Oh my bladder spasms every 30-60 mins and it does worry my everytime because I never know if it's going to leak or not. It really sucks worrying about it all the time but what can we do? Do you have control of your bladder?
I have little control over my bladder if spasm is not triggered. I can hold for 15-20 mins in case there is not extra pressure on bladder or any spasm. 1-2 mins in case spasm is triggered. If am going to meeting or into crowds.. I will stand and will try to pee. In that way.. I will be sure that I am fine for next 30 mins.. but I cannot do anything if I am in crowds.That is the reason my social life is cut.
Ohh I see. Does it always leak? Have you tried other brands?
I have little control over my bladder if spasm is not triggered. I can hold for 15-20 mins in case there is not extra pressure on bladder or any spasm. 1-2 mins in case spasm is triggered. If am going to meeting or into crowds.. I will stand and will try to pee. In that way.. I will be sure that I am fine for next 30 mins.. but I cannot do anything if I am in crowds.That is the reason my social life is cut.
Ohh I see. Does it always leak? Have you tried other brands?
It leaks when there is tortoise effect.. .. Chances of leak increases when I am sitting for long hours.
It leaks when there is tortoise effect.. .. Chances of leak increases when I am sitting for long hours.
Yeah I know what you mean. Said "tortoise effect" normally happens when my bladder spasms and I get AD. Don't know why that happens
Yeah.. dont know why that happens.. and cant be sure with condom catheter.. do you wear adult diaper to protect urself even in case of leak? My colleague at office, who is also in wheels, said he wears adult diapers. But I dont wear any such.
I am asking all these in detail just to get some help so that I could go out to parties and bars without feaking leaks.
Yeah I know what you mean. Said "tortoise effect" normally happens when my bladder spasms and I get AD. Don't know why that happens
Yeah.. dont know why that happens.. and cant be sure with condom catheter.. do you wear adult diaper to protect urself even in case of leak? My colleague at office, who is also in wheels, said he wears adult diapers. But I dont wear any such.
I am asking all these in detail just to get some help so that I could go out to parties and bars without feaking leaks.
Haha no I don't wear diapers, I imagine it'd speed up skin breakdown wearing those. Whenever my bladder spasms I just try to relax and not do anything until the bladder emptys itself. Normally it doesn't leak unless I'm doing something. UTI's make things worse too!
Yeah.. dont know why that happens.. and cant be sure with condom catheter.. do you wear adult diaper to protect urself even in case of leak? My colleague at office, who is also in wheels, said he wears adult diapers. But I dont wear any such.
I am asking all these in detail just to get some help so that I could go out to parties and bars without feaking leaks.
Haha no I don't wear diapers, I imagine it'd speed up skin breakdown wearing those. Whenever my bladder spasms I just try to relax and not do anything until the bladder emptys itself. Normally it doesn't leak unless I'm doing something. UTI's make things worse too!
Yeah I understand. I dont have UTI issues ever. Hope I find a way out for these bladder spasms and leakages soon so that I enjoy my social life again.
I just came back from my Botox injection in my bladder. Last time was in October. My urologist repeated the same dosage as last time: 300 units. I was on Macrobid for a bladder infection but when he was doing the procedure, he found a stone in my bladder and removed it. It was brown in color. My urologist said I probably got the infection from the stone, which makes sense.
I was wondering for those of you who have been getting Botox injections, how many units are you up to now? It just seems that my amounts are increasing and I am wondering how much will I eventually get up to in controlling the bladder spasms. My spasms have been getting worse to the point that I feel like a weight is sitting on my stomach all of the time.
I would appreciate hearing about other people's experiences with Botox injections.
An update on my latest botox experience. I had to go back for another 100 units of botox injections in my bladder. My spasms were continuing to the point that I was really uncomfortable. Additionally, the doc inserted two coaptite plugs into my urethra so that I don't leak, which was happening due to stress incontinence.
I can tell you that for me 23 years of inserting a catheter has taken it's toll on my bladder. I had heard stories from my friends about bladder issues as they got older, but I was really hoping it wouldn't happen to me.
I am on my 3rd week we a UTI, antibiotics arent touching it, so Im trying to flush it with lemon water and the spasms are crazily annoying ...The joys! Oh i thought the thread said spasms How bad
Hello DJ. You have my sympathies, mate. Autonomic dysreflexia is a killer. Full bladders or bowels are sure to provoke the horrible's, that is a life-threatening dysreflexia attack. My bladder is as flaccid as a deflated tire, a balloon that lost all its air. Nevertheless there is a critical volume of around 800 mL, beyond which I start to spasm and experience extreme back pain and blood pressure. I have to push up high, my hands on the rims of my wheels and my body as straight as possible. It drains beautifully then. Like you I wear a sheath or condom which drains into a leg bag. I have a colostomy which helps with my bowels. Nevertheless if I have a huge bowel output my blood pressure is sure to go through the roof. The important thing is to recognise the signs and know how to treat it. I have nifedipine on hand, take a bit under the tongue when necessary. The trick is to keep my bladder and bowels as empty as possible. Time to stop writing and drain it. Here we go. Strain, squeeze, sweat and dribble. Ahhhh ... how beautiful. Just going to empty my bag now. Or should I say, 'get some help to empty my bag now'. Now it's time for a crap. Do you remember those good times before your injury when it was so wonderful and sweet to flip out your tackle and just let your bladder empty by itself, how beautiful a sensation it was to feel your bladder draining. Such sweet memories.
What are those bladder issues, over time, Califanna?
It is different for everyone. It depends on how they have been emptying their bladder over the years. These are just some of the issues my friends have been dealing with: flaccid bladder, more spasticity, increase in the number of UTIs and bladder/kidney stones, backup of fluid into the kidneys, urethra failure (widening, lack of closure or closure), urostomy, supra pubic or the need for bladder reconstruction.
Just to quickly jump in here to give a RA RA for botox injections. I've just had my second one, first one was six months ago. It has been FABULOUS. Was cathing daily anyway, and now it's almost like not having a bladder at all. At least, not one that I need to pay attention to, except for cathing every 3-4 (sometimes 6-7 at night) hours. I only experience a vague sensation of pressure when the bladder starts to fill, but I'm in complete control! Can finally sleep through the night.
How will botox injections work in the long run lorainedf . Is there a certain amount you can have? Anyone used botox injections long term?
Great question. My urologist hasn't said that there is a limit to how long you can have the injections for, only that you want to limit how much you have in your system at any given time. Which is why the injections are spaced out as they are. But, mine started to wear off a little at 4 months, so I'm going to ask for the next one (after this second one) at about 4-5 months. Everyone is different, of course.