficult to urinate and I don't think I am voiding completely. Which brings me to the catheter (I figured it would happen sooner or later). Anybody have any advise?

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Bladder Spasticity May 26, 2014 5:00:46 GMT -8

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Post by DJ on May 26, 2014 5:00:46 GMT -8

kisch5 I only catheterize 2-3 times a day but I really should be cathing more. All other times my body emptys itself but not completely. Try catheterizing right after you void and see if there's any risuadual urine. If there's 50ml or less you're fine but if not you may have to cath every 6 hours.

kisch5
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Bladder Spasticity May 26, 2014 13:45:18 GMT -8

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Post by kisch5 on May 26, 2014 13:45:18 GMT -8

I've done urodynamics before and they said I was voiding completely (less than an ounce left after voiding during the x-ray). It's gotten more difficult lately though, urinating that is, and it worries me a little bit. Do I need to go and see a urologist or can I figure out how to do it on my own (I had never been to a doctor for more than a flu shot up until nine months ago, and I can honestly say I don't ever really want to see another ever again)?

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Bladder Spasticity May 26, 2014 13:59:14 GMT -8

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Post by Lαrα on May 26, 2014 13:59:14 GMT -8

May 26, 2014 13:45:18 GMT -8 kisch5 said:

I've done urodynamics before and they said I was voiding completely (less than an ounce left after voiding during the x-ray). It's gotten more difficult lately though, urinating that is, and it worries me a little bit. Do I need to go and see a urologist or can I figure out how to do it on my own (I had never been to a doctor for more than a flu shot up until nine months ago, and I can honestly say I don't ever really want to see another ever again)?

If you are experiencing some issues voiding then you should most definitely go and speak to your doctor. Explain to him/her that you have a spinal injury and you believe there is a possibility that you are retaining as you are having some problems.

I understand totally how you feel about visiting the docs but its better to get checked out. If you are found to be retaining then you can be given assistance and also it may be worth making sure you are not developing more neurological damage.

Sometimes bowel issues cause a problem with emptying the bladder, bladder spasms can affect the flow too. There is a method of pressing gently over the bladder to help void but ideally you should be shown how to do this by a medical expert in this area...

Good luck with it and keep us informed but get checked sooner than later so you can avoid any potential problems.

Even if you do have to go down the route of catheterizing, some people catheter morning and night just twice a day...especially if they do not have significant retaining...It all depends...

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Bladder Spasticity May 26, 2014 17:16:14 GMT -8

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Post by DJ on May 26, 2014 17:16:14 GMT -8

May 26, 2014 13:45:18 GMT -8 kisch5 said:

I've done urodynamics before and they said I was voiding completely (less than an ounce left after voiding during the x-ray). It's gotten more difficult lately though, urinating that is, and it worries me a little bit. Do I need to go and see a urologist or can I figure out how to do it on my own (I had never been to a doctor for more than a flu shot up until nine months ago, and I can honestly say I don't ever really want to see another ever again)?

Oh if you've never catheterized before I suggest you see your urologist/doctor as Lαrα has mentioned. Difficulty urinating is one thing but if your bladder isn't retaining any urine, it's a good thing but definitely go get checked.

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jimmyt
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Bladder Spasticity May 29, 2014 10:38:24 GMT -8

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Post by jimmyt on May 29, 2014 10:38:24 GMT -8

Botox all the way for Para's - Since getting botox I can last longer between caths which saves $ and no longer have the need for a leg bag at night again $ saved - I almost feel kinda normal again I do 4 caths a day and it works 100 percent for me and my life style

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DJ
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Bladder Spasticity May 29, 2014 16:18:51 GMT -8

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Post by DJ on May 29, 2014 16:18:51 GMT -8

May 29, 2014 10:38:24 GMT -8 jimmyt said:

Botox all the way for Para's - Since getting botox I can last longer between caths which saves $ and no longer have the need for a leg bag at night again $ saved - I almost feel kinda normal again I do 4 caths a day and it works 100 percent for me and my life style

That's awesome jimmyt! Thanks for the info

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Bladder Spasticity

Post by steve on May 9, 2014 8:06:30 GMT -8

Post by Lαrα on May 9, 2014 8:39:44 GMT -8

Post by DJ on May 9, 2014 18:01:13 GMT -8

Post by Knight on May 9, 2014 19:08:53 GMT -8

Post by iloveellisse on May 11, 2014 1:25:53 GMT -8

Post by DJ on May 11, 2014 5:42:26 GMT -8

Post by iloveellisse on May 13, 2014 10:40:56 GMT -8

Post by DJ on May 13, 2014 11:59:01 GMT -8

Post by kisch5 on May 25, 2014 18:30:20 GMT -8

Post by DJ on May 26, 2014 5:00:46 GMT -8

Post by kisch5 on May 26, 2014 13:45:18 GMT -8

Post by Lαrα on May 26, 2014 13:59:14 GMT -8

Post by DJ on May 26, 2014 17:16:14 GMT -8

Post by jimmyt on May 29, 2014 10:38:24 GMT -8

Post by DJ on May 29, 2014 16:18:51 GMT -8

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